Anyone on Prograf?

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/6/2007 10:21 PM (GMT -7)   
I just got the prescription for it, the Pharmacist seemed freaked out about it... he was asking WHY I needed it, if I had a kidney transplant so I got to explain my life story to him and he looked it up and said ok, it is being experimented on UC.  Nice....
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 12/7/2007 10:51 PM (GMT -7)   
hey my friend!!! :-)
hmmm...I"ve not heard of it...but this is what I got from the internet. 
Prograf® (tacrolimus) is indicated for the prophylaxis of organ rejection in patients receiving allogeneic liver, kidney, or heart transplants.
 

The principal adverse reactions of Prograf are tremor, headache, diarrhea, hypertension, nausea, and abnormal renal function. These occur with oral and IV administration of Prograf and may respond to a reduction in dosing. Diarrhea was sometimes associated with other gastrointestinal complaints such as nausea and vomiting.   (diarrhea?  hmmm...like you need that?)     

sorry,  I don't have much info, and you probably already know all this info...but if you need more info,  call the doc that prescribed it for you..they are supposed to provide all that info for you when you're prescribed.  


~Christie 
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).
Diagnosed with L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Medications
Remicade infusions ~ Nov. 2007,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone taper 20mg daily, Nexium 40mg twice a day, Lantus insulin 45 units daily, Novolog 10 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, and Calcium daily. 
                 
                                                     
 
 
 
         


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4812
   Posted 12/10/2007 1:57 PM (GMT -7)   
I am currently on Cyclosporine (for the 2nd time).... Your flare must be pretty severe if they put you on Prograf or Cyclosporine (they are pretty similar) You can read more on the CCFA website about Prograf http://www.ccfa.org/info/treatment/immunomodulators

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (500 mgs)
Supplements:  None 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/10/2007 2:47 PM (GMT -7)   
I have not heard of it but it makes sence since a lot of the meds we are put on are also used for organ transplant patients.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
 
Should also be on supplements and probiotics and other UC drugs but I'm just not good at taking pills...


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/10/2007 2:54 PM (GMT -7)   
Thank you for the link Keith, and the info Christie. Since I have been flaring so bad, I haven't taken it because I am terrified of getting any worse. I am seeing my G.I. tomorrow so I'll talk to him about everything and see what he says. I have only been in remission, or what I consider remission, for like 3 months this year out of my 12 years of UC. In January I was exercizing, doing yoga, feeling great in remission, then my Mom passed away! I have been so-so since but think the colonoscopy made me flare up! I have had this one STUBBORN ulcer in my rectum for maybe 4 years. I've tried sooo many meds with no success. My doctor gets so frustrated and so do I!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 12/11/2007 6:45 PM (GMT -7)   
A little more info from wikipedia
http://en.wikipedia.org/wiki/Tacrolimus#Use_in_treating_ulcerative_colitis
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage

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