Question about test results

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dee007
Regular Member


Date Joined Nov 2006
Total Posts : 108
   Posted 12/6/2007 11:57 PM (GMT -7)   
Hey guys hope you are doing well
 
Well its been well over a year and a half that ive had colitis. And some questions are starting to pop into my mind.
Such as all the tests we have done are we entitled to a copy of all the reports?? Or do we have to ask for it?? And if we do and they refuse can a hospital have a policy in not giving out your own personal records??
 
Also when getting a new GI and you close your file do they actually give you your results or do you have to find a new GI and they fax it to them??
 
Also a question about infection. Does anyone know in order to have an infection do you have to have elevated white blood cells?? Or can all the test results be normal and you can still have an infection??
 
The reason why i ask this is because i just read on the crohns forum how crohns might be caused by MAP. And how some people have GI who actually believe in the MAP theory. Im starting to wonder if crohns is indeed caused by MAP then colitis must have a cause to.
 
Im getting fed up of this colitis. I never pictured myself having fear of leaving my house. And i dont want to take steroids and i dont want to see my GI anymore because i think i will honestly smash his face into his computer screen. Sorry he just pisses me off and he everytime i go see him he tells me something different.
Tests done so far:  Parasites and occult blood - negative; Barium liquid swallow - normal; CT scan - normal; Fecal fat test 72 hours - normal: Colonoscopy with biopsy - chronic colitis; Got blood test to test if I have Crohns or UC and both came back negative.
 
Gvien Flagyl for 10 days before any test and worked then every came.
Currently not on any medication - trying chinese herbs for 3 months now 
Currently 95 pounds. I was 120 pounds a year and a half ago.
Diagnosed with Chronic Colitis in March 2007 Gi says might branch out to crohns or uc


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 12/7/2007 12:13 AM (GMT -7)   
HI Dee,
well,  I"ll try to answer a few of your questions....I am a nurse and work in a clinic,  so I have an idea how results/records/etc works.    If you want copies of your test results,  you are entitled to have copies of them...either ask the doctor at your appointment,  or call in and ask for copies of your last results.  Usually they can just give you copies of one or two tests without a problem...but if you want a whole bunch,  like the last years worth or all test results,  most places will charge you for your records.    Also,  for more than a few results,  they may ask you to sign a records release as well.   
When you change GI docs,  the new doctor does not automatically get your records from your past doctor.  You need to sign a records release form.   You can do it either at your new doctor or at your old doctor,  but you need to sign for them.  Then they will get them to the new doctor either by mail or fax.  Depends on there policies.
In regards to infection,  yes,  usually its determined by an elevated white count,  but it is possible for it to be masked.  For example,  if your on steroids ,  it can often mask the infection and show a normal white count when in fact you do have an infection. 
In terms of Crohns,  I"m not very knowledgeable about the theories that are being said to cause it...as a matter of fact,  I"m trying to rack my brain as to what MAP is?   confused     lol.  But i hope I was a help in other questions...... :-)
~Christie 
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).
Diagnosed with L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Medications
Remicade infusions ~ Nov. 2007,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone taper 20mg daily, Nexium 40mg twice a day, Lantus insulin 45 units daily, Novolog 10 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, and Calcium daily. 
                 
                                                     
 
 
 
         


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 12/7/2007 8:00 AM (GMT -7)   
Over the phone my docs will give me any test results I want. To get a hard copy i have to sign a release. I did that a few years ago just to see my full dx since i have had problems for over 20 years I wanted to see what my early tests said compared to my later tests. Really interesting.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


dee007
Regular Member


Date Joined Nov 2006
Total Posts : 108
   Posted 12/7/2007 11:40 AM (GMT -7)   

Thanks ChristieAnn67 for replying mighty nice of you. I think i will ask for my test results but i cant believe i might have to pay for results that came out of my body i think hospitals are not there to help us anymore and just to drain our pockets. I just want all my tests to see if they are in fact normal. Because i find it very strange that up to now including my biopsies came back not revealing anything. Either the hospital im currently being treat at are a bunch of retards sorry for the word but im starting to think they are just taking me on for a ride.

Thanks for answering about the white blood cell. My white blood cell came back normal. But in an auto-immune disease would it come back elevated?? or would it stay the same??

As for MAP its actually a bacteria that is being found in crohns patients. Now im not saying its being found in all crohns patients but from what im reading in some of them and some of them are being treating with anti-biotics.

When you sign a release form that does mean your file is officially closed or can you still keep on seeing that GI ??

Well guys have a nice weekend


Tests done so far:  Parasites and occult blood - negative; Barium liquid swallow - normal; CT scan - normal; Fecal fat test 72 hours - normal: Colonoscopy with biopsy - chronic colitis; Got blood test to test if I have Crohns or UC and both came back negative.
 
Gvien Flagyl for 10 days before any test and worked then every came.
Currently not on any medication - trying chinese herbs for 3 months now 
Currently 95 pounds. I was 120 pounds a year and a half ago.
Diagnosed with Chronic Colitis in March 2007 Gi says might branch out to crohns or uc


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/7/2007 12:14 PM (GMT -7)   
Yes, you can still see that GI if you want. You are entitled to see your records and doctors don't mind if you want a copy - or at least they shouldn't.
 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio, Colocort**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/7/2007 4:17 PM (GMT -7)   
The law varies from state to state, but in most, the information in your record belongs to you and you have a right to it, but the actual physical record belongs to the provider. The reason they charge is that it costs them in supplies and staff salaries to make the copies and get them to you. You record may not take much time, but when 100 people want their records....

I periodically show up at my doctor's office with a signed letter asking for copies of specific records. I try to keep my important stuff on file here on home, in case I move or need to change doctors. When I changed GI's, I took my records to the first visit with me, they made a copy for their records, and we were ready go.

Because I ask for just the important stuff (lab results, surgery notes, procedure notes) every once in a while, it usually isn't a lot of paper and they don't charge me. My ortho and my GI always give me copies of labs, studies and prodecures without my even asking.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/7/2007 9:25 PM (GMT -7)   
dee007 said...
 But in an auto-immune disease would it come back elevated?? or would it stay the same??


dee - Yes, in an autoimmune disease, white blood cell counts can come back elevated. I don't think they always do though, but I know they can be for active UC. I'm glad you made this post, because I was also wondering about getting copies of my records.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 2:52 AM (GMT -7)
There are a total of 2,903,886 posts in 318,695 threads.
View Active Threads


Who's Online
This forum has 158106 registered members. Please welcome our newest member, Pottybutt.
184 Guest(s), 3 Registered Member(s) are currently online.  Details
polkadotdress, OriolCarol, testuser1234