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Regular Member

Date Joined Dec 2007
Total Posts : 354
   Posted 12/7/2007 11:27 AM (GMT -6)   
Hello everybody - I have been lurking around the messages the last few days and thought I would say hello. I am 26 years old and a student(still).
I just got diagnosed with ulcerative colitis about a month and a half ago. My doctor says it looks like a mild case but it doesn't feel; like one. He put me on asacol 400mg - two pills three times a day. At first the medicine made me feel worse - I was very dizzy all the time and had right lower side pain. Then I missed a day and a half of medicine and when I started back up I got really sick again. I felt like I had the flu and the pain moved to my stomach. I started to get really dizzy again. It seemed to help my other symptoms but the didn't go away. My doctor said he wanted to do another scope - this time of my stomach through my mouth and I said no way I haven't got the bill for the colonoscopy yet! So he said I need to take Entocort EC 9 mg a day until February. Within a day of starting that I feel perfect. My stomach pain is gone. I drank drip coffee for the first time in 6 months without making me sick and I had a glass of wine with dinner and I feel great. But I really don't like the idea of taking steroids. Does anyone have experience with Entocort? Have you had any side effects? Do you all think that two to three months is too long to take it if I am feeling better already?
My last question is about being cured. Is it possible? I get the impression from what I have read that it isn't but my doctor says it is possible.
Thank you in advance for your time

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 12/7/2007 11:53 AM (GMT -6)   
Hi Hana24, and welcome to Healingwell. Glad that you joined! This is a great group of folks around here, and ready to answer any questions you might have. I don't know much about the Entocort, but several others are using it. I'm glad you are feeling better with the meds you are taking. At this point, the only cure for Ulcerative Colitis is a total colectomy, but we are always hoping that something will come along for us. Until then, we just do the best we can with the meds we are taking and live life to the fullest. Take care, and glad you joined us! Welcome!

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
Co-Moderator for the UC Forum

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 12/7/2007 2:11 PM (GMT -6)   
Hi and welcome! A cure is always possible - in the future. But as of now, no there is no cure yet. I truly wish they would find a cure though! That would be great :) I have never been on Entocort (came close to being put on it though) so I can't help you there. I just wanted to welcome you to Healingwell.
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio, Colocort**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@


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