donating blood?

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billo
Veteran Member


Date Joined Mar 2006
Total Posts : 545
   Posted 12/7/2007 9:24 PM (GMT -7)   
I'm on sulfasalzine 500 mg (3 pills a day)
and folic acid 1mg (1 a day)

wondering if I'm not in a flare, is it safe to donate? and would those drugs that i'm on, disqualify me?

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/7/2007 9:31 PM (GMT -7)   
It seems to depend on the blood bank. Some allow UCers to donate while in remission and some don't. The Crohn's forum discussed this recently:
http://www.healingwell.com/community/default.aspx?f=17&m=982948

This Web site may be of interest, too:
http://www.cbbsweb.org/enf/2002/donor_immunedis.html
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 12/8/2007 5:50 AM (GMT -7)   
I think calling your local Red Cross (or other donation center) would be your best bet. I think it is great you want to donate!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/8/2007 6:48 AM (GMT -7)   

I think it's great that you want to donate too!  The Red Cross is always in need of blood.  Here is their website that tells you can donate or not:

http://www.redcross.org/services/biomed/0,1082,0_557_,00.html

I personally have been told that I can't donate only because I have a rare blood type.  One time they said that if they are in a shortage of my blood type that if I was to donate, I would have to stay with them for several hours until my blood recoups itself.  Because if I was to get into an accident on the way home that I would need all my own blood as it is.  I'm AB-RH-.  But for the most part, yes that some of meds we take are ok enough to donate blood. 


 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
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"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/8/2007 7:13 AM (GMT -7)   
My blood bank turned me down because of the immunosuppressant drugs.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 12/8/2007 7:24 AM (GMT -7)   
Mine turned me down because I have an autoimmune disease. :-(
Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


hedgehog
Regular Member


Date Joined Jul 2007
Total Posts : 102
   Posted 12/8/2007 8:57 AM (GMT -7)   
That reminds me that I'm probably no longer eligible to donate bone marrow. I'll have to call the registry and have them take me off the list. Hopefully the bone marrow I donated to my brother 15 years doesn't result in him getting UC.
-female - 32 -diagnosed June 2006
-last 25cm of colon affected
-Salofalk enemas stopped working
-xylocaine enemas put me in remission
-Asacol 2 800mg pills 2x/day
-budesonide enemas as needed


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/8/2007 9:46 AM (GMT -7)   
I think it is very nice of you to want to donate blood.  However, I wouldn't do it even if I was feeling great. You never know when you are going to need it and you need to keep your strength up.  I don't know whether or not they would accept it since you have an autoimmune disease.  It is really kind of you to want to help but I think you shouldn't do it because your health comes first.  I hope you don't mind my response.  It's just my opinion...

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


Joz
Regular Member


Date Joined Jun 2005
Total Posts : 85
   Posted 12/10/2007 8:31 AM (GMT -7)   
I used to give blood and was surprised to see it stated on the information I had through a few years later that UC as a condition along with Chron's and some others disqualified me (that is in the UK)...so I haven't questioned it since...
27 yr old female
Diagnosed Feb 2005 with pancolitis
Asacol: 2x3 daily, 50mg Imuran (since March 2006-in remission)
Multivitamin, SCD yoghurt
 

 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 12/10/2007 8:48 AM (GMT -7)   
It's my understanding that UCers are not supposed to donate due to our antibody profile. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/10/2007 11:06 AM (GMT -7)   
I had donated twice in high school (mainly as a reason to get out of class, haha)... But I was denied every time after that for either being too anemic or too thin. I had never been told I couldn't donate due to my UC though. I haven't tried to donate in about 5 years though, so I don't know if the standards have changed.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
 
Should also be on supplements and probiotics and other UC drugs but I'm just not good at taking pills...


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 12/10/2007 11:13 AM (GMT -7)   
I actually received a letter from the blood bank after donating blood saying they had found an autoimmune problem with my blood (before I was dx'd with UC) and they had recorded my name on file, and I could not give blood anymore or I would be committing a violation of the law. I even went to my general practioner who tested my blood again, and said there was no problem. Interesting huh? about a year later I was dx'd with UC.

Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 12/10/2007 12:42 PM (GMT -7)   
Because of the potential for UC to be a possible communicable disease I wouldn't chance donating blood..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/10/2007 10:48 PM (GMT -7)   
That is really interesting Loneylane...
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/11/2007 8:04 AM (GMT -7)   
Red_34 said...

I think it's great that you want to donate too!  The Red Cross is always in need of blood.  Here is their website that tells you can donate or not:

http://www.redcross.org/services/biomed/0,1082,0_557_,00.html

I personally have been told that I can't donate only because I have a rare blood type.  One time they said that if they are in a shortage of my blood type that if I was to donate, I would have to stay with them for several hours until my blood recoups itself.  Because if I was to get into an accident on the way home that I would need all my own blood as it is.  I'm AB-RH-.  But for the most part, yes that some of meds we take are ok enough to donate blood. 

That's interesting. I have a rare blood type, too, although it's not as rare as yours, which I believe is most rare. I have B- and they were always begging me to donate. I did donate several times, but it was almost always a struggle for me because my weight was right at the cut-off and I ate such an unhealthy diet prior to being diagnosed with UC. It wasn't uncommon for me to pass out after giving, sometimes repeatedly. Since my UC diagnosis, I assumed they wouldn't want my blood and our health in remission is such a precarious balance, I haven't wanted to donate.

Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine. Off the pred and doing well.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 

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