Yesterday was my 1st time hospitalized for UC, long

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/8/2007 10:28 AM (GMT -7)   
I have been having very watery diarrhea on and off since my Colonoscopy Nov 30th.  The past few days it had gotten more constant, to the point of eating a cracker would send me running to the restroom immediatley afterwards. Also, my guts felt like they were constantly churning.  I have has flares before, but usually bloody D and different than this, and I havent had it since Ive been on Remicade. I decided on Thursday to try my new perscriptions in hope that they would help my diarrhea and joint pain.  I took 2 Prograf pills, 1st one in the morning and I seemed ok except for lots of D but figured that was just me.  Took one later and still had D but took a Darvocet for the rectal pain and joint pain.  Then before bed I took Cymbalta for the 1st time and skipped my anti-anxiety pill since I took the Cymbalta.  WELL, at 2 am I woke up sweaty, shaking, and with a huge urge to vomit.  I tried to force myself to puke but as soon as I went to the tiolet I had severe D again.  I was shaking so much and felt like the room was spinning and soo weak.  My husband woke up and was like what the heck?  And I said maybe in the morning you could take me to the hospital.  He said if you feel like you need to go, lets go now.  My MIL came to take care of my kids.  I looked soo pale.  We went to the E.R. and while I was registering I went to the restroom and forced myself to puke and finally did, all I saw was what I think was the pills and water.  I felt immediate relief although I was still so weak.  Amazingly, I got a bed within a few minutes and was in a hallway.  They ran out of pillows.  They took some blood then gave me an IV of fluids.  AHH I felt so much better but I wanted to sleep but couldn't.  I felt hyper, like my eyes were wide open, maybe it was the Cymbalta?  I would barely fall asleep and then wake up immediatley (I can't really sleep without my own bed anyways). They made me take chest and stomach Xrays, dumb.   Once I got the IV I wanted to go home.  The doc was talking about giving me a colonoscopy and I was like HELLO I got one 6 days ago and he was saying how he needed a stool sample to test for blood, DUH.   I started thinking about the MRSA outbreak here and hearing people hacking and thinking about how I am on Remicade and I got scared.  The nurse said I had to take 2 antibiotics first, Flagyl and another I didnt get the name of.  The bags were so little but they had to run it slow so it took like 2 hours each bag.  I finally fell asleep.  The doctor woke me up and was yelling at me, why am I not taking hyrdo. enemas!?!!?  I said because I already have a million times as well as the rowasa ones and they dont work for me.  And he yelled that he was giving me a script for them and I BETTER take them, whatever.  I was just like, get me outta here!  I got out around 9 am and went home and slept till 1.  I havent had any bowel movements since.  I still feel kinda weak so all I can do is be on the computer.  THE END LOL.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 12/8/2007 11:12 AM (GMT -7)   
HEY princess!!   :-)
I'm so sorry for your ER ordeal!!  I think everyone has interesting stories to tell of trips to ER. 
Those ER docs shouldn't be trying to manage your UC<  they don't know your history.   They are there for emergency treatment only.   They need to leave the management up to your GI.    Definately be calling him soon.   Its so hard when they throw a bunch of new meds at ya,  to determine which is working well, and which one causes problems.   They probably should start new meds slowly, rather then just giving you a bunch and telling you to start them.   But,  it definately sounds like your system won't tolerate what you took.    I hope you continue to improve!!!   
~Christie 
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).
Diagnosed with L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Medications
Remicade infusions ~ Nov. 2007,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone taper 20mg daily, Nexium 40mg twice a day, Lantus insulin 45 units daily, Novolog 10 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, and Calcium daily. 
                 
                                                     
 
 
 
         


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 12/8/2007 11:50 AM (GMT -7)   
Goodness! I am so sorry you are having a rough time. I agree 100% that you need to follow up w/ your GI tomorrow. Make sure you write everything down so you can tell them exactly what happened. Keep us posted!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/8/2007 12:38 PM (GMT -7)   
Wow, talk about scary! And to have a doctor yelling at you on top of it......geez! I'm glad you made it home ok and are feeling better.
 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
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betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 12/8/2007 5:36 PM (GMT -7)   
at least you were able to go home the next day. To me that's an amazingly fast trip to the hospital. Every time i've gone to the hospital for a flare they make me stay for a week. AND i'm nothing by mouth for 4 or 5 days of it. What a bully that dr was to tell you that you have to take his script for something you know doesn't work for you. But at least your doing better, i hope you continue to feel good. :)
diagnosed Dec 2006 at 22 years old and flaring since
30mg prednisone in a 4 week taper
1000mg of Curcumin twice a day
probiotics
fish oil-3
coral calcium
multivitamin
yellowdock
iron
Colazal 3x3 a day *crosses fingers this will work*


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/8/2007 5:39 PM (GMT -7)   
They wanted me to stay at least 24 hours but they called my GI and asked him if it was ok, and he said yes.  PHEW!  My guts seem happy so far.  Thanks for reading!

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica

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