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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 12/8/2007 11:20 AM (GMT -7)   
i was wondering if we want to have my family collect blood in case my daughter needs it, how long can it be saved? will insurance cover it?
Mom to 19 year old daughter diagnosed 11/07.


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/8/2007 5:13 PM (GMT -7)   
I don't know, but I have been pretty sick in the past 12 years and have never needed blood. I have only been found anemic once and I took Iron although I was nervous about the side effects but I didnt have trouble with it. I have lost lots of blood at times and somehow my body can handle it.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/8/2007 5:21 PM (GMT -7)   
Please, most insurance plans do cover the costs of blood plus administration costs.

Are you concerned about your daughter receiving blood from stranger donors, or about costs? Usually banks will let your family and friends donate units after the blood is given to replace donor blood. Check with your local blood bank on that.

If you're concerned about her receiving donor blood (and that's much safer now), it's a bit more of a problem. First, your family would have to be screened to find out who is compatible with her. If it isn't a dire emergency, you may be able to donate and have the blood processed and given to her right away. I believe the maximum storage is 42 days, so it's hard to "bank" ahead when you don't know when (or if) it will be needed.

Finally, I don't want to intrude, but I've noticed your concern about what might happen in the future seems to be growing. Remember that most of us with UC live normal lives, with occasional flares which we deal with successfully for the most part. I totally understand your concern and your desire to find something -- anything -- that you can do to help your daughter. It may be at this time that what she needs most is your calm, your love, a sympathetic ear and reassurance.

Hugs to you, and I hope your daughter is able to quickly find a good remission.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 

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