What other problems/pains do you have?

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/9/2007 3:33 PM (GMT -7)   
Besides the "Regular" UC problems like stomach pain, painful bms, rectal bleeding, etc, what other pains/problems do you experience?  Here's my list:
 
Migranes and tension headaches
Leg cramps
Night sweats
Quick change in temperature
Eye Sensitivity to light
Eczema (gone now)
Sores on scalp (had last month and went away after Remicade)
Fatigue, dizzinesss
Just recently: severe joint pain, mouth sores, heartburn, cracking and stiff joints, bladder or pelvic pain
I forgot, also eye twitches and dry mouth
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica

Post Edited (princesscolon) : 12/9/2007 6:09:02 PM (GMT-7)


jamo0001
Regular Member


Date Joined Apr 2007
Total Posts : 75
   Posted 12/9/2007 4:45 PM (GMT -7)   
**SEVERE** joint pain
Mouth sores
Nausea/dry heaving when very, very sick
James

21 yrs old, diagnosed severe pan ulcerative colitis 2 Mar 2007
Hospitalized 27 Apr-5 May 2007
Remission since 4 July 2007
Asacol (mesalamine) 400 mg x 12 daily
Remicade <--first infusion on 3 May 2007; currently once every 8 weeks
Imuran (azathioprine) 50 mg x 2 daily
Eating fruits and vegetables like there is no tomorrow...
"God bless Remicade!"


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/9/2007 4:53 PM (GMT -7)   
headaches
fatigue
dizziness (especially in the summer)
nausea (never had this before UC, so it may be related)
allergies
mild joint soreness/stiffness (I think this may be UC-related for me, too)
very dry skin (not that big of a deal, but annoying and can become painful)
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/9/2007 6:15 PM (GMT -7)   

James,

Have you always had the joint pain or did it start after Remicade?  I have never had joint pain until they increased my dose of Remicade, so I am curious.  Thanks.


Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 12/9/2007 7:26 PM (GMT -7)   
 
shaky hands, shakes in general
Night sweats
Quick change in body temperature
my vision gets blurry as the day goes by
fatigue
bones (shins in particular) hurt
had arthritis in knees and ankles for a few months, but that is gone now.
mild joint soreness/stiffness
 
 
just yesterday i was walking and my shin started hurting so bad. like someone hit it with a sledgehammer.
it hurts just a little bit a few times before.
could that be the prednisone and the bone/calcium thing?  (ive been on pred for 7-8weeks now.  started as 50mg for 6 weeks then 40mg for 5 days and now im on 30mg.)
 
 

steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure. 
50mg prednisone 1x day with breakfast 5 weeks now.. will taper next week by 10mg every 5 days.
2x 500mg mesalazine 2x morning & night - colifoam enima 1x at night - 1/2 endone every 6 hours for pain
now taking calcium supps for pred side effects - got lots of those!
50mg imuran 1x day 8pm to have a baby - VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 
 


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 12/9/2007 10:37 PM (GMT -7)   
princesscolon said...
Besides the "Regular" UC problems like stomach pain, painful bms, rectal bleeding, etc, what other pains/problems do you experience? 
 
 
right now on prednisone I have:
night sweats
bone pain
joint pain
hot flashes
headaches
sl blurred vision
weakness (but improved)
fatigue
 
 
 
 
~Christie 
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).
Diagnosed with L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Medications
Remicade infusions ~ Nov. 2007,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone taper 20mg daily, Nexium 40mg twice a day, Lantus insulin 45 units daily, Novolog 10 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, and Calcium daily. 
                 
                                                     
 
 
 
         


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/10/2007 7:40 AM (GMT -7)   
Headaches/Migraines
Joint Pain
Lower Back Pain
Mouth Sores
Fatigue
Depression/Anxiety
Vision Problems (never needed glasses until 2 years ago and now my prescription isn't strong enough)
Sensitivity to Light (eyes, photophobia)
Dry Skin... I remember shortly after I was first diagnosed and was in a really bad flare, my skin was SO dry that it looked like you could peel my face right off. I would carry a bottle of moisturizer around with me and have to constantly apply it because it would just 'drink' it right up. It was terrible.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
 
Should also be on supplements and probiotics and other UC drugs but I'm just not good at taking pills...


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1611
   Posted 12/10/2007 12:16 PM (GMT -7)   
muscle weakness
mouth sores
headaches
light sensitivity
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium 
Currently in Remission


Bmshurt
Regular Member


Date Joined Oct 2007
Total Posts : 28
   Posted 12/10/2007 5:43 PM (GMT -7)   
~ChristieAnn67~ said...
princesscolon said...
Besides the "Regular" UC problems like stomach pain, painful bms, rectal bleeding, etc, what other pains/problems do you experience? 
 
 
right now on prednisone I have:
night sweats
bone pain
joint pain
hot flashes
headaches
sl blurred vision
weakness (but improved)
fatigue
 
 
 
 

Experiencing the same symptoms on Prednisone, except instead of just fatigue/weakness i get these sudden burst of energies followed by fatigue/weakness. Very strange.  The hot flashes and headaches are severe in my case and are very annoying.  Additionally having lower back pain and light sensitivity. All this just makes my head hurt even more.
Medication:
Prednisone 20MG Daily
Imuran x1 Daily
Probiotic x2 Daily
Multivitamin x1 Daily
Oscal Calcuim Tabs X2 Daily
Fish Oil x2 Daily
 
Diagnosed with UC in May of 2007
 


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 12/11/2007 6:14 AM (GMT -7)   
Rash in crease of elbows and behind knees (GI says Fungus, PCP says Eczema)
Eurothyema Nodosum (painful bumps under the skin on my calves and feet)
Swollen taste buds that hurt like crazy
Iritis - inflammation of the eyes
Joint pain
Back pain
Neck pain
Silent Migraines (loss of vision/Aura's)
Tension Headaches
Heatburn
Acid Reflux

Not sure if it is all UC related, but I never had this stuff before.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  11/2/07 Ending 5 month remission w/mini-flare :-(


WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 12/11/2007 10:48 AM (GMT -7)   
Intense back pain.
Blurry vision.
Fatigue.
Mouth sores.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 12/11/2007 11:10 AM (GMT -7)   
a lot of what other people here have posted, but what is really annoying to me today is my general fogginess/tiredness I feel like I am wearing cement shoes and don't have the clarity I used to have.
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


ledaebel
Regular Member


Date Joined Jul 2006
Total Posts : 339
   Posted 12/11/2007 6:44 PM (GMT -7)   
I'm off Prednisone and not flaring (my 2 mo. anniversary) but here goes my other symptoms:

Fatigue,
insomnia,
joint pains,
back ache
pins and needles in left shoulder and neck
dry eyes
intense night sweats

Additionally, since my UC diagnosis, 2 years ago, I've been diagnosed with mild rhematoid arthritis, high cholesterol, high blood pressure, pulmonary hypertension, sleep apnea and on and on.


  • LINDA
         
Prescriptions: Lialda (on a study) asacol, hycosamine, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep.
OTCs:  Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E,  Healthy trinity probiotics, Calcium Citrate

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