Surgery confusion

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/10/2007 9:21 PM (GMT -7)   
Hi All,
I have a very frustrating rectal ulcer.  When it was 1 inch deep, I asked my doctor why he couldn't cut out that part of my rectum and re-connect the good parts.  He said because a new ulcer will form in the same spot?  Then I'd HAVE to get my whole colon out.  I don't even have one ulcer in my colon.  So is he absolutely right or is there some type of other surgery besides j-pouch or ostomy?  PS- He said if the fisula opened that I would HAVE to get my colon out... confused


Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/11/2007 7:16 AM (GMT -7)   
There are 4 surgery choices, all involve removing the colon and rectum. Since you know what a jpouch and an ostomy are I will skip over those. The other two are virtually the same procedures but one is proprietary. There is a k-pouch and a BCIR (proprietary). Both of those surgerys create an internal resevoir which is catherized to empty. I believe the hole to catherize is on the belly. You can ready more about the k-pouch procedure at www.j-pouch.org and click on the k-pouch discussion thread. You can read more about the BCIR at www.bcirostomy.org

BTW- My colon was really healthy but my rectum was very diseased. I know it's hard to think that you have to lose something that isn't quite broken but sometimes that's just how it is. Even though my colon was healthy I have not regretted surgery. My jpouch has given me my life back.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


UMDTerp2001
Regular Member


Date Joined Sep 2006
Total Posts : 246
   Posted 12/11/2007 7:44 AM (GMT -7)   
im dealing with a rectal fistula as well. have not heard of getting the colon removed because of this. I would ask the question on the crohns forum as it is much more common with that disease. im taking antibiotics for the past weeek to see if it will heal up. the infection is gone but there is still some minor discomfort. unfortunately i think the antibiotics are jeopardizing my remissino but its worth a shot given the annoyance of the fistula. crohns forum should provide you with more direction....
 
 
__________________________________________________________________________________
- 29 y/o single IT professional male residing in Northern VA, USA
- UC Diagnosis - April, 2006 - Symptoms were sudden and drastic
- GI did not determine type of UC as I was too inflamed during the c-scope
- Completed 3rd Prednisone taper on 4/13/07 - Tapered from early January through mid-April after being hospitalized from a bad flare with anemia & severe joint pain.
- Currently in remission and enjoying life again since getting out of the hospital in early Jan 07' from a nasty flare
- Survive on 4 Colazal/day, 1 GNC Multivitamin, occassional Fish oil & Primal Defense Probiotics
- Enjoy the outdoors, relaxing and spending time with family and friends


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/11/2007 8:03 AM (GMT -7)   
UMDTerp, for the reasons you stated I wonder if I actually have Crohn's.  My doctor swears I don't.  I have never heard of someone with UC with a fistula.  I really wonder about doctors sometimes!!

Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/11/2007 8:05 AM (GMT -7)   
Thank you for the information, Suebear.  It would be nice to have my life back instead of my colon taking it over!

Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica

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