Different "Stages" we go through with UC

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/11/2007 7:43 AM (GMT -7)   
Since my Mom passed away, I have learned of "Stages of Mourning" and was thinking there are kind of stages of UC.  I am going to make one up based on my experience.  I wonder if you all have been through these things at some point?  It probably differs greatly based on if you have been on remission or not, how severe your symptoms, and what your entire outlook is.
 
 
1. Confusion and fear- When first diagnosed and never heard of UC before.  What is going to happen to me?
2. Hope and denial- Feeling that " I can beat this, it's not going to get to me" wearing myself out pretending I am fine
3. Acceptance-  When I started taking aggressive meds to fight the UC
4. Disappointment- When the meds don't work and the side effects were tremendous
5. Anger and doubt- Of the medical community when treatments don't work/cause other health problems
6. Frustration- start seriously considering surgery
7. Defying the doctors- Trying to fix myself naturally, stopping my meds and doc visits
8. Desperation- With health reaching an all-time low, I returned to the doctors
9. Search for answers- when I started researching diets, meds, treatments, wanting to learn everything I could about this disease
10. Hope- This new med will do the trick!
11. Frustration and confusion- Is the med working or not?  Am I in danger of dangerous side effects? 
12. Hope- In spite of everything, there is still hope.  Hope for a cure!  Hope that something will work finally!   
Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/11/2007 11:47 AM (GMT -7)   
Hmmm I think I've been thru all those stages at least twice! But very accurate in my opinion.
 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
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TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/11/2007 12:01 PM (GMT -7)   
you left out "Pissed off!" haha just kidding.
Lori
37/F
UC diagnosed 1991
Asacal, zoloft,levoxyl, prednisone 60,50,40,30, 25,20,15,10,5, 0!!!!!!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/11/2007 1:22 PM (GMT -7)   
I think for as long as you have IBD these feelings are normal and don't necessarily ever go away...in my almost 17 yrs of dealing with this I still go through all the stages.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 12/11/2007 2:54 PM (GMT -7)   
Good one Lori...made me laugh like crazy

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran 2 1/2 mg prednisone & tapering, 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/11/2007 2:55 PM (GMT -7)   
hehehehehe
Lori
37/F
UC diagnosed 1991
Asacal, zoloft,levoxyl, prednisone 60,50,40,30, 25,20,15,10,5, 0!!!!!!!!

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