Codeine for releif of (tylenol 4)cramp pain and bathroom runs?

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johnj
Regular Member


Date Joined Dec 2007
Total Posts : 122
   Posted 12/11/2007 7:53 PM (GMT -7)   
To bad this is addicting. When the cramps and the running to the bathroom is out of control, anyone else find codeine ease not just the pain, but stops all the trips to the bathroom? It is like a miracle, but it makes me moody, and is addicting so I stopped.

Post Edited (johnj) : 12/11/2007 8:31:59 PM (GMT-7)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/11/2007 8:20 PM (GMT -7)   
Codeine is a narcotic and narcotics slow digestion.  If you are using codeine for UC pain you will want to do it under the guidance of your GI.  Slowing your bowel too much could lead to toxicmegacolon.  There are other pain relievers that you can use that won't be as potentially dangerous.  UC is a disease that has severe cramping, your GI should be very familiar with safer treatments.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


johnj
Regular Member


Date Joined Dec 2007
Total Posts : 122
   Posted 12/11/2007 8:25 PM (GMT -7)   
Can you advise me of others that are not as potetually dangerous that will ease the cramps and their pain. I found it worked while taking it after my twice a week injections of nuepogen, that cause severe bone pain.
BTW the codeine I was taking was tylenol 49 one to two of them about every 6 hours for a day and a half after my shot. My colitis trouble would dissapear, and I would actually look foward to eating again...we can't have that can we nono

GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 12/11/2007 9:09 PM (GMT -7)   
Are you on any UC medications? What you need to do is find a treatment that puts your UC into remission, instead of just trying to deal with the symptoms of a flare.
I did use Codeine for a while at night so I could sleep, but I was still severely flaring during the day. It took 11 months of trial and error to find the meds I needed, so you have to be patient and make sure to explore all the possibilities to put your UC into remission.
James
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Tenth Remicade infusion Early December


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 12/12/2007 3:47 AM (GMT -7)   
JohnJ,
I actually posted about this a month or so ago. I was curious if anyone else had found relief with Codeine. Because narcotics have the side effect of constipation, the codeine does work exactly as you described. But, yes, it's an addictive narcotic, so it's not exactly the wonder cure I'd like to think it is.

I'm sure I am the total exception, but I've been taking Tylenol w/Codeine regularly for about a year. I take either a half a pill or a full pill about 5 times a week depending on how I'm feeling. (My pills are marked 300/30, which I think means that it's 30 mg of Codeine.)

BUT -- (This is the important part)
I check in with my doctor regularly, I live with someone who would notice if I were abusing it, and I have absolutely no history of or propensity toward addictive behavior. (I smoke one cigarette a week and I never drink.) My dose has not increased over time and my goal is always to stop taking it when I'm completely in remission. I've accidentally put myself into narcotics withdrawal by stopping too abruptly, so I'm super careful to wean down when I feel well.

As James wrote, it's far better to actually treat the UC and get it under control. It's taken me 10 years to figure out that most drugs don't work for me, so I'm willing to take the risk with the Codeine, but I don't recommend it.

I've heard that Immodium can help people in the same way. Have you tried that?
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


UMDTerp2001
Regular Member


Date Joined Sep 2006
Total Posts : 246
   Posted 12/12/2007 1:25 PM (GMT -7)   
I was getting severe migraine-like headaches during the spring for about two months non-stop so vicodin was the only thing that would take the edge off. I did notice it helped dramatically with the amount of trips, however, it was becoming addictive so I had to stop plus the headaches went away. If one can use it in moderation I think it helps but like anything else, drinking, smoking eating junk etc it should be done in moderation and under the supervision of a doctor. It can also make you have bad mood swings and make you depressed when coming off. Not a pleasant experience.
 
 
__________________________________________________________________________________
- 29 y/o single IT professional male residing in Northern VA, USA
- UC Diagnosis - April, 2006 - Symptoms were sudden and drastic
- GI did not determine type of UC as I was too inflamed during the c-scope
- Completed 3rd Prednisone taper on 4/13/07 - Tapered from early January through mid-April after being hospitalized from a bad flare with anemia & severe joint pain.
- Currently in remission and enjoying life again since getting out of the hospital in early Jan 07' from a nasty flare
- Survive on 4 Colazal/day, 1 GNC Multivitamin, occassional Fish oil & Primal Defense Probiotics
- Enjoy the outdoors, relaxing and spending time with family and friends


johnj
Regular Member


Date Joined Dec 2007
Total Posts : 122
   Posted 12/12/2007 2:37 PM (GMT -7)   
I was diagnosed in 1981. I have been living with this for a long time. Tried everything. As many of you know there are times when NOTHING works, and you are all pain and bathroom runs. I have been on long term medrol 90mg a day during flares. I have been to the point that if there was no turn around they would schedule surgery! Each time I responded when coedine was added. Immodioum does not work, nor does lomotil. As far as The statement "As James wrote, it's far better to actually treat the UC and get it under control. It's taken me 10 years to figure out that most drugs don't work for me, so I'm willing to take the risk with the Codeine, but I don't recommend it." Could not agree more, but I have been there tried that, the trouble is that IS EASIER SAID THAN DONE. After 27 years ...believe me I have tried getting it under control more times than I can count. When you fear eating food beacuse you know the results, then by accident find that codeine makes it bearable and makes you better, it is hard to say no thank you. At one point I went from gym rat at 5'10' 185 pounds benching 275, to just under 140 lbs unable to press the bar without any weight on it, in a couple of months. Presently I am ONLY on 3 asacols twice a day, and feeling good. BUT I wish the Dr. had told me how well tylenol 4 works when there is so much pain and so many bathroom runs. It was only after about 15 yrs I found that out, , and was given tylenol 4  for another trouble and my colitis symptoms went away. I brought this up to the Gastro, and he said "oh yeah, because..." WOW! I was furious he never brought it up earlier with all I went thru. So my post was to advise others who might have been in the same boat, and to see if anyone else had the same results.

One thing that works best is the asacol, but at a high price. I am of the "rare" as the drug company calls it, that go neutropenic, that means yeah...it helps my UC, but kills my WBC count specificaly the neutrophils, they fight infection....soooo I am always feeling like I am getting sick. The answer... put me on nuepogenia, that in itself makes me feel like I have the flue, and gives me SEVER bone pain, but at least I don't get sick, just feel sick as in a bad flue....such is life. Ahhh but then they give me tylenol 4 for the severe bone pain, it helps the colitis SO much, I can stop taking asacol. Hey no asacol my wbc goes up, no need for neupogen...yeah no more flue like symptoms, no mor severe bone pain, no more codeine, wooooo wait , no mor codeine, UC symptom start back, , gotta go back on asacol, now wbc getting low...come on everybody sing with me...you know the verse ....where is the neupogen.... one more TIME!!!! alll together now! Oy VE! yeah


Asacol x2 two to three times aday
Probiotics once aday
neupogen  twice aweek (causes bone pain and flu like symt's)
 Was using tyl4 for bone pain. dr. who started me said stop...so I stopped...but it was also helping the colitis for some unknown reason

Post Edited (johnj) : 12/12/2007 8:25:32 PM (GMT-7)


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 12/12/2007 7:02 PM (GMT -7)   
Wow, sounds like you've been thru a lot! I don't blame you for being upset about not being told about the codeine. I came upon that the same way when I was first sick.
I've been through tons of medications too, without any remission until I got Remicade. If I could control it with codiene and no terrible side effects I'd do the same thing!
james
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Tenth Remicade infusion Early December


fasttrack
New Member


Date Joined Dec 2007
Total Posts : 7
   Posted 12/29/2007 2:02 AM (GMT -7)   
Codine works great for IBD! I found out when I was prescribed percocet for kidney stones. So got a script from my PCP. When I feel D coming on I break a 7.5mg tablets in half and it stops the pain and the diarrhea. I probably take 3 or 4 half tabs a week after meals. I'm not really worried about addiction because it doesn't make me high and I've never had to up the dose. I'm more worried about the long term effects of the tylenol on my liver but I'll keep using it until I find something that works better. If you google, you'll find a lot of people use pain killers for IBD with diarrhea. I wouldn't recommend it for those who suffer from constipation or blockages due to the risk of toxic megacolon. Good luck and hope it keeps working for you.
 
 
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