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Breton23
New Member


Date Joined Dec 2007
Total Posts : 10
   Posted 12/11/2007 8:53 PM (GMT -7)   
Hi everyone. Just wanted to say that i am new to this forum. just found it today actually. My name is Andrew, i'm 23, and have had uc(pan) since 2002. currenty i'm getting over a level 3/high 2 flair. dr has me on prednisone. trying to lower my dosage from 30mg. got me on the 30 one day, 20 the next doasge. as for main. medication i'm taking colazal two pills twice a day. my uc started out as a mystery at first.  thought it was some kind of indigestion causing the pain. family dr wanted to give me zantac. needless to say that didn't last long and was referred to a gi. one colonoscopy later and uc was diagnosed. i've tried alot of different meds from asacol to dipentum. so far colazal is doing ok. once my us was so bad i had to have a blood transfuison. doc was surprised i was still walking with a blood count as low as i mine was. anyway thanks for letting me intoduce myself. it's nice to find other people out there with the same issues!

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted Yesterday 4:53 AM (GMT -7)   
Hi Brenton, welcome to Healingwell! I'm curious, why are you only on 4 pills a day of Colazal? The standard dose of Colazal is 9 a day and I have seen no one ever go lower then 6. But welcome aboard, we're glad to have you but sorry about the circumstances!


 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
                       "The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted Yesterday 5:18 AM (GMT -7)   
Hello Brenton.  I am glad you found the forum, it is a great source of info and support.  Also on a D days, it gives you something to do! I hope you keep feeling better.
Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


Breton23
New Member


Date Joined Dec 2007
Total Posts : 10
   Posted Yesterday 6:37 AM (GMT -7)   

I'm not sure why my dosage is at that level.it's always been the dose my gi has wanted me to have. we haven't always seen eye to eye for my treatment at times. i guess you can say i wnt on a rebellion againts him at one point and told him i was trying my own experiement with the colazal and stopped taking it.  my symptoms started to get better when i did but eventually came back. i told him i stopped the meds and he told me i was an extreamist patient and if i continued to not take his prescribed meds he would not let me be his patient. i'm taking them now of course but i just thought id try my own way at one point. just to see if there was anything i could do on my own.


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted Yesterday 7:13 AM (GMT -7)   
I think we all go through that at some point with this disease.  You get tired of meds, their side effects and seeing few results.  But eventually we end up back at the doctors.  It is all a learning experience and that is a part of it.  I've done it a few times.  Never again.  Your doctor will get over it.  And me and my doctor get along, but don't always see eye to eye. Practically every time I see him, he brings up Prednisone, and I say NO!  You would think after 5 years, he would stop! 

Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted Yesterday 11:50 AM (GMT -7)   
Hi Breton and welcome, this place is great! My GI says a lot of his patients don't take their meds like they are supposed to, then we end up sick and back in his office wondering why....well that is what happened to me. My advice if the meds don't make you sick keep on taking them, they are going to help more than hurt (most times).

Hope you are able to recover from your flare soon! I am on pred too and don't know how everyone does it, month 3 at basically 50mg a day and I am so blah!
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted Yesterday 1:17 PM (GMT -7)   
If you are not happy with your GI then you need to find one that you can work with. But 4 Colazal a day is pretty much doing nothing for you - think taking baby aspirin for a heavy migraine. It can help a little but it won't get it under control. You really should consider upping your Colazal to at least 6 a day.
 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
                       "The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

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