Welcome, but sorry you are going through this. My advice is: 1. Educate yourself as much as possible 2. Make a food diary to see what foods you can tolerate 3. Stay hydrated 4. Never take NSAIDs 5. Get the book "The New Eating Right for a Bad Gut" by James Scala, (awesome book!) 6. Never go off your meds or try new ones without your GIs consent 7. KEEP all appointments with your GI! 8.Try to stay positive and look for support from family/friends. It is embarrassing at first but they have no choice but to get used to it and I think it helps to talk about it.
Ok, back to some other stuff: If you are worried about accidents, wear an "overnight" or super long pad when you go out. It works o.k. I have had mucous/blood accidents in public but never a D one but the pads work. My personal experience is that when I am out, I always can hold it till I get to the restroom or go less than at home. On vacation I usuallly don't poop the whole time! Then when I get home, I am going like crazy. I haven't had leakage in a long time due to my rectal ulcer/inflammation, it closes me up. You get used to not eating certain foods eventually. After the milionth time I had severe D after eating fast food, I stopped eating it. I haven't had a whopper in like 8 years! I miss it, but it's not worth the pain. Besides, a lot of the stuff I can't tolerate is not healthy anyways. I hope this helped. If you have any questions, ask away.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica