Newly diagnosed

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karmalou
New Member


Date Joined Dec 2007
Total Posts : 8
   Posted 12/13/2007 3:50 AM (GMT -7)   
Hi, I'm 36 and just found out that I have UC.  It started about 2.5 months ago when I got the the stomach flu and came down hard with vomiting and diarrhea.  My husband got sick as well but got better after 2 days.  My vomiting stopped after 3 days but my diarrhea didn't.  In fact, it just got worse and worse.  I was having such abdominal pain and cramping and terrible aches in my stomach.  I felt that this was worse than labour because it never ended and was continuous.  And I know about labour, I've had 2 children without drugs!
 
I finally had to go to ER after about 10 days because I was dehydrated and so ill.  After waiting 6 hours, the doctor told me that it was probably still the virus and to go home and wait it out.  I went to see my GP and he took some blood and stool samples, which all came back negative and just put me on antispasm meds and tylenol with codeine.  After about 3 weeks of this intense pain and about 15 lbs weight loss I finally got a referral to a gastorenterologist.  I was told that it will probably take 3 months to see him.  Fortunately, he reviewed my case and got me in within the week. 
 
He told me that my whole colon was inflamed and put me on Salofalk (mesalamine and also enemas).  It's been 2 weeks since the meds started and I'm starting to feel better.  I have no family history of any inflammatory bowel disease and I've never had any problems before I got sick.  I just can't believe that this virus triggered it all.  \
 
Thanks for listening, I'm still trying to absorb the news and learning about this illness.  I'm sure that I will have many questions later, in the meantime I'm going to start reading and looking at past posts.  This seems like a great forum.
 

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/13/2007 5:05 AM (GMT -7)   
Hi, welcome to Healingwell :) So your GI did a colonoscopy then? If so, what did the biopsies say? But yes, if one has the genetic markings for getting an IBD, then food poisoning, illnesses, environment etc can trigger an IBD. I believe mine was triggered by over anti-biotic use and possible food poisoning to tell the truth. And Yes (again) I do believe we have a GREAT forum here! :)
 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
                       "The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/13/2007 9:10 AM (GMT -7)   
Ya, it's so hard to say for sure that the virus triggered it or if it was just coincidence...researchers just have so much more they need to learn, unfortunately for us all once it's triggered that's it, but the good news is many people do very well on meds and get their lives back for the most part...eating healthy and avoiding certain foods that are inflammatory and feed bad bacteria along with regular exercise (even mild yoga everyday for 1/2 an hour) can all make a world of difference.

Taking a good probiotic is key as well since it seems the IBDers are prone to bacterial over-growth, and since often the course of treatment for our disease calls for antibiotics which kill off everything, is another good reason to take a good probiotic daily for the rest of your life (flaring or remission).

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29863
   Posted 12/13/2007 12:51 PM (GMT -7)   
Hi...welcome to the forum.

It's awesome you were able to get in with the GI so quickly. Was it he who did the colonoscopy? Huge kudos for him to put you on 5ASA meds initially rather than prednisone...really!

You're doing the enemas nightly? What dosage of oral Salofalk are you on?

Hang tough...it takes a while for the emotional/mental aspect of being newly diagnosed. Since you're starting to feel better already, it's a good sign. Keep us posted as to how you're doing....and do remember that you have to taper the enemas once you are "normal". I can make suggestions when you're ready to do so. Please don't stop them cold turkey.
Do you have enough refills for them?...especially with the holiday season aproaching

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


karmalou
New Member


Date Joined Dec 2007
Total Posts : 8
   Posted 12/14/2007 4:17 AM (GMT -7)   
Yes, it was the GI that did the colonoscopy. He was waiting for me to wake up and immediately came over when I woke up. He just told me that my whole colon was inflamed and had my prescription of Salofalk ready for me. I'm currently on 4mg daily ( 8 pills, 4 in the morning and 4 at night) and nightly 4g enema. He had his secretary book me an appt 2 weeks from that date in advance and he said that he will talk to me more then because he was waiting for the biopsy report.

I just met with him and he sat me down at his office and explained that I have chronic UC. I must have been in denial because he asked me several times if I'm understanding what he's saying to me. He stressed that I must always remember to take my meds and for now he just wants me on the 5-ASA because I am doing better. He told me to phone his office if I start feeling worse in any way. He said he would rather treat my flares early then to see me at the hospital.

He didn't say what the biopsy report said, but he said the I was "severely" anemic. I'm on iron now also. As for the enemas he told me that if I start having more normal days and nights, then I can slowly taper off. Start with every other night, then twice a week, and eventually stop. He also told me that I should start them if it gets worse. And he gave me 6 months of refills for both pills and enemas. I'm scheduled to see him again in 4 months.

I'm going to start on some probiotics. Can anyone recommend a brand or type, I'm in Canada. Thanks for listening!

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/14/2007 4:50 AM (GMT -7)   
Wow, it sure sounds like you found yourself a really good GI! Many GI's who tell their patients that they have UC don't explain anything else to them which is so frustrating.
 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
                       "The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

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