remission/flare question

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karmalou
New Member


Date Joined Dec 2007
Total Posts : 8
   Posted 12/13/2007 5:00 AM (GMT -7)   
I'm newly diagnosed with UC and have a few questions.  First of all, what does remission look and feel like?  Are the stools back to normal, or is there always diarrhea and/or soft stools.  How do you know when you are flaring?  Do you start having bad cramps and more frequent BM? 
 
I was told by my GI that the moment I start feeling even 10% worse to call him right away.  The thing is that I always have diarrhea and going about 3-4 times a day is now the norm for me.  I know that I'm coming out of a flare up but just wondering if this is remission and if this is the way that it will always be for me. 
 
Also, can I go back to way I was eating before all this started?  I used to eat a lot of fresh veg and fruit, high fibre, dairy, etc.  I've been cutting out all dairy, having white bread with little fibre and trying to cook all vegetables.  I know that the GI said that it has nothing to do with food but if I"m going to have diarrhea anyway, can I just eat what I want?  Just wanted some input from everyone.  Thanks!
 

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/13/2007 5:11 AM (GMT -7)   
Everyone has their own definition of remission because life after UC means redefining your normal. To me, remission means: solid stool (or semi solid), no bleeding, no pain, no urgency, no frequency, no joint pain, no fatigue - basically symptom free but with possible "bad days".

As for food, this is a trial and error thing. Some people can eat what they want while in remission and others still have trouble with high fiber foods. Me, I can eat pretty much anything I want while in remission but when I'm flaring - forget it! One thing that is pretty constant with me is that no matter what, I can not have dairy since it causes too much pain and gas (I'm lactose intolerant). Most GI's don't believe that food has anything to do with UC, but for some of us certain foods can't be processed properly so they end up going right thru us, rubbing against the ulcerations and causing major grief. So it's best to find out what you can tolerate and what you can't. A food diary can come in handy to keep track of what bothers you while flaring - but remember that most food's transit time is 12-72 hours depending on how fast your metabolism is.
 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
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princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/13/2007 8:37 AM (GMT -7)   
I agree with Sherry's definition. I'd also add that remission for me is only one or two BMs per day. Continuing to have diarrhea is not normal and would not be "remission" for me. You may want to try supplementing with l-glutamine to help get your diarrhea under control. You may also want to try adding a gentle fiber supplement to bulk things up.

Diet has played a very important part in my healing process. I avoid or greatly reduce grains, dairy and sugars. There are several books available with suggested diets for UC sufferers. Dietary manipulation is not a quick fix or magic pill, but it can greatly support your healing, used in conjunction with medications.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 12/13/2007 12:41 PM (GMT -7)   
Hi...welcome to the forum!

What medications are you on at this time.

Food won't cause your flares, but when your colon is inflamed, some foods will cause you more discomfort.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


karmalou
New Member


Date Joined Dec 2007
Total Posts : 8
   Posted Yesterday 4:24 AM (GMT -7)   
I'm on Salofalk (mesalamine) 4g oral ( 4 in the morning and 4 pills at night) and 4g enema nightly for now. I'm thinking of trying out some probiotics also.

What does the role of fibre play in all this. I've heard this before about bulking up our stools but it just seems like the opposite thing to do because I've always believed that fibre will make us go more often.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted Yesterday 1:01 PM (GMT -7)   
Hi...there are different probiotics...I still find the ones I use are awesome..haven't had the need to change. I do add Reuteri to my intake, but not daily. Are you in Canada?

Fibre is good because it will bulk up stool, it can lessen or quicken the transit time..depending on fluid intake (which sometimes has to be increased or lowered), which type of fibre, when you take it...etc.

Most of the fibre supplements give me gassss, do I don't use them unless I have diarrhea. But....my husband recently purchased one that doesn't give me problems...it's Panachia (by Aviva).....black...Salvia Hispanica (generic name).
It's both soluble and insoluble, take it once daily, source of protein, great source of Omega 3. It comes in a 3 lb canister, and I just mix it in water...it becomes kind of gelatenous...but really, no discomfort (but small amount of gas), which I'm hoping will improve. I take it on an empty stomach.

Your UC is throughout your colon, right?

Do make sure you get enough protein and it's good that you're cooking veggies well. It'll lessen your discomfort.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted Yesterday 11:19 PM (GMT -7)   
If you cut all dairy out of your diet, be sure to take a calcium & vitamin D supplement for bone health. This is very important to your well-being over time. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily; seem to be back in remission)
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