Sherry - I totally forgot about
the iritis thing. The signs are all there so I'm convinced this is what I have.
So, the physical therapy worked for your upper back but not your lower back. Have you tried a chiropractor? I find that it helps, but it seems I have to go back sooner each time for another adjustment. I can't stand for long either. I hate when I have to cook anymore b/c standing messes up my back and forget when I have to clean the house. LOL. One day of cleaning throws it out for several days and I can barely walk. It's sad really.
Have you noticed that when your UC flares, your back and neck go out? I have and the last time I brought this up with my GI (my elbows usually hurt too), my GI said, that would have nothing to do with your UC. Seriously, how can he even justify that statement, especially since I've been experiencing it and now just read that it is common in AS to have a flare up when their UC is flaring. Seems like they are linked.
Do you find yourself self-diagnosing? LOL.
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day; 1 Rowasa at night during flare/1 a week during remission; Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status: 11/2/07 Ending 5 month remission w/mini-flare :-(