Paul L said...
Thanks Severin and Scrap Girl,
Severin, I’m glad it is working for you but I’m not so optimistic. I have been through this before with the Adacolumn Apheresis trial a couple years ago. It was already approved in Japan and Europe with 80% success rate and yet it didn’t work for me. In fact the North American study was so poor that it probably won’t be approved here. I also heard good reports about the Adacolumn working for others. I find it hard to believe that I would have received the placebo in both the Adacolumn and Abatacept trials and also the other subject in the Abatacept trial here would have received the placebo as well. Even if it does work for most, no treatment works for a 100% of subjects. I may sound pessimistic but I am just preparing for the worst. I truly hope it works for me.
I've got to wonder Paul, if you are even considered a "normal" uc patient. You seem to not react well to any of the standard drugs used to keep UC at bay. That right there should indicate something. You don't react well to any 5-asa's, nor remicade, 6mp, flagyl, corticosteroids, and on and on. A typical normal uc patient would react well to some of those. And this would be world wide. People all over the world with uc benefit from these drugs and you do not. I wonder if you are misdiagnosed.
Furthermore, you have C-difficile. Certainly c difficile toxins and their affects on the colon don't respond to any UC meds. How much of your symptoms are UC and how much are from c difficile and can you tell the difference? Perhaps you have more pseudomembranous colitis than actual UC?
Post Edited (Horus) : 12/18/2007 4:07:05 PM (GMT-7)