Total colectomy & peripheral arthritis

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New Member

Date Joined Sep 2003
Total Posts : 12
   Posted 12/17/2007 1:58 AM (GMT -6)   
I had a total colectomy 6 years ago.  My GP has referred me to a Rheumatologist as for some time I have been experiencing what looked like OA.  It now is starting to look like Peripheral Arthritis.  Aching knees, ankles, balls of feet, shoulders, hands, swollen toes etc.  From my reading Peripheral Arthritis is associated with active IBD.  As I have had a total colectomy, I couldn't be having active ulcerative colitis?  My GP's plan is to send me back to my gastro after rheumy consultation.  QUESTION: Does any one else who has had a total colectomy for UC experience periferal arthritis?  Many thanks Lulu x

Jeremy "Mr. Snuts"
Regular Member

Date Joined Oct 2004
Total Posts : 162
   Posted 12/17/2007 12:12 PM (GMT -6)   
I also had a total colectomy and deal with joint pains(very severe). They can't seem to find if its Arthritis(because after many X-rays, they say the bones are slightly close together and it looks like its mild arthritis), but mostly they are ruling it out as UC swelling my joints.

All I know is that the pain is not slight in the least, and it's not uncommon for me to have to take Vicodin/Darvocet for it.
Diagnosed with Severe Ulcerative Colitis 1/04 -(18 at the time)
11/04 Total Colectomy
2/05 Ostomy Takedown
1/06 DVT In leg
5/06 Pulmonary Embolii
4/07 Another DVT In leg
Current Medications -
Vicodin 800mg when needed(yumyum)

Regular Member

Date Joined Dec 2007
Total Posts : 151
   Posted 12/18/2007 2:20 AM (GMT -6)   
I am currently considering surgery, and from talking with my GI,  I asked him if surgery would truly "cure" my UC as I've read so many times.   He said yes, and no.  He said my colon symptoms would be gone,  but the risk of the extra complications that could ptotentially come with UC would not necessarily go away ie:  the risk of arthrits,  iritis, ankylosing spondylosis.  So,  it sounds like your arthritis may still be caused by the dreaded UC.
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Remicade infusions ~ Nov. 6, 2007,  Dec. 6, 2007,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone taper 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 units daily, Novolog 10 8 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 12/18/2007 7:31 AM (GMT -6)   
Yes, there can be other manifestations of UC post surgery but I believe the vast majority of us do not have any other health issues post colectomy. If you are prone to having manifestations you most likely would have them with or without surgery.

dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

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