going to new doc tomorrow

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momhatesuc
Regular Member


Date Joined Sep 2006
Total Posts : 78
   Posted 12/18/2007 9:26 AM (GMT -6)   
I wanted to run a few things by you all.  This is what I'm prepared to tell my new doctor.... I've had UC for 8 years.  I take Asacol religiously.  I tend to have a minor flare once every month or two (begin to see small amounts of blood, increased mucus)  I usually do Rowasa for a few weeks, then taper down.  I can't stay on it long term because it starts to lose its effect.  Then in another month or so I start the same cycle.  about 3 times a year the Rowasa doesn't cut it and I do cortenemas for about 2 weeks.  If the cortenemas don't work I'll go on prednisone.  I've only had to do this 3 times in 8 years, the last being 2 years ago.  I tend to self medicate up to the point of the cortenemas not working.  In the past I've only seen my doctor once a year or in severe situations.  I'm hoping this new one will let me call in if I need enemas and not make me come in every time.  Does this seem reasonable to you?  what else do you think a new doc might suggest?  Do I seem to be flaring too often that she might want to try something else?  I know I don't want to take immunosuppressants right now so I'm not sure what else there is.  I'm excited to have a new opinion, but a little nervous to have someone mess with my "routine"
Leslie, 30~ left-sided UC diagnosed in 1999
9 asacol x day
nightly rowasa (as needed)
multi-vitamin, calcium


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 12/18/2007 10:23 AM (GMT -6)   
Just my two cents... but if you are flaring every month, I would question whether the Asacol is actually working for you. I would ask the doc if she thinks another med might be beneficial (i.e. Colazal or Lialda). Otherwise, yes, I think your questions seem reasonable.
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30504
   Posted 12/18/2007 10:29 AM (GMT -6)   
and it's probably period/hormonal related as well.

Are you on the Rowasa at this time?

You could consider a schedule for using the Rowasa twice a week at least rather than tapering off. Even once every 4 days would be of benefit.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5175
   Posted 12/18/2007 11:18 AM (GMT -6)   
It sounds like you have a pretty good handle on UC, but you might do better on one of the other oral 5ASAs. Also, it would be better to see your gastro at least twice a year. Are you having bloods & urinalysis tested by other docs regularly? Gastro should also be paying attention to those to monitor your level of inflammation & effects of meds you take, plus any vitamin/mineral deficiencies that could impact on UC. It doesn't seem like you need to go on immunomodulators from your description of symptoms to-date. As Quincy writes, some change in your 5ASA usage might get you more consistent results. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for remission maintenance)
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