Too much blood?

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macgrl
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 12/18/2007 8:52 AM (GMT -7)   
Hi everyone,

Just looking for some advice here. I'm 21 weeks pregnant and was diagnosed with UC at the end of July. Initially I was put on Salofalk (mesalamine), and that seemed to put things into remission for the first month or so. But then I found out I was pregnant at the end of August, and it's been a rollercoaster ride of flares ever since. Since I'm new to UC, I'm not sure what's normal for a flare, but I seem to have an abnormal amount of blood right now. I'm not having a lot of bowel movements - usually just one in the middle of the night and one in the morning (and maybe one other throughout the day). But every time I do have one, it's basically just blood. I'm going to see an OBGYN for a consult this afternoon, but I'm sure he doesn't know anything about UC. I'm now on 40mg prednisone/day but that doesn't seem to be helping. Any advice? Is that amount of blood normal for a flare? When should I think about contacting my GI doctor again? Thanks!
----------------------------------------------------------------

Diagnosed: July 2007
Pregnant: Due 05/2008
Meds: mesalamine, 40mg prednisone,
Other: prenatal vit., probiotics, calcium, fish oil.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 12/18/2007 9:21 AM (GMT -7)   
For me, any time I see any blood, I know I am not getting better. Given that you are pregnant, you shouldn't mess around with this (well, you shouldn't mess around with a flare any time, but especially not when you are pregnant). In addition to seeing your OB, you should get into see your GI ASAP. Your OB and GI should be working together on this.
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/18/2007 9:54 AM (GMT -7)   
No amount of bleeding is ever acceptable let alone while being pregnant. With bleeding comes many more complications such as anemia which is not good for you nor the baby. Definately call your GI and let him/her know what is going on. If you can tolerate rectal meds, then you should ask for them and yes they are safe for the baby.
 @--->--SHERRY--<---@
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
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kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 12/19/2007 12:27 AM (GMT -7)   
just to let you know about my experience.... might ease your mind a little...
 
but for a year now, i bled every time i went to the toilet which was up to 20+ times a day.
there was lots of blood everytime.
even if there was no poo, there was still blood.
 
i became aenemic like a bunch of times and had to have iron infusions due to the bleeding.
definitely see your doctor about it, but its not uncommon to bleed a lot with UC.
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure.
last 4 days have been fabulous with no UC symptoms at all = remission (yey!) 
tapering pred = now on 20mg prednisone 1x day with breakfast
1000mg mesalazine 2x day - 1/2 endone every 6 12 hours for pain (weaning)
calicim, inner health plus (probiotic), fentalyn patch for pain and to wean off oxycodone
VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 
 


macgrl
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 12/19/2007 6:47 AM (GMT -7)   
thanks kazygirl. i appreciate the reply! i went to my OB yesterday and he's going to monitor me quite closely for the remainder of the pregnancy. everything seems to be going well so far though...growth and weight gain are both normal despite all the blood and diarrhea. i do think i need to call my GI again though because obviously 40mg of prednisone isn't doing the trick. thanks again.
----------------------------------------------------------------

Diagnosed: July 2007
Pregnant: Due 05/2008
Meds: mesalamine, 40mg prednisone,
Other: prenatal vit., probiotics, calcium, fish oil.


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 12/19/2007 7:54 AM (GMT -7)   
Try Rowasa enemas.
gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/19/2007 7:59 AM (GMT -7)   
Listen to Your Gut by Jini Patel Thompson has dietary and supplement recommendations specifically to address bleeding. A healing implant probiotic enema could be a huge help and, of course, it would not pose any dangers to your baby.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 12/19/2007 8:32 AM (GMT -7)   
macgrl - I am pregnant, too (31 weeks). I flared during my first trimester and am starting to have a few issues here and there now that I am in my third trimester. I can't stress how important it is that your OB and GI work together throughout your pregnancy. Be sure your OB has experience with Crohn's and/or UC patients. You want to make sure you have two people working on your case - your OB keeping your baby healthy and your GI keeping you healthy. Baby needs a healthy mommy after he or she arrives!

If you ever want to chat about the beauty of pregnancy with UC :-), let me know!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


macgrl
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 12/19/2007 10:09 AM (GMT -7)   
Thanks. It's so nice to hear from someone else who is pregnant with UC. It sounds like you have it more or less under control. Wish I could do the same! My OB does have some experience with UC patients, but he's admitted that it was quite some time ago. He's very willing to work with my GI to sort everything out. The baby seems to be doing well despite the flare, so hopefully that stays the same. I noticed you're on Asacol - what is that? I was on Salofalk before and now I'm on prednisone (which doesn't seem to be helping). Did Asacol help get you out of a flare, or is it more a maintenance thing? Also, when are you taking your iron? I'm also taking calcium and iron supplements, but I was told not to take them together. I've been taking the calcium first thing in the morning and iron at night. Do you do the same?
----------------------------------------------------------------

Diagnosed: July 2007
Pregnant: Due 05/2008
Meds: mesalamine, 40mg prednisone,
Other: prenatal vit., probiotics, calcium, fish oil.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 12/19/2007 11:47 AM (GMT -7)   
Asacol is an oral form of mesalamine. Rowasa is a rectal enema form of mesalamine. I have used those two medications since I was diagnosed with UC. They, along with Prednisone, helped me out of my first flare, and they are now my maintenance meds. During flares, I have mainly used Prednisone and Entocort once. Once I became pregnant, both my OB and GI wanted me to stay on my maintenance meds.

I did flare during my first trimester and was put on a short taper of Prednisone. Thankfully, it worked and put me back into remission. I am starting to have some issues again in my third trimester, but I'm still trying to figure out if it is the start of a UC flare or just a late pregnancy symptom. I'm just keeping an eye on things, so we will see.

As for the iron, you are right. Iron prevents the absorption of other vitamins and minerals, so you can't take the iron with your other supplements. You have to take it at least 2 hours before your other meds. So... my medicine schedule looks something like this.

5:30 am - Iron
8:00 am - Asacol, Folic Acid, Prenatal Vitamin, Calcium
2:00 pm - Asacol
5:00 pm - Iron
8:00 pm - Asacol, Calcium
Bedtime - Rowasa

I have to set alarms on my Blackberry to remind me to take everything! It's ridiculous... But, it is keeping the baby healthy, and that is what I care about most.

I hope your GI is able to figure something out for you! Maybe he will increase your Prednisone for a bit. He might suggest IV Prednisone, too.
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)

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