Newbie here and need some opinions/advice

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New Member

Date Joined Dec 2007
Total Posts : 3
   Posted 12/18/2007 12:45 PM (GMT -6)   
Hello. Just found this site as I've started researching colectomy surgery due to a strong family history of colon cancer and I'm considering having the surgery done to prevent the onset of colon cancer. I underwent genetic testing 2 weeks ago and am waiting for the results, but I'm really leaning towards surgery anyway and hopefully someone here can give me an insight to the surgery, side effects or whatever. I'm sorry if I've posted in the wrong section. Thank you. Deb

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 12/18/2007 3:58 PM (GMT -6)   
Will the genetic testing tell you whether or not you will get cancer?
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
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New Member

Date Joined Dec 2007
Total Posts : 3
   Posted 12/18/2007 4:32 PM (GMT -6)   
Yes and no. There are 5 genes that have been isolated that are known to cause colon cancer and the blood test will look for those genes. If one comes back positive, then I have an 80% chance of developing the cancer. If it comes back negative, it doesn't mean I won't get it, it could mean that I have a mutated gene that hasn't been identified yet. We've had 4 consecutive generations hit with it and multiples in the last 2 and it's striking us at under 45 years. I'm a walking time bomb and right now just trying to do as much research as possible. I was reading earlier in the ostomy forums and found some info there.

Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 12/19/2007 2:18 PM (GMT -6)   
I hope your test results are good.What age are you?Have you IBD.
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol


New Member

Date Joined Dec 2007
Total Posts : 3
   Posted 12/19/2007 2:28 PM (GMT -6)   
Hello Marty. Thanks for the encouragement. I'm 42 and have never had any problems with my system. I got the testing done because my mom died at 42, my aunt at 48, my grandfather at 51, my great aunt at 79, my great grandfather at 62 and just this October my sister at 44- only 18 days from onset of pain until she died. And I need to know if I'm going to get this, and my son and all of my nieces and nephews need to be tested as well. It's a hell of a way to go and I'd rather not let it come to that point. So I think my only option is to have my colon removed and of course my lifestyle will change, but I need to be around for my son- he's only 3 years old.

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 12/20/2007 9:16 AM (GMT -6)   
Moppet, you may want to check out the ostomies board on this site. I think you're not getting a lot of response here because we aren't familiar with your situation or what type of surgery would be done. UC-ers most often get a J-pouch surgery, not sure if this would be done in your case or not. Also, we have pre-existing colon pathology, so our course after surgery may be very different.

I hope your tests come back negative, and this is no longer a concern for you.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade.
In remission since April, 2006. Remicade has been my wonder drug.

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