Many Thanks - Update

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Annie76
Regular Member


Date Joined Jul 2007
Total Posts : 66
   Posted 12/19/2007 10:02 PM (GMT -7)   
I wanted to thank those of you who responded to my question recently of what other steps I could talk about with my doctor before moving on to heavier drugs. Just to recap, I have been on Asacol and Rowasa for 11 years and have been in a flare since April that I can't get on top of. My GI recommended that I move on to Imuran or Remicade but sent me home to think about it. If I had any further questions, I was to make another appointment to talk to him. I came to you with my questions and so many of you mentioned that I might try Colazal and possibly Cort enemas or Cort foam. Well it took me a month to get back in to see him but I brought these very questions to him and he has agreed that I should try them. He cautioned me that he doesn't think they will help me that this is seen by him as a "lateral move" not a step up to meds that will help. But he did admit that he has been wrong before. We are giving this 1 month and then when I go back the end of Jan. we will see if I have improved.

I know he wasn't very encouraging but I feel that if I try this and it doesn't work, then I will have peace of mind that it is time to move forward with other meds. I wouldn't have even known what to ask if it weren't for those of you who care and take time to answer these questions. I feel such a deep sense of gratitude for all of you and this forum. We truly are in this together. Bless you all.
left-sided colitis diagnosed after 3rd pregnancy 11 years ago: was in remission for 5 years
Current UC Meds:  12 Asacol per day
                          1 Rowasa enema at night
 
Other Meds:  Lipitor, Multi-vitamin, asadophilus, cinnamon capsules
 
In a flare since the middle of April


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 12/20/2007 2:55 AM (GMT -7)   
Hi Annie...great to hear from you!
 
It sounds like a great plan, and even better yet is your doc's willingness of support.

I think encouraging patient participation rather than  being bullied by a doctor makes the process so much more acceptable.

Definitely looking forward to your update.....
 
You're right..we're in it together, for all experiences help.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 12/20/2007 3:00:50 AM (GMT-7)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/20/2007 4:56 AM (GMT -7)   
I'm glad your doctor was willing to hear you out and try things your way. That's encouraging. So hopefully you will see a result with this new med regimine, but like you said, if it doesn't work then at least you tried every angle before resorting to the heavier duty drugs.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
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Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 12/20/2007 8:35 AM (GMT -7)   
Glad to read that you'll give Colazal a try. Make sure you're getting the right vitamin/mineral mix, too. I had been taking AARP "mature formula" multivitamin for several years because I'm over 50 & the price was very reasonable. After AARP discontinued this line last summer, I switched to Centrum Silver & feel a bit more energetic since I've been taking them. They have more D & less A in the formula, which my gastro thinks is right for us, too. Good luck with your new regimen! There is no "one size fits all" with 5ASA meds (Asacol never agreed with me!) & I think you're moving in the right direction while being sensibly cautious. Best wishes for the holidays & 2008. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)
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