I have bled almost every day for the past 5 years, regular bms or D or no bm. I have a rectal ulcer. I am now taking Proctofoam which seems to be helping the bleeding some, but I still see blood but less of it. I have never been found anemic and I am used to it. Once this nurse told me if I have any bleeding, I need to go to the hospital. I would be there every day. I refuse to take Prednisone ever again. I had a reaction to the Rowasa. The Hydrocortisone enemas didnt work. I just live like this.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks ( I may be developing antibodies?), Lomotil, Darvocet, Clorazepate, new meds: Prograf, Cymbalta, Lyrica