update, no remicade

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ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/20/2007 8:12 AM (GMT -7)   
Well, I saw my doctor on Tuesday and he decided not to let me try Remicade yet. He said he would like to try "staying on the current program", of Asacol and Azathioprine. It also seems as though I'm stuck on potassium supplements... Every time I stop taking them my potassium levels go way down. It's been messed up every since this last stint on prednisone and I fear it may have messed them up forever. I hope not :/
 
I guess I'm just kind of frustrated because this "current program" is what I've pretty much always been on and it works on and off but never for very long. I suppose the only benefit to not starting Remicade right now is that I do not know if I will stay in Iowa for much longer and if I were to quit my job somewhere in the future I'd be without insurance for at least three months and I wouldn't want to stop and start again with the risk of it not working anymore or causing worse side effects.
 
Sooo I guess I'm stuck with this for now. Of course, I forgot to ask about the enemas (argh!) but he will be calling me back in a few days with my lab results so I will definitely ask him then.
 
Hope everyone is staying sane and healthy with this holiday season, at least it's almost over!
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29840
   Posted 12/20/2007 10:46 AM (GMT -7)   
Hi...it's frustrating for sure.

Maybe call the nurse/assistant/receptionist and request them...because of the Christmas season, holidays and the weekend, the doc may not call if your results are fine.

just a thought.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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