Posted 12/21/2007 3:34 AM (GMT -6)
I would start a small course if it were me and i had exhausted all other treatment routes. I'm sure you've done them all Paul.I've done very short courses e.g. 5 days which improved things within 24 hours. I really hope that whatever you do you have a good time.
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]

Posted 12/21/2007 9:59 PM (GMT -6)
I booked the cruise. Now we have to wait and see how my symptoms are just before we leave. My wife, 6 year old daughter and I plan to fly from Toronto to Vancouver on Sunday July 27 and spend a few days in Vancouver. The cruise leaves the following Wednesday. It arrives in Anchorage the following Wednesday with several stops along the way. My wife has a cousin who lives in Anchorage with her husband and daughter. We plan to stay with them for another weak. We will then fly back to Toronto from Anchorage. If you are interested here is more information on our cruise:
 
 

Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 

Posted 12/22/2007 12:40 AM (GMT -6)
All my docs, past and present have all agreed that for vacations/trips a course of pred is a good back-up, but too low a dose to start never usually has much of an effect, you need to go high and tapper...typically for me, 40 mg for 2 weeks then tappering 5mg per week from there on out until down to about 3 pills a day, then tappering by 1/2...from 3/day a week to 2 1/2 a day for a week, ect. Or lt least getting a script of pred to take with you if you need it, if you don't end up needing it then you can spare yourself.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 12/22/2007 5:38 AM (GMT -6)
Paul you lucky duck! I am so envious........I've always wanted to go on a cruise. It looks like a great time. I have no advice on the pred but I will keep my fingers crossed that you can enjoy this trip.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies -Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

Posted 12/23/2007 12:04 AM (GMT -6)
Thanks pb4 and Sherry,

This will be my second cruise but it isn’t my preferred type of vacation. Before I had UC I backpacked throughout the Philippines, Thailand, and Hong Kong on 3 different trips, each 4 or 5 weeks long. Very little was prearranged. We would purchase our transportation and accommodations as needed and change our plans if something interesting presented itself, something like the Amazing Race. Since UC I couldn’t do those types of adventures anymore. A cruise is much more UC friendly and at least it stops in a few different locations. The type of vacation I can’t stand is going to a tropical Island and staying at a resort for a week. That would drive me crazy.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 

Posted 12/23/2007 1:41 AM (GMT -6)
Wow, sounds like you had quite an adventurous life before UC (STUPID DISEASE!!!) But I'm happy for you that you are at least able to go on a cruise (never been myself), have a great time and I hope your UC behaves itself so that you don't have to go on the dreaded pred, but hey, bottom line is feeling good, so have a ton of fun!!!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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