Thanks everyone. I plan to use prednisone only if my condition doesn’t improve by the time we go on the cruise. For the last 2 ½ years I have had 3 to 15 BMs every day with blood and extreme urgency every single day, even on days of only 3 or 4 BMs. In that time I never had an entire weak without at least one day of 8 or more BMs. I am absolutely sick and worn out from this not to mention my arthritis problem. The last time I used prednisone it made me feel perfectly normal for about
one month. If I use prednisone for our cruise I will start it a few days in advance and start to taper off it 2 to 3 weeks later. I expect to return to my pre prednisone condition shortly after tapering off it. Last time symptoms returned after reaching 20mg per day.
Three years ago we were on our first cruise (in the Caribbean). I was in a semi remission state with 2 to 3 BMs per day and only mild urgency. It went very well. Cruises are fairly UC friendly because there are lots of washrooms every ware and you can always go back to your cabin if you are not feeling well. The worst part is the flight to and from and the land excursions. The cruise we plan to go on makes 5 different stops. If I’m not feeling well I can always stay on the ship.
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision