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New Member

Date Joined Dec 2007
Total Posts : 13
   Posted 12/20/2007 7:37 PM (GMT -6)   
My doctor is scheduling me for remicade in 5 weeks. Just had colonoscopy after about all the medicenes nothing worked except prednisone.He just increased my lialda from 2 to 4 pills a day , I have just about weened myself off of prednisone and 2 more days 4mgs a day and no flare ups . Am I being optomistic thinking doubling the lialda will be enough so I will be able to cancel remicade. thanks nervous in florida

Veteran Member

Date Joined May 2006
Total Posts : 619
   Posted 12/22/2007 9:38 PM (GMT -6)   
I was nervous about the Remicade as well, it's not a big deal. I haven't completely achieved remission on it yet but it has a made a big difference for me so far. Less urgency, no more blood. I am still having trouble tapering off the Prednisone however, but am hopeful that will come with a little more time.

Just remember your immunity will be lower so frequent hand-washing, avoid close crowds ... basic common sense stuff and you should be just fine. The process is painless, those infusion clinic nurses tend to be aces with the needles. Just be sure to bring a book or an iPod or something as it can take up to 3 hours for the procedure.

Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97;
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, was almost off, back to 40 mg; 12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran( 2/07)

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 12/22/2007 10:34 PM (GMT -6)   
Meesh, my doc's infusion center has wireless internet available, so I take my laptop with me. I can either work, surf or take a nap while the medicine infuses.

I've been able to get of steroids finally, I hope you'll eventually be able to do that too. Just FYI, I was a lot better after the first three infusions, but I continued to improve slowly for the first year.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade.
In remission since April, 2006. Remicade has been my wonder drug.

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