Question about Remicade ,,,could it be working

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RMA
Regular Member


Date Joined Aug 2004
Total Posts : 79
   Posted 12/20/2007 5:44 PM (GMT -7)   
Hello all

I have had my third infusion this month and i am still going to the bathroom alot
still get that cramping pain ....but my BM's are more formed ,,,and i have not seen any blood in about 3 months ....i use to bleed all the time ,,,could it be working slowly ...i have been in a flare for a year ?

confused
REMIDCADE 10-02-07
colazal 750mg 3x3 a day
mercaptopurine 50mg 1 a day
allopurinol 100 mg
rowasa enema pm
multi vitamin
folic acid
fish oil
 
dx 2004 uc
 
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 12/20/2007 5:59 PM (GMT -7)   
That's how it's working for me too ... just had my 4th infusion and I've pretty much been a flare of varying intensity since diagnosis. I've never really had any stomache pain with my UC, but lots of blood, mucus and extreme urgency, like about 2 seconds notice that I had to get to a bathroom. Since the Remicade I've had no blood, still a lot of bathroom trips, but fairly well-formed BMs and I don't spend my ENTIRE morning running to the bathroom any more. Some people on the boards have told me they didn't get full effects until after their 5th or 6th infusion, so I hoping for more improvement. I still am having trouble getting off the Prednisone though. After my 2nd infusion I was almost off, had tapered to 5 mg every other day, but the 3rd infusion never really worked and after being quite ill for a couple of months I listened to my GIs advice to pop back up to 40 mg for a little while. He's going to start my taper again after the holidays. So hang in there, if you're seeing some improvement especially, give it a bit more time.
Meesh
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97;
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, was almost off, back to 40 mg; 12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran( 2/07)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 12/20/2007 6:02 PM (GMT -7)   
Yes, it took awhile before that spasming effect went away. I still get it every so often though. Here's a tip: eat smaller meals throughout the day. I find when I eat big meals, I tend to go more often. The smaller meals seem to digest better and I don't get that feeling of having to go. It took me a while to figure myself out, but I think I have it down pretty well now. I used to have what I called "dump days" about every three days when I still went a lot, but now I go just twice a day at the most and formed bms...no blood. So I think you are on the right track.
Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


RMA
Regular Member


Date Joined Aug 2004
Total Posts : 79
   Posted 12/20/2007 9:41 PM (GMT -7)   
Thanks Carol that is good to no
Thank's Meesh we are kinda in the same boat ...good luck to you .

I go see my GI in 3 weeks...i think it's colonosphy time
REMIDCADE 10-02-07
colazal 750mg 3x3 a day
mercaptopurine 50mg 1 a day
allopurinol 100 mg
rowasa enema pm
multi vitamin
folic acid
fish oil
 
dx 2004 uc
 
 


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 12/20/2007 10:00 PM (GMT -7)   
Sounds like it could be working for you, I had to reduce my intake of Asacol to get to where I am today, I don't know if colazol is the same way, but you might ask your GI about that.
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
Eleventh Remicade infusion End of January

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