Remicade and pain

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Regular Member

Date Joined Dec 2007
Total Posts : 151
   Posted 12/20/2007 11:39 PM (GMT -6)   
Ok,   I had my 3rd remicade infusion today.    My dose is 5mg/kg,  which gives me 400mg of Remicade.    Anyways,  I have been pre-medicated with Benadryl and tylenol.  i don't remember what the doctor said,  but why do I get the tylenol???     Since my infusion,  my left leg has been getting some intermittent deep pains in my lower that kind of pain what the tylenol is for?    And do you all know what's causing the pain?  I can't seem to find out the info in the remicade site.  
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Remicade infusions ~ Nov. 6, 2007,  Dec. 6, 2007,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone taper 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 units daily, Novolog 10 8 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.

Regular Member

Date Joined Apr 2007
Total Posts : 75
   Posted 12/21/2007 8:48 AM (GMT -6)   
-I believe that the Tylenol is to deal with any elevated body temperature that the infusion might cause during the actual treatment; similar to giving Benadryl in case of an allergic reaction. I *think* this is why.

-I've never experienced any type of pain similar to what you're describing. I would talk to your GI or a pharmacist about it, tho.

Hope you feel better!

21 yrs old, diagnosed severe pan ulcerative colitis 2 Mar 2007
Hospitalized 27 Apr-5 May 2007
Remission since 4 July 2007
Asacol (mesalamine) 400 mg x 12 daily
Remicade <--first infusion on 3 May 2007; currently once every 8 weeks
Imuran (azathioprine) 50 mg x 2 daily
Eating fruits and vegetables like there is no tomorrow...
"God bless Remicade!"

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 12/22/2007 10:04 AM (GMT -6)   

I have been having similar pains except at first, they were constant and in both legs and felt like extreme shocks or charley horses, some of the worst pain I have ever experienced besides child birth.  Turns out calf pain is a side effect that is listed as a  that you should call your doctor if you are experiencing.  We are not the only ones.

It was hard to find anything that listed calf pain as a side effect, but here is one and it says contact your doctor if you experience calf pain.

Defintely tell your doctor before your next infusion, ok?  The only other thing I could think of is that you are tapering off the Prednisone and that can cause pains.  But if they only started after the last infusion, I would think it's the Remicade.  Tell us what he says about it please.

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks ( I may be developing antibodies?), Lomotil, Darvocet, Clorazepate, new meds: Prograf, Cymbalta, Lyrica

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