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FODMAPS. Finally Help achieved with diet. PART I

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Ulcerative Colitis
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 11:38 AM (GMT -8)
Dear UC & Crohns' sufferers.


I am writing this as in the last couple of weeks my condition has greatly improved.

How it all started
about 1.5 years ago I attended a Symposium at the Hilton Hotel in Sydney Australia where a very famous dietician presented. See was speaking about FODMAPs (group of short chain carbohydrates that are poorly absorbed.) I immediately identified with this as she listed a group of foods which I knew that I could not tolerate.


Down the track 1.5 years
I had a phone consultation with a dietician involved with this research. I had given her a copy of a food diary I had been keeping for 3 weeks. She said that I should eliminate some more foods and that my condition would probably improve about 75% and that I could most likely reduce the use of some of my medications after some improvement. I was asked to stop eating onions, green beans, zucchinis, honey dew and apples amongst other foods. I was eating all of these foods almost everyday believing that they very safe and not affecting my condition.


Four weeks down the track
My condition has improved greatly. My constipation I had been suffering for the past 13 years has completely disappeared. The bloody mucous I had been passing almost daily has vanished. Almost all of the bleeding has also gone.



Please give this diet a go. I know it has turned my condition around. The hospital doing the research is the Box Hill Hospital, located in Melbourne Australa.  Here is a link to information regarding the diet written by the dietitican involved with the research. 


http://www.healthsystem.virginia.edu/internet/digestive-health/nutrition/BarrettArticle.pdf


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More in next post

Post Edited By Moderator (Red_34) : 5/7/2010 5:29:39 AM (GMT-6)

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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 11:48 AM (GMT -8)
Low FODMAP Diet
Fructose, fructans, sorbitol, raffinose
Gastrointestinal disorders can involve symptoms such as abdominal pain, bloating, wind, reflux, diarrhoea and/or constipation. FODMAPs are a group of short chain carbohydrates that are poorly absorbed. They are therefore fermented by intestinal bacteria releasing gas and leading to these symptoms. You have been advised to avoid the following FODMAPs for a period of at least 8 weeks after which time your dietitian will advise you whether to challenge any of the FODMAP groups.

What Foods Need to be Limited?
1. Foods with EXCESS FRUCTOSE

· Honey
· Apples
· Pears
· Mandarin
· Peach
· Mango
· Watermelon
· Honeydew melon
· Lychee
· Carambola, star fruit
· Nashi fruit
· Coconut cream / coconut milk
· Tinned fruit in natural juice (pear juice)
· Fructose or corn syrup
· Fruit juice (even need to limit safe fruits to 1/3 glass of juice)
· Dried fruit (limit safe fruits to 1 tablespoon)

2. Foods with FRUCTANS

· Wheat (in large amounts)
· Rye (in large amounts)
· Onion – brown, white, spring, spanish, shallots
· Leeks
· Artichokes
· Zucchini

· Chicory - Ecco, Caro drinks
· Dandelion Tea
· Inulin (artificial fibre added to products, e.g. dairy foods)
· Fructo-oligo saccharides (FOS) (artificial fibre added to some nutritional supplements)

3. Foods with SORBITOL

· Apricots
· Peaches
· Nectarines
· Cherries
· Plums
· Apples
· Pears
· Artificially sweetened gums, mints, lollies
· Artificial sweeteners: Sorbitol, Mannitol, Xylitol, Isomalt



4. Foods with RAFFINOSE

· Cabbage
· Brussel sprouts
· Green beans
· Asparagus
· Legumes – chickpeas, lentils, red kidney beans, baked beans
More in next post
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Jjay
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Joined : Sep 2007
Posts : 61
Posted 12/21/2007 11:51 AM (GMT -8)
What Are The Safe Foods?

SUITABLE alternatives to honey:
· Jam, marmalade
· vegemite, marmite, promite, Aussie Mite, Mighty Mite, Vege Spread
· peanut butter
· maple syrup, treacle, golden syrup, rice syrup

Fruits that are SUITABLE:
· Berries: blackberry, blueberry, boysenberry, cranberry, raspberry, strawberries
· Citrus: cumquat, lemon, grapefruit, lime, orange, tangelo
· Melons: cantaloupe
· Other: banana, jackfruit, kiwifruit, grapes, passionfruit, pineapple, rhubarb, tamarillo, tomato, avocado, guava, pawpaw, lychee, persimmon
· N.B the quantity of these is important. No more than the size of a small orange at a time. Separate each serve by ~2 hours.

Vegetables that are SUITABLE:

· Alfalfa
· Bamboo shoots
· Beanshoot
· Beetroot
· Bok Choy
· Broccoli
· Capsicum
· Carrot
· Cauliflower
· Celery
· Chilli
· Chive
· Corn
· Cucumber
· Eggplant
· Fennel
· Kohlrabi
· Lettuce
· Olive
· Parsnip
· Peas
· Potato
· Pumpkin
· Marrow
· Mushroom
· Silverbeet
· Snow Peas
· Spinach
· Squash
· Swede
· Sweet Potato
· Sweet Corn
· Taro
· Turnip
· Waterchestnut
· Watercress


SUITABLE alternatives to Ecco, Caro and Dandelion Tea:
· Enjoy tea, coffee (regular and decaffeinated), tea infusions, herbal teas, hot water
Note: Caffeine can be a gastric irritant. You may want to minimise your coffee intake to <2 cups per day if you suspect caffeine contributes to your symptoms.

SUITABLE alternatives to Onion:
· Onion is a MAJOR problem, even when eaten in small amounts
· Check commercially prepared products eg. sauces, soups, canned flavoured tuna
· Consider Asafoetida powder (Indian spice markets) for onion flavour
· Use other herbs and spices to flavour food.
· Garlic is usually tolerated in small amounts (minimise if symptoms persist)
· You may be able to cook with (but not eat) onion:
o Cut onion into large strips for easy removal
o Cut onion into large chunks in stir fries, but leave behind on plate
o Use whole onions in gravies of casseroles and remove prior to serving
o In soups, place onions in muslin bag/stocking while cooking, then remove.

Understanding wheat fructan restriction:
· Wheat-based products are only a problem when WHEAT IS THE MAIN INGREDIENT, e.g. bread, pasta, breakfast cereals, etc,
· Where wheat is an ingredient in only small amounts (eg. biscuit crumbs on the chocolate coating of an icecream) it is NOT a problem.
· There are many wheat ingredients that are safe, as they do not contain fructans. These include:
o wheat starch, wheat thickeners
o wheat maltodextrin, wheat dextrin
o wheat dextrose
o wheat glucose, wheat glucose syrup, and
o wheat colour caramel.

Wheat Free / Gluten Free? There is a difference:
w People who are gluten free cannot have any traces of wheat, rye, oats and barley
w The diet for fructose malabsorption is only low wheat so you can eat rye, oats, barley and small amounts of wheat or wheat ingredients.
w Gluten free products are wheat free, so they are suitable for fructose malabsorption, but you still need to be aware of fructose ingredients such as onion, honey and fruit.

More in next post
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Rio in Maryland
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Joined : Nov 2007
Posts : 891
Posted 12/21/2007 12:12 PM (GMT -8)

Thanks for the diet Jjay.

I read an article online several months ago about this and emailed Dr. Gearry at Box Hill Hospital for more information.  He wasn't able to give me an exact diet then (as he recommended first consulting with a specific dietician in Australia and then getting fructose and lactose breath testing done - not easy to do as I'm in the USA) but he emailed me a pdf with a summary of the results of the study on IBD and FODMAPs. 

I don't know whether/how we are able to post pdf's on the forum otherwise I'd post it for others to read (if anyone knows how to do this then please get back to me).

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tjf
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Joined : Dec 2005
Posts : 3238
Posted 12/21/2007 12:13 PM (GMT -8)
Do you have links you can use instead of cutting and pasting the entire text? This is getting a little lenghty. Thanks!
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 12:30 PM (GMT -8)
Wheat Alternatives:

Bread
Problem- Wheat based including:- white, wholemeal, multigrain, sourdough, spelt, kumut, dinkle, flat breads, Rye breads.
Suggested Alternative- Gluten free

Pasta- Regular pasta is made from wheat
Suggested Alternative- Gluten free pasta


Breakfast Cereal
Problem- Most are made from wheat, many also contain lage amounts of dried fruit.
Suggested Alternative- Porridge, cornflakes, rice rubbles, Wheat free muesli. Gluten free cereals.

Noodles
Problem- Two Minute, Hokkein, Udon
Suggested alternative-Rice Noodles, buckwheat (soba) noodles

Cakes, baked goods
Problem-Most are made from wheat. Cakes, muffins, scones, crumpets, croissants, puddings. Fruit cakes are a double problem!
Suggested alternative- Gluten free cakes and mixes (eg. Basco, Well and Good), Cornflour sponge, Flourless cakes.

Savoury biscuit
Problem- Usually wheat based eg. Salda, Sao, Jatz, water crackers.
Suggested alternative- Corn thins, Rice cakes, Rice crackers (check onion powder, Eskal crackers and pretzels.

Sweet Biscuit

Problem- Wheat based eg. Tim Tams, Teddy Bear, Country Cream
Suggested alternative- Gluten free (eg. D’Lush, Eskal wafers, Freedom Foods), Almond Macaroons, Arnotts Rice cookies

Pastry
Problem- Wheat based pies, pastries
Suggested alternative- Gluten Free pasty mixes (Orgran), Eat the middle out - leave pastry behind!.

Breadcrumbs

Problem- Wheat based pies, pastries
Suggested Alternative- Gluten free crumbs (Orgran, Freedom Foods), Polenta, Cornflake Crumbs

Other
Problem- Semolina, couscous. bulgar.
Suggested alternative- Polenta, Millet, buckwheat, Sorghum.

 

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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 12:34 PM (GMT -8)
Hi Tabitha,

Sorry, I do not have links. This is an exact copy of an diet that was emailed to my by the dietitian. I have been sitting here all morning trying to copy and paste the diet for everyone. Only want to help others.

Merry Xmas.
Joan
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 12:39 PM (GMT -8)
Hi TAbitha,

I can send a copy of the diet as a word document if you tell me how to do it.

Joan
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Rio in Maryland
Veteran Member
Joined : Nov 2007
Posts : 891
Posted 12/21/2007 2:16 PM (GMT -8)

Hi Joan,

Just in case Tabitha isn't able to post the document, would it be possible to kindly email the entire diet to me? (my email ID is listed on my profile).  Also, in the pdf that I have on the study it mentions the success rate of people on the diet who followed cookbooks that were given to them. Do you know anything about these cookbooks? Thanks for your efforts!

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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 2:22 PM (GMT -8)
Hi Rio,

Have just emailed you the entire diet. Please keep me posted as to your success.

Joan
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enan
Regular Member
Joined : May 2007
Posts : 30
Posted 12/21/2007 3:12 PM (GMT -8)
Hi Joan can you email me diet?

Thanks,

Enan

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potty girl
Veteran Member
Joined : Dec 2006
Posts : 835
Posted 12/21/2007 3:22 PM (GMT -8)
Is this the whole diet on here?
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Rio in Maryland
Veteran Member
Joined : Nov 2007
Posts : 891
Posted 12/21/2007 4:10 PM (GMT -8)
Thanks Joan.  I got your email and replied with the pdf.

From the email that I got from Dr. Gearry on his FODMAPs and IBD study, it is worth noting that he mentioned that the "diet is good for bloating, wind, diarrhoea and abdominal pain, but not inflammatory symptoms like diarrhoea WITH rectal bleeding".

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kazygirl
Veteran Member
Joined : Sep 2007
Posts : 955
Posted 12/21/2007 5:36 PM (GMT -8)
im interested in more of the diet... is that the lot of it or is there more that your not "allowed" to post cuz of length?

thanx
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 6:27 PM (GMT -8)
Hi Rio

Thank you for attaching the pdf file. Yes you are right as you mentioned in the private email. This is the same dietitcan that I had the consultation with via phone as I am in Sydney and she is in Melbourne. She is involved in the research. She is very nice and I had an 1 hour consulatation with her.

Although he may have told you that diet is good for bloating, wind, diarrhoea and abdominal pain, but not inflammatory symptoms like diarrhoea WITH rectal bleeding, I can only tell you my experience with the diet. It has stopped most of my bleeding. I now see very little if any blood. Most of the time no blood.

Everyones disease if difference of course. I was already avoiding many of the foods mentioned in the diet. I had been avoiding the foods after many years of trial an error. So I only had to eliminate the few I mentioned above (onions, green beans, zuchinis, watermelon and honeydew to name a few. I do not agree totally with the diet as I know that I am unable to tolerate the allowed fruits. But maybe in time, after further healing, I might be able to tolerate the food. ie. I am uanble to tolerate oranges, lemons and the berries at the moment.

Anyone wishing to follow this diet will most likely have an idea what they can and can't tolerate. I was already avoiding wheat and rye. I know that my body does not tolerate rye. If I eat rye, I would be bleeding in approximately 30minutes.

I also recommend keeping a food diary. That way symptoms can be noted.

Hope this helps. Feel free to ask me any other questions.

Joan
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 6:35 PM (GMT -8)
Hello Enan

Sorry to hear your young daughter has colitis. I had already been avoiding most of the foods mentioned. Also, She said that rice was OK. But I think I have a problem with rice. So be aware of what is happening to your daughters body. ie. bloating, rumbling, odour or gas and the odour of her stools, bleeding and mucous. Keep a food diary and note the time the symptoms happened. You may very well find a pattern happening. This dietician does phone consultations. If you are interested I can give you her phone number in Australia via email.

Joan
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 6:44 PM (GMT -8)
Hi Steph,

I see your from the gold coast. Sorry to hear you are not well. This is the whole diet. I can give you a more friendly version if you give me a email address to post to. I tried to copy the whole diet but this forum would not allow it. I have given it to others here.

I think its better if you do this diet in conjuction with the dietician.

Joan
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lulu
New Member
Joined : Sep 2003
Posts : 12
Posted 12/21/2007 7:03 PM (GMT -8)
Hi I was involved in recent "FODMAPS" study, thru Box Hill Hospital. Jacqi Barrett is the dietition who was doing the research, Dr Geary was her supervisor, as far as I know he is now back in NZ, but Jaci is contactable on the following email. jacqueline.barrett@med.monash.edu.au

Jaci Barrett, Dietitian, Departments of Gastroenterology and Medicine, Box Hill Hospital and Monash University
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/21/2007 7:07 PM (GMT -8)
Hi Lulu,

I don't think its appropriate to mention a persons name on the forum. But yes this is the person who I had the consult with. Also the dietition no longer works at Box HILL hospital. If anyone would like her details I can provide them in a private email.

Lulu, maybe you can provide us with some information as well. Do you have UC or Crohns disease and did this diet help you.

Joan

Post Edited (Jjay) : 12/21/2007 8:11:04 PM (GMT-7)

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Jjay
Regular Member
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Posts : 61
Posted 12/21/2007 9:23 PM (GMT -8)
Rona,

This is the whole diet. I can email a friendly version if you like
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fasttrack
New Member
Joined : Dec 2007
Posts : 7
Posted 12/28/2007 11:30 PM (GMT -8)
Thanks for sharing the FODMAPS diet info. I pretty much have pain when I eat anything on the offending foods list and try to avoid them.  I still eat bread and pasta and I've noticed problems the next day especially when I eat whole wheat. Been considering going gluten free so thanks for helping me make up my mind. I needed a little push.

Dave

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MoonShadow
Regular Member
Joined : Dec 2007
Posts : 52
Posted 12/29/2007 1:47 AM (GMT -8)
Hello   It is my first time posting here and so I was interested to see something about diet.   I am currently healing myself through diet but NOT the diet shown by the original poster Jjay.   I will just give you a little bit of background:   I have been sick since 1998 but only officially diagnosed in 2003.   I went through the drug rigmarole from 2003 to 2005.   In 2005, I decided no more drugs because the drugs were giving me horrible side effects (i.e.) inner anger, depression, suicidal, outer rage, short temper, massive weight gain, moon face, excessive hair growth in all the wrong places, etc… etc…   I was on very high doses and a variety of different pills. Every time the doctor reduced the dosages, I would get another flare-up. Last time I saw the doctor, he wanted to put me on a drug that had potential skin cancer side effects and he told me I would be on drugs for the rest of my life.   At that stage, I decided to completely stop taking the drugs and search for an alternative more natural route.   For one year, I had some luck (under the care of a naturopath) keeping the UC under control using vitamins and minerals but that was unstainable and expensive in the long run. I stopped the vitamins in early 2007 and progressively went down hill again.   By August 2007, I felt I was at deaths door; I was very sick and in a lot of pain and very reluctantly thought about drugs again. I was basically confined to the house and if I went out, I had to know the locations of all public toilets in the neighbourhood. This is quite embarrassing but I often had to wear protective underwear when out in public.   However, at the end of August my miracle occurred, I read the book “Self Healing Colitis & Crohn's” by David Klein . I started taking his dietary advice at the beginning of September and felt 1000% better within two weeks.   I feel like a completely different person. I have loads of energy and feel great. In August, I could barely drag myself out of bed and always had a sleep in the afternoons. Now I am exercising on a daily basis.   If I stick to David Klein’s dietary advice 100%, my UC is completely under control 100%.   I have NO affiliation with David Klein. I am simply passing this information on, as it has helped me so very much. Do with it what you will.   I would love to hear if anyone else has had success with following David Klein’s advice?   Bye for now.
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Jjay
Regular Member
Joined : Sep 2007
Posts : 61
Posted 12/30/2007 7:16 PM (GMT -8)

Hi MoonShadow,

Thank you for you input regarding David Klein's diet.  However, you do no give any details of the diet.  Could you please explain what kind of foods can been eaten and what foods need to be avoided on the diet.  It might benefit others who are troubled with UC or Crohns disease.

Thanks yeah   

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jujub
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Joined : Mar 2003
Posts : 10424
Posted 12/30/2007 7:58 PM (GMT -8)
Jjay, I did a little research. It looks like Klein is a proponent of the raw food diet. He believes we would all be healthier, happier and "balanced" if we were breast fed until 4 or 5 years of age, then ate only raw food. He does say no raw fruits and veggies during flares, so I don't know if he cooks or juices or what at that time.

I suppose if you're inclined to be a vegan to start with, this would be worth looking at. I'm going to pass on it, myself because I'm not a believer in the vegan approach.
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MoonShadow
Regular Member
Joined : Dec 2007
Posts : 52
Posted 12/31/2007 1:57 AM (GMT -8)

 

Jjay – I purposely didn’t give any additional diet information because (in my mind) if someone is interested, they will take whatever information is given and run with it (i.e.) they will do their own research when the time is right for them.

 

In other words, for an oak tree to grow, you need to plant the seed first!

 

From my own past experience, there is nothing worse than to “feel” you are being lectured to.

 

There is no way on earth, that I could explain the concepts and research contained within one book in a couple of paragraphs, so I didn’t bother trying.

 

If you are interested in finding out more, please buy the book or borrow the book from your local library – at least that way you will get the correct and full information from the proper source, instead of hearing it second hand from me.

 

Judilyn – David Klein is indeed a proponent of the raw food diet. I can’t comment on his breast feeding views, as I have never heard or read about them.

 

Personally, I was not inclined to be raw vegan to start with either, but when it comes down to it, I now have NO choice in the matter.

 

My two very favourite food items in the entire universe were chicken and cheese.

 

Unfortunately, when I was diagnosed with UC, I was also diagnosed as lactose intolerant.

 

David Klein says in his book ..........and I QUOTE:

 

"it is apparent to the author that meat (any animal flesh) is the single most causative dietary factor with C&C. The author has never seen or heard of a case of complete and lasting healing of C&C where the person continued to eat meat”.

 

I actually heard about David Klein and his diet over five years ago but at that time I was also a non-believer in the raw vegan approach, so I pretty much ignored his valuable advice.

 

When I was first sick / diagnosed, I pretty much ate what I wanted, when I wanted. However, because of that idiotic decision on my part, until recently I have been suffering because of it. My God, how I wish I had followed his advice, when I first heard about it.

 

You seriously don’t have to “inclined to be a vegan to start with” to follow his advice (although it may help with the transition) but to anyone who has done the rounds and is looking for an alternative to drugs and surgery or to anyone who is “at the end of their tether”, his advice will help you immensely.

 

Anyway as I said, I use to be narrow-minded to his views, but now I know different from personal experience.

 

So all I can do (going on my past views, feelings and experiences) is plant the seed with others.

 

Please read the book whether you buy, borrow, beg or steal it - (yes, that last suggestion was a joke - so please don't sue me if you get caught!)

 

.

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