Chloe - I really feel your pain. I had to bring my husband to the hospital against his wishes on Mother's Day - within an hour with an IV and some pain medication he was put out of his misery with the intense pain he was in. (We were fortunate to get there at the exact right time with no waiting and immediate attention) Once he was out o pain.... of course he was very happy I insisted he had to go as I could not bear it any longer. It is very tough for you and him. Hang in there and remember if he gets cranky definitely do not take it to heart. This disease, the discomfort, the meds really takes its toll on them. (Prednisone is so mood altering.)
Hopefully the Dr will find the right medications to help him sooner rather than later. If you have done a lot of reading of posts here you will find so much helpful information. This is an awesome community and resource. It will greatly benefit you and him to get as much info from here as you can to better educate yourself and be the best advocate for your husband that you can be.
Print off info you think is very helpful or take good notes. You may find you want to discuss some of the things discussed here in this forum with the Dr. My husband just doesn't get on the computer much at all as he did in the past. I report to him info that I think is relevant and we discuss with his doctors. When the doctors inform and discuss things with us we are so much more in tune with everything now as we are not hearing something for the first time since I have so much info from others here to compare notes with.
We are retired so I have time to devote to this - in the beginning I was keeping logs of everything. Depending on what medication was being tried and if there was a need to monitor blood pressure we would take it accordingly.
Prednisone meds I kept a very comprehensive log of as he was on and off and on again. Finally off the stuff and I hope he can stay off it for a long time.
I also did a chart relating to the BM's, date, time, frequency, urgency, blood if present, level of pain, log of foods eaten and when to see if any thing in particular bothered him more than others etc.
I always kept his medications on the computer and date them. If you only want to keep one listing going I make sure I print off the most recent one before I make changes. Make the changes and update the date and print off. This way we can always refer back to what he was taking when. At one time it was the same meds for the longest time.... but once the UC came I was updating the list very often. Without the notes and lists to refer to we would never remember from one day to the next...lol.
Good luck to you and your husband. I truly hope 2008 will be a much better year for both of you.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month