My heart is racing

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enufworry
Regular Member


Date Joined Oct 2007
Total Posts : 80
   Posted 1/1/2008 9:56 PM (GMT -7)   
 Thank you all for being here.  I am very new to this forum so please bare with me.  I was diagnosed with MVP many years ago and have suffered many of the symptoms.  Recently I have been experiencing a racing heart---almost like I have had 10 cups of coffee (and I don't do caffine).  It used to come periodically---but now seems to come every day.  The feeling lasts for hours sometimes.  It starts out real fast and intense and I get this weird feeling in my throat and neck---like pressure of something. Like my head is going to blow off.   It slows down after about an hour or so---but lasts for a long time.  I feel like I'm going nuts and like I want to jump out of my body.  I also get cold and kind of shivery.  I doesn't seem to come at any particular time or with any activity.  Mostly when I'm  just sitting and talking or watching tv.  Does anybody know what I'm talking about????  I've tried to explain it to other people and they just don't seem to get it.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/1/2008 10:34 PM (GMT -7)   
Hi there,
 
I don't often post in this forum, but I wanted to give you some encouragement and offer some advice, as I too have MVP.  Mine is caused by lupus.  Inflammation of my mitral valve.  When I first started noticing the symptoms of a racing heart, palpitations, etc, it scared the crap out of me.  I also, thought my heart was going to leap forth and exit my body. 
 
When my lupus diagnosis came, along with the MVP and a bunch of other stuff, they put me on prednisone.  It killed the inflammation and the palpitations, racing, etc, disappeared within a few days! Is your MVP caused by inflammation?
 
Do you suffer from anxiety?  That can cause these symptoms.  You mentioned some symptoms like shivers, you feel you're going nuts (who wouldn't if this is happening), racing heart, palpitations, etc. Those can be anxiety related too. Do you feel "ramped up"?  Almost hyper? I have anxiety, so I know the symptoms!
 
Also, have you checked your blood pressure recently?  You might want to get that checked.... I'm having some new issues with high blood pressure. Never had it before, and we don't know why I do now.  But my systolic number (when the heart is puping the blood through) is normal.  But my dystolic number (when the heart is at rest, not pumping), is high.  I'm mentioning this because you said you noticed the symptoms when you're just sitting or talking or watching t.v.  That's when I notice my symptoms too.  When I'm "relaxed". 
 
How do you feel after you exercise?  Do you get dizzy and feel sick?  Any problems exercising?
 
I'm just thinking out loud on some of this for you.  I do "get" what you're saying.  I know there are lots here who have MVP as well.  The more info you can get the better.  I hope the answers come quickly for you!
 
All the best,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


enufworry
Regular Member


Date Joined Oct 2007
Total Posts : 80
   Posted 1/1/2008 11:09 PM (GMT -7)   

Wow, thanks for answering so soon. :-)

I was diagnosed with MVP about 35 years ago.  It's mild, I think, but I'm not sure what the "cause" is.  All I know is that I have been to the ER hundreds of times thinking that I was having a heart attack and scared out of my mind only to be told that I was fine and just anxious---or something.  I finally have a cardiologist who takes me seriously and has given me some of the tests that have "somewhat" reassured me.  I had an event moniter on for a month and the doc said all was well---even tho' I called in a few of these racing times.  I read a book on MVP and Dysautonomia....it helped some. 
 
  I'm not quite sure what symptoms belong to what illness.  I get dizzy, light headed, chest pain (my only excercise is walking---which is fine---I think I'm too afraid to do anything more strenuous), palpatations, fatigue, GERD. I just read the forum for Fibromyalgia---I have a bunch of those symptoms too!!!!!  I feel like such a mess.
 
 My regular bld pressure is low normal---I've never taken it tho' when I'm going thru one of these bouts.  That might be interesting. 
 
Yep, I'm also pretty anxious and these symptoms certainly don't help.  I work hard at not scaring myself silly---but I also don't want to MISS anything.
 
Thanks again for your concern,
 
 

patched1129
Regular Member


Date Joined Dec 2007
Total Posts : 32
   Posted 1/2/2008 8:07 PM (GMT -7)   

I had my pfo closure (hole in heart) done on November 29.  I have had a stroke and 4 TIA's prior to the closure with severe migraines.  I am waking up every morning from a dead sleep with my heart racing, the pressure in my chest and it makes me nauseous.  It has been about 8 days.  I thought my heart was going to jump out at one point.

I put a call into my cardiologist today but he is on vacation.  I have super low blood pressure.  While in the hospital after my surgery it was 59/48.  They freaked a bit but I was okay.  I am 38 years old and was very active.  Now, I am afraid to do anything.  Any ideas would be appreciated.

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