Sarita, I am thanking God for you! Even your posts are calming!
I didn't start decreasing the nadolol initially. I've been on 120mg for years and years. Controlled the arrhythmia like a charm. Out of the blue, they started about 7 weeks ago. Went to doc, had an EKG, during which not ONE expressed itself! As I said, my doc has been treating me for this for 18 years so I know he is familiar with the types of PVC's I have. But still, I was disgusted that I couldn't coax even one during the test. I am always sure that when they return after long remissions, that they must be the "serious" life-threatening kind. He listened to my heart, of course, and said everything sounded and looked normal and not to worry. He advised that I increase my dose by 40 mgs. I did that for about 3 days, felt worse. Decreased back to 120 again and within 5 days, they were gone four about 3 weeks. JOY! RELIEF! LIFE RETURNS TO NORMAL! And then, wallop - they are back and even worse than before. Do I feel them? You betcha! It's like there is a tiny man inside my chest with a hammer! Yesterday, I estimated about 30 per hour. They seem to diminish when I am lying down, but not always. Sometimes they are isolated singles, sometimes they come in pairs or triplets. On a scale of 1-10 I would say a 9. It's not at all like the docs sometimes describe when they say PVC's are not discernable. Believe me when I say I FEEL every single one. I have a knee-jerk reaction of heavy, deep breathing when they come on and I'm not sure if this helps or hurts. Sort of the panic attack response where you are almost on the verge of hyperventilating. It's exhausting. I was so wiped out last night I felt like I had run a marathon.
I decreased my caffeine intake to a half cup a day, although I have been drinking de-caf during the day. I haven't had an echo in years and years, probably 10. It might be worth the expense though, if the results were good and put my mind at ease. I have no doubt that my frantic responses are causing them to worsen.
My recent blood work showed iron depletion, just shy of full blown anemia. Could this be a contributing factor? As you know, with the IBS C, iron would probably KILL me but I am actually willing to consider taking it if it would knock these bad boys out.
Thank you SOOOO much for your help!