yes, thanks, the more information, the better at this point. I am one of those who would rather be "armed" with as much knowledge as possible than to just trust my doctors, I have been burned before, not by these two doctors, but by a former family doctor who missed this entirely, and missed something serious in my 6 year old son, so now I am very cautious about
educating myself about
these things on my own, even though I am told I have the best doctors in my area, if not in the country. I did speak to my cardiologist last night for about
30 minutes on his drive home from clinic, he actually gave me his cell phone number now, and told me that any time the office does not get back to me with an answer that I should not hesitate to call him right away, I feel funny calling his cell like that, but he is that kind of guy who cares that much, which is refreshing in this day and age of HMO's and huge practices where you get shuffled around like cattle. My cardiologist is younger, brilliant, but sometimes too smart for his own good, I think. He says while he agrees with most of what my neurologist is saying, and the tests he wants to run, he stands by the Gore-helex device, he has been using it for quite some time, he even made several calls to his colleagues in other parts of the country who do even more PFO's than he does, and they all agree that it is the best device on the market for PFO closures, especially for people with nickel allergy because it has the least amount of metal in it, the Amplatzer has the most, and the Gore Helex is the easiest for them to maneuver inside the catheter, and easiest to retrieve if need be, it also has the least instance of clot formation post-op. So, he is standing behind it 100%. He at this point does not think I am having these issues due to my nickel allergy, but is curious to see what the blood tests will show. He thinks my heart palpitations and other symptoms might be due to something else, I asked if it's possible the device has slipped or is defective in any way, he says it is highly unlikely, but that is the symptom I would be having if it were. So, I am going in next week for all those tests, and we will see. He wants me to have a TEE after the trans cranial doppler is done, to rule out any other heart issues, and to take a closer look at the device, because he said that is really the tool they like to use, and the only definitive test to give them the best/most certain answer of what is wrong. I am nervous about
having the TEE done, the only one I had done was during my PFO closure, and I was out cold under general anastesia!