Pericardiectomy

Hi I am having a pericardiectomy in a few weeks, I am a 38 year old female.  I can not find any info on this surgery.  I will be having the surgery at Loma Linda.  I would really like to hear from someone who has gone through this.

Barb,

I had never heard of that and so did a search on Google and found information there. But, nothing is like talking to some who has actually gone through the same thing, and I hope you can find that person but if not then the next best thing is to talk to someone who has DONE that surgery and like gain said that would be your surgeon.

I'm saying some prayers for you.

Diane

---

 

 

 

Dianefh: 

Open heart surgery 1964 to repair congenital Ventricular Septal Defect.

Open heart surgery 2003 to remove left atrial tumor with removal and patch of the entire atrial septum. Arrhythmias (PVCs, PACs, PSVT, Atrial Tachycardia).

High Blood Pressure. High Cholesterol. Enlargement of both Atriums. High Pulmonary vessel pressure. Mitral valve prolapse, Mitral and Tricuspid valve regurgitations.

Repaired VSD is annerysmal and part of the repaired membrane is the septal tricuspid leaflet (I don't know what this means, lol, except it's thin and pouching).

Strong family history of stroke, heart attack, and congestive heart failure.

 

My name off the computer is Denise, I'm 57 and have two wonderful children and two just as wonderful grandchildren. I'm a retired health unit coordinator and my husband is a 100% disabled Veteran and a medically retired RN.

Barb,
If you're only asking about the open heart surgery, then there are many of us who have gone through that and can give you info. But if you're looking for others with that specific diagnosis, I don't think many have even heard of it.

Best wishes,

Diane

---

 

 

 

Dianefh: 

Open heart surgery 1964 to repair congenital Ventricular Septal Defect.

Open heart surgery 2003 to remove left atrial tumor with removal and patch of the entire atrial septum. Arrhythmias (PVCs, PACs, PSVT, Atrial Tachycardia).

High Blood Pressure. High Cholesterol. Enlargement of both Atriums. High Pulmonary vessel pressure. Mitral valve prolapse, Mitral and Tricuspid valve regurgitations.

Repaired VSD is annerysmal and part of the repaired membrane is the septal tricuspid leaflet (I don't know what this means, lol, except it's thin and pouching).

Strong family history of stroke, heart attack, and congestive heart failure.

 

My name off the computer is Denise, I'm 57 and have two wonderful children and two just as wonderful grandchildren. I'm a retired health unit coordinator and my husband is a 100% disabled Veteran and a medically retired RN.

Post Edited (Dianefh) : 5/8/2004 7:27:37 AM GMT

Steve and Diane, thanks for the replies, my doctors will be removing the entire pericardium. Mine is putting pressure on my heart that I can have heart failure at any time. I was looking to talk with someone who has gone through the surgery and survived. So far I can't find anyone who has had this procedure, I wont give up hope...

Thank you Diane, hopefully someone knows someone who knows someone who had this done. :) I will keep looking.
Barb

Thank you Pat, it has been heart warming to hear from others and to know that I am not alone.

Cindy,
You have no idea how wonderful it is hear about someone who has survived this...God has his way of letting angels touch us..today you are my angel. I can now rest easy knowing I am not alone. Thank you.

Barb

Hmmm... well, I did a search and don't find that this Dylan info is correct, tho he did have an infection of the pericardium.... but my friend's friend Marty definitely had a ful pericardiectomy and is doing very well. He said it scared the daylights out of him but has been very worthwhile, and he felt very lousy before the surgery.
:/
Cindy

Barb,
I am happy that you got some answers with regards to your upcoming surgery. I hope and pray that your mind is somewhat relieved and that the surgery goes off without a hitch. Good luck to you.

Steve

My son has been very ill the last 6 weeks. The doctors drained 3/4 of a liter of fluid from around his heart 6 weeks ago and he is still in so much pain. They diagnosed a peracardial effusion and put a window in the peracardial lining to drain the fluid. He has been on a round of steroids for the last two weeks but the pain and symptoms have returned. We go to the cardiologist tomorrow to see what else to do. He has a pain patch at the moment and has been supplementing that with percocet the last couple of days. He was put on atenolol and celebrex also. He has had problems with his stomach so the doctor put him on protonix to help with that. My active 20 year old is not able to do much of anything unless he is on major pain medications. He had to drop out of college, stop working and will probably not be able to return to school in August. We have been told that this is the result of a viral infection possibly mono and that it will take awhile for him to be back to normal. Any thoughts from anyone would be greatly appreciated.

Hi Mike,

I will be having my surgery next Monday the 21.  I too am very nervous, as I am only 38 and have 3 young children.  My doctors also tell me that this is not a complex surgery.  I hope the best for you and all the people who care about you and love you.  I know that my husband is having a very hard time with this, probably more so then me.  When I am feeling better, after next Monday, I will post to you and let you know how it went. 

Barb

Dear Barb3,

I also am having a Pericardiectomy on June 24th. You have probably already had yours.  if so and your feeling up to it I would love to know what to expect. Iam rather nervous about it and would love to talk to someone...here's my e-mail

TalliniAJ@aol.com

Thank you Andrea1

To Barb and Andrea,

My prayers go with both of you.  My pericardiectomy is scheduled for July 2, but could be moved up sooner.  Naturally I share your apprehension.  This has turned out to become quite an emotional time for me also.  My surgery will be done in Seattle and both the cardiologist and the surgeon there have been supporting and reasuring.  Like you, I still would love to hear from someone who's already had this procedure.  Generally I don't like disclosing e-mail addresses on forums, but this one is quite unique, so my contact is: lorangm@aol.com.  Again, my best wishes to both of you.

Mike L.