Headaches, PFO closure, keep searching!!

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HopefullNY
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/4/2009 6:30 AM (GMT -7)   
After 5 years and 4 neurologists, I was at my wits end.  Headaches started everything!  Had every test imaginable, from High magnetic mri's to spinal taps,  you name it, I had it. You name the drug, I' ve been on it.  I have tried everything, and I mean everything!  I was on my 4th neurologist among other doctors.    If you are not comfortable, do not stay with the doctor!!!!  My doctor said,  "it's time we think outside the box" and he recommended a NYC consult.    Thank God!    By a fluke I was told, your constant, daily headaches may be from a heart problem.  No one mentioned this to me, and I had been tested with stress tests, etc.  He said, take a "bubble test".  Two more weeks and my insurace coverage was up.  My  current doctor ordered one up asap, and to everyone's surprise it was more than positve, next the TEE and also positive.
Surgery was scheduled immediately with one of the best cardiac surgeons in NYC.
I am 3 days after the surgery, not only was a PFO found, but also a ASD (which is another problem).   GETTING THE RIGHT DOCTOR, MAKES ALL THE DIFFERENCE!!
I was told after the procedure that a larger device was used as apposed to the regular one.  This was to avoid any leaks, or openings.   I was well advised for at least an hour during the office consult. every single thing I could expect.
I feel like dancing!  Today is the first day after 5 years, I didn't wake up and pop pills.
I only had pain in the groin for a couple of days, and I'm definately ready to get back to my life.  I don't want to reck his wonderful work, so I will take it easy.
But I cannot stress enough, get a second, third, even tenth opinion until you find your answers.   Just because someone is a doctor, doesn't mean they are right for you. 
Everyone needs to be aware, and educate yourself.  There will be the right doctor, and you will find your answers.   I am so thankful I did!
 

Serendipitydevine
Regular Member


Date Joined Sep 2008
Total Posts : 25
   Posted 4/5/2009 3:04 PM (GMT -7)   
Thank you so much for this!! I needed to read this... I was almost at wits end until someone told me not to give up and then reading this only helped to motivate me more. My story is posted somewhere on this thread I too have been to many different specialists.. but this is a reminder to be comfortable asking for a second or even 10th opinion and not be ashamed. I am so glad that you finally found relief and answers!! take care of you!!

AbbyJo7
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/26/2009 7:52 PM (GMT -7)   
What was your experience with the TEE? Were you awake and was it painful at all?

HopefullNY
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 5/27/2009 3:08 PM (GMT -7)   
My experience went well. actually was asleep (not anesthesia) was over before I knew it. No problems afterward.

AbbyJo7
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/27/2009 4:03 PM (GMT -7)   
Oh nice! They had to give me 3x the sedation/pain killers than they usually give because I wasn't getting 'loopy'. But after the 3rd dose, I was tad bit out of it, not much. It wasn't too bad.

angielov
Regular Member


Date Joined Feb 2007
Total Posts : 58
   Posted 6/1/2009 4:41 PM (GMT -7)   
After 3 1/2 years and 3 primary care docs, 4 neurologists, 1 hematologist, 2 G.I. docs, 1 rheumatologist, 2 cardiologists and 2 psychiatrists, I had my (what was discovered to be large) PFO closed on May 29th.

It is true that emotional issues and depression can cause alot of physical issues, but only YOU know your body. Don't give up. My husband and I were CERTAIN that there was something wrong with me. Many of the doctors were certain as well, but when they can't find the source they seem all to ok with giving up. "come back in 3 mos".

Find specialists. Travel if you have to. Trust your gut. Do your research.
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