i'm and 18 tricuspid atresia patient with various rythm disturbances and no i have liver problems too because of it. evrything is getting much worse, i'm short or breath again, and finding it hard to breathe, also all my pains are back, chest and otherwise. ended up having to go to the hospital twice in one day the other day, and about a month before that i had a heart rate of over 200 where they then needed to pace me out of it. i'm jst getting a bit worried really and don't know what to do. and am getting quite scared. the doctors don't know if its the same part of my hear causing problems or something completly different, on top of that my pace make did record quite a few of the fast rythms that have been occuring. and some of the rythms it can't record because it doesn't recognise them. its pretty complicated and most doctors aren't even aware of what i have and the complitcations that go with it. i've also had a various surgries last of which was a TCPC at 13. if my heart keeps getting worse the only option they would have would be a transplant. i'm in college at the mo and i don't want to have to drop out because of it, i have already been set back before because of my condition and all the problems that go with it. i guess i'm just asking for a bit of support really, i don't know anyone else i could talk to who would understand, plus i'm the first in my famliy to have a heart condition.
also i was wondering if anyone knew what the averge life span of a person with tricuspid atresia is without a heart transplant>