My heart feels like its on fire

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butterfly0000000
Regular Member


Date Joined Apr 2009
Total Posts : 20
   Posted 4/30/2009 5:05 AM (GMT -7)   
 last weds i had an asd closure done. they used the device put out by aga medical. 3 days later i woke up feeling like my heart was on fire as if i needed to run it under cold water. since then the burning feeling has gone thru to my back and running up my shoulders into my neck.
my dr doesnt know or wont say as to why this has happened.i told him from the start i was allergic to nickel.
when i called aga medical they said there is a warning on these devices.
has anyone had thier device cause these symptoms? is this normal or should i be looking for a second opinion?

greenhope
Regular Member


Date Joined Oct 2008
Total Posts : 113
   Posted 5/2/2009 3:08 PM (GMT -7)   

Hi, butterfly0000000, and welcome to the forum.  Although I am not familiar with the implant you mention (at least not from the description you gave), I think most of them have some type of nickel.  If I were you, I would get a second opinion since it sounds as if you may be having an allergic reaction. 

Take care and I hope you will keep us posted.

Greenhope


butterfly0000000
Regular Member


Date Joined Apr 2009
Total Posts : 20
   Posted 5/2/2009 4:18 PM (GMT -7)   
It was an amplatzer septal occluder. It has been 10 days with no relief. AGA Medical told me to see an allergist which i am on the 5th.
right now i am very upset with my Dr. Having a very hard time with this. Feeling i have been lied to and scared as to what the out come could be.
he told me my heart is prolly a lil raw and pussie. That made me feel even better. Also to give it 3 weeks and it will all be fine. That just isnt anyway it could be nickel that is just unheard of.
Not only do i have the burning in my heart.My back,shoulders and neck feel like i got a very back sunburn

greenhope
Regular Member


Date Joined Oct 2008
Total Posts : 113
   Posted 5/3/2009 9:36 AM (GMT -7)   
Hi butterfly0000000, I'm sorry to hear of all you are going through.  It must be incredibly difficult.  It sounds to me like a case of an irresponsible doctor who did not listen to your nickel allergy!  I've been to a couple of irresponsible doctors myself in the past couple of years.  I hope you will keep us posted and let us know what the allergist said.
 
Take care,
 
Greenhope

butterfly0000000
Regular Member


Date Joined Apr 2009
Total Posts : 20
   Posted 5/6/2009 3:02 PM (GMT -7)   
I went to my allergist yesterday. Explain what went on and that i felt like i was trying to turn into big hive. Told him that my now my arms and hands are starting to swell.
He then took a tongue depresser and drew on my back. He checked it a few mins later and went omg.
He said a bad case of dermatographism but couldnt test me for nickel right then because of what my back did.
Did say it was to late for it to be a dye reaction.
So now i have to wait till next tues to see if i can have test then.
Tommorrow i see my cardio dr(not surgeon) for first time since i had it done. I am praying he believes me that i am having an allergic reaction.

roxy9901
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/14/2010 10:21 AM (GMT -7)   
Hi butterfly0000000, I will try to answer you with whatever knowledge I have about your procedure. Firstly, I do suggest you to do research on the internet for your type of procedure, and maybe it'll be easier to find out the symptoms people can have post procedure.
a few weeks ago, I was supposed to have the nickel patch inserted through the same procedure as yours. The hole in my heart was they said at the time 25 mmx20 mm. After putting me under, and attempting to close my heart with the device, I woke up to find out it didn't work because my hole was in fact bigger, 36 mm x 20 mm, and rather ovale then round, and therefore it failed. Before doing the procedure I had asked them all types of questions: because I had a 90% chance of being allergic to nickel as well, and they said for a few days I would possibly have swellings or redness and itching on my skin, they explained to me that internally it would not affect me because the tissue around my heart would learn to adapt to the nickel device and form itself around it, the nickel allergies were only to take affect on the skin and it could last a few days; but no extreme burning sensation like yours.
How did you feel at first when they finished the procedure?

In the end, I got an open heart surgery done to close it up, and the recovery is much longer, and the pain was much more suffering however, now i'm in recovery and I realize it was the best choice because they used my own heart tissue; therefore there is no chance of rejecting or blood clotting. I am 22 years old and it was the hardest thing ever, but I'm happy I did it.

Please speak to other cardiovascular doctors or do some vast research online for your procedure, and good luck!

Maclean
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted Today 8:26 PM (GMT -7)   
Heart burning is a symptom of GERD and reflux. Mostly not everyone with acid reflux has heartburn and also not everyone with heartburn has acid reflux. This can be caused because of intestinal motility problems. Some times they can occur because of the cardiac workouts. Shoulder pains, chest pains and unexpected back problems can occur because of the exercise stress.

For your case I would suggest you to channel a different doctor because you have not got a clear idea about the problem and please do not stay longer!

Whatever you do, health comes first!

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