pericardiectomy

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french57
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 10/26/2009 6:19 AM (GMT -7)   
   I am currently recovering from pericardiectomy surgery. The operation was performed 
 two weeks ago at Brigham and Women's Hospital in Boston Mass. The facility is state of the art. The doctors and nurses were outstanding. I was up and walking the day after the surgery. Anyone with any questions about the surgery or the recovery feel free to ask.
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/26/2009 6:42 AM (GMT -7)   
Thank you for sharing your experience with us and I am glad to hear you are doing so well. I hope members with questions do speak up and ask questions as I am sure you are a wealth of information now that you have the procedure behind you.



Blessings,



Kitt

OHGirl09
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/21/2009 7:16 AM (GMT -7)   
Hi There! I am so hoping that you get this and are able to help~ My dad is having a partical peracardiectomy tommorow at Ohio State University. As you can guess, I am extremely frightened! Can you tell me a little bit more about your experience? My dad was told he was in heart failutre partially due to this hardening of his heart and I am hoping that his symptoms, fatigue, fluid in lungs, will go away afterward. Thank you so much!

Gaoyin
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 1/31/2010 8:10 AM (GMT -7)   
Hi All! I am new in this forum. I have been suffering from constrictive pericarditis. As I heard from many of you, the experience in treating this particular kind of disease in a cardiologist and surgeon is critical. I am in the process of finding an experienced surgeon in the New York City ares who can perform pericardiectomy. If anyone has a surgeon to recommend or information about the surgeon it would be a great help. Thank you so much!

OHGirl09
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 2/1/2010 6:52 AM (GMT -7)   

Hi All!! I first of all wanted to take a moment and thank all of the amazing people on this board! My dad had his partial pericardotomy a little over a month ago and is doing great!! He returned to SC about two weeks ago and has been walking and getting back into a normal routine. He was in the hospital for about 5 days and while there lost almost 20 pounds of excess fluid weight!!! He is starting to be able to lift a little heavier items now and can drive for about 10 minutes, but he is expected to continue to make a great recovery. Dr. Micheal Firstenberg at OSU The Ross Heart Hospital is AMAZING!!

 

Thank you again for the support. For those that have not yet had the surgery, or for a loved one dealing with this, please use this board as it is such a help!! I will have all of you in my prayers for continued healing!!


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/2/2010 3:58 PM (GMT -7)   
I do not have the names of any cardiologist but perhaps your local hospital has some referrals for you.

Good luck in your quest to find a Doctor you trust as I know there are many good physicians out there.



Take care,



Kitt

macey mazel
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/6/2010 8:51 PM (GMT -7)   
i am new to this. my husband  (53)has been ill for about 15 months, and now we are told that he needs a pericardiectomy. after a cross country flight last october where most of the passengers were coughing and sneezing (some even wearing masks- wish he was!) he was diagnosed with pericarditis.he was treated medically. after a hospitalization for afib the issue seemed to have resolved- or so we thought. he continued to be tired and weak a lot until a year later- this past november when he developed coughing and shortness of breath. he was then diagnosed with a right pleural effusion which was said to be totally unrelated to the cardiac issue, but also thought to be viral. he was worked up for autoimmune issues with normal results. he went on to have 3 pleural taps of 2000cc (the maximum supposed to be drained at a time) over a period of a few weeks. it was then recommended that he have a pleuridesis procedure where 4 liters of fluid was removed from his right lung. he recovered slowly from the surgery, yet continued to cough which was thought to be from the talc placed during the surgery to prevent fluid accumulation. we were assured by his cardiologist that there was no cardiac involvement. he continued to grow weaker, and cough. finally he had a ct scan which showed thickening of his pericardium (4-8mm) and then an echo cardiogram which showed constriction but no myocardial involvement-(normal ejection fracture) which was a relief because he had 2 stents placed 3 years prior.
we are now facing pericardiectomy and he will undergo a cardiac cath this week. we are in the philadelphia area and i remember reading an entry from "MERL" who was also in our area and wondered if she ever had her surgery. i would love to communicate with her if she is reading this.
this blog has been so helpful, and reassuring (mostly) at a very scary time.

alliealvernon
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/11/2010 10:04 AM (GMT -7)   
Hello,
Hope your doing well today. I am trying to get a consult with a doctor @ Mayo Clinic (Minn.) I have had pericarditis for 12 years now. Currently in a flare and on 60mg of prednisone. I want to try and find out as much information as possible on this surgery (pericardiectomy)  before hand. I would appreciate any information. I see there is so much to read in this forum. So I will continue to read on. I have Stills Disease (similar to lupus).
 
Thank you
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