I had a right heart cath. done over a year ago to test for primary pulmonary hypertension which runs through my family ( I do have HHT type 2). I do not have PPH, but the pulmonologist said that the pulmonary wedge pressure increased excessively during exercise, there for I have diastolic dysfunction. It is on the left side of the heart and I have to see a cardiologist, and have a left heart cath. I saw a cardiologist and he ran same of the tests I already had done before the right heart cath both sets were the same- normal. so the cardiologist said I am fine and sent me on my way. Since my symptoms have gotten worse, no one can figure it out, I am left fighting near faint episodes several times a week and doesnt know what is triggering it (adrenal, and glucose functions fine). I also have weak muscles, extreme tiredness, palpitations, the more I do during the day the more I feel like I have done a vigorous work out, ( can't walk down hills, my legs want to give out.) spinal tap had slightly elevated protein, and rare RBCs count on gram stain. CT ( last week) normal, MRI normal. I have a new cardiologist, and just got done with a 1 mo. AFIB monitor. I see him in 2 weeks. But at night sometimes I wake with a racing heart lasts about 1-2 hrs. and wake up feeling suffocated. My main concern is the more I do the more I get exhausted, even chewing food, my tongue gets too tired to move food around. Could this be a neuromuscular disease also effecting my heart ( the Endocrinologist referred me also to a neurologist.) I have Hashimoto's but my Thyroid levels are normal. Please explain the PWP. in relation to diastolic dysfunction, and any suggestions would be appreciated. ( my blood pressure is usually around 90-100 over 40-60)
One thing I forgot to mention, is on the 18th I lost my eyesight when I was near faint for about two hours, went to the ER that evening and they had no explanation for what happened except maybe lost circulation to my eyes for a period of time.
Post Edited (Hannah33) : 2/26/2010 11:37:44 AM (GMT-7)