Question about pulmonary wedge pressure/ always near faint, weak

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Hannah33
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/26/2010 11:17 AM (GMT -7)   
  I had a right heart cath. done over a year ago to test for primary pulmonary hypertension which runs through my family ( I do have HHT type 2). I do not have PPH, but the pulmonologist said that the pulmonary wedge pressure increased excessively during exercise, there for I have diastolic dysfunction. It is on the left side of the heart and I have to see a cardiologist, and have a left heart cath.  I saw a cardiologist and he ran same of the tests I already had done before the right heart cath both sets were the same- normal. so the cardiologist said I am fine and sent me on my way.  Since my symptoms have gotten worse, no one can figure it out, I am left fighting near faint episodes several times a week and doesnt know what is triggering it (adrenal, and glucose functions fine). I also have weak muscles, extreme tiredness, palpitations, the more I do during the day the more I feel like I have done a vigorous work out, ( can't walk down hills, my legs want to give out.) spinal tap had slightly elevated protein, and rare RBCs count on gram stain. CT  ( last week) normal, MRI normal. I have a new cardiologist, and just got done with a 1 mo. AFIB monitor.  I see him in 2 weeks.  But at night sometimes I wake with a racing heart lasts about 1-2 hrs. and wake up feeling suffocated.  My main concern is the more I do the more I get exhausted, even chewing food, my tongue gets too tired to move food around.  Could this be a neuromuscular disease also effecting my heart ( the Endocrinologist referred me also to a neurologist.)  I have Hashimoto's but my Thyroid levels are normal.  Please explain the PWP.  in relation to diastolic dysfunction, and any suggestions would be appreciated.  ( my blood pressure is usually around 90-100 over 40-60)
    One thing I forgot to mention, is on the 18th I lost my eyesight when I was near faint for about two hours, went to the ER that evening and they had no explanation for what happened except maybe lost circulation to my eyes for a period of time.
 

Post Edited (Hannah33) : 2/26/2010 11:37:44 AM (GMT-7)


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/26/2010 3:52 PM (GMT -7)   
Dear Hannah33

Hello and welcome. I am sorry to read of your very complicated history and of the many tests you have endured.

The pressure obtained when a catheter is passed from the right side of the heart into the pulmonary artery as far as it will go and wedged into an end artery. PCWP is measured by letting pulmonary blood flow guide a balloon-flotation catheter into a small pulmonary end artery. The pressure distal to the wedged catheter is an approximation of cardiac left atrial pressure. The pressure recorded with the balloon deflated is pulmonary artery pressure.
As far as providing you with any reasons for why you are having these sx I am afraid I am not qualified as I am not an MD. Perhaps another member has had some of the same problems as you and will be able to share some wisdom with you.

Again a warm welcome and stick with us.

Gentle Hugs to you,

Kitt

Hannah33
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/27/2010 11:39 AM (GMT -7)   
Thanks for taking the time to reply. Any point in any direction is greatly appreciated. Lost and I have 4 small children it is hard some times not sure if it is all heart related or neuromuscular related.
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