PFO Closure Part 2 of 2

New Topic Post Reply Printable Version
52 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/1/2010 2:04 PM (GMT -7)   
Link to Part 1 of this thread.


http://www.healingwell.com/community/default.aspx?f=42&m=1547293&p=5



Please continue to post here for the PFO Closure Part 2.



Thank you so much,



Kitt

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/1/2010 2:09 PM (GMT -7)   
Posted by Katieboot on 2/25/2010
 
Hi all:
 
I am headed back to cardiologist tomorrow to pick up a monitor to wear for 24 hours.  My heart rate continues to register high, even when I am not exerting.  I am about 10 weeks out from closure, did anyone else have this experience?
 
Thanks,
 
Katieboot

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/1/2010 2:21 PM (GMT -7)   
Posted by Sammysnail on 2/27/2110
 
Hi Folks, sat here chillin, log fire on in the background, keepin warm. Just came out of hospital 2 hrs ago after my PFO closure. I can honestly say that at the beginning of the week I was not going through with it as I felt that I had not asked enough questions last Sunday it seemed to me that every forum I went on I just picked up on the negatives and none of the positives. After speaking to the Proffesor of my concerns I felt a little more at ease and decided to go ahead with it. The procedure itself is not as bad as your imagination allows it to be, like anything in life its the unknown that scares us,  I felt that having this done far outweighs the possibility of having another TIA and possible permanent damage or at worse death. I have to go back in 1 mth to check that all is okay by having a TOE, fingers crossed and my message to anyone with the anxietys that I experienced only 48 hrs ago should be brave and go ahead with the procedure, Take care fellow PFO ers yeah x

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/1/2010 2:22 PM (GMT -7)   
Posted by Beckdo on 2/27/2010
 
 In October 2009 I suffered a stroke, left sided which took until February 2010 to diagnose.
I have had multiple MRI's, MRA's, CTA's, CT's, echo, etc. etc. and finally the middle of this month I went to a cardiologsist who did the "bubble test" and found the "hole".  My next visit was to another cardiologist to talk about repair. After reading up on this on the internet, at this time I have decided to NOT go ahead with closure, at least for now.  It sounds to me as if the risks are greater than the benefit, but yet, knowing you have a hole in your heart and have had 2 strokes is majorly worrisome and always in the back of my mind.  The doctors also wanted to put me on Pravastatin 40mg. and Coumadin, which I did not take.  I am going to stay on my 325mg. aspirin and my blood pressure medicine and I have added Red Yeast Rice to hopefully be a "natural" blood thinner.  My cholesterol is not high, but they want to keep it that way. I have bad cardiac history, my father fell dead of a heart attack when he was 35 years old.
So...... I am so totally torn, worrying I will have another stroke at any minute, but then I just don't want to bring on other problems with surgery, there are so many things to consider, I was told you could have a stroke during the procedure and also there is no guarantee of not having another one even with the repair, I think of the risk of staph and other complications.  As for the Coumadin and Pravastatin, all I have heard about them is HORRIBLE, but I know they prescribed them in good faith as that is what they have been trained to do for patients like me.  I am not a non-compliant patient up to this point, but I have balked at the procedure and 2 new medicines.  The Lord gave me enough mind to make this decision on my own based on what I know about it, I am praying he will see me through this.  Any thoughts like mine????

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/1/2010 2:23 PM (GMT -7)   
Posted by Katieboot today, 3/1/2010
 
Hi all:
 
Glad you're feeling strong after the closure, Sammy!  For me, the biggest hurdle in this process has been that the docs don't exactly outline what recovery looks like.  I was told I could do all activities, which for me means climbing, skiing, and going hard:)  Needless to say, I overdid it, and so now I have been told to use "common sense".....a pretty relative term, really.  I think your heart really takes some time to get used to the device, and you do have to go easy.  As one of the early members talked about, the folks who are doing really well are probably not posting as much so the forums can be a bit skewed toward more difficult recoveries.  I wish the major hospitals who specialize in PFO closure offered support groups...I think that would be a big help.  Meanwhile, we should all keep supporting one another and checking in with our doctors...I know mine love to hear from me:)
 
Wishing you all peace and health,
 
Katieboot

greenhope
Regular Member


Date Joined Oct 2008
Total Posts : 113
   Posted 3/2/2010 12:02 PM (GMT -7)   

Hello all,

Something positive...

I had my PFO closed 16 months ago.  I went to the cardiologist after 1 month, 3 months, 6 months and another 6 months.  Today was my second 6 month appointment and... I have a clean bill of health! My PFO has healed beautifully and successfully my doctor says.  More importantly, I have recovered completely.  I am running 4 and 5 miles again, and I'm still building up stamina and endurance so I can do more.  I feel really great!  I used to post here extensively when I was sick and recovering, but have not posted for a while.  I have some minor permanent damage to my left ear (a little hard of hearing) and I still sometimes mix up words or use similar words from the same context but that are not accurate.  I think this is all from the small stroke/mini-strokes or whatever I had, but it's something I can live with.  The important thing is that I feel great and I have my quality of life back.  I wanted to share this with all of you who may be facing this very difficult journey many of us have travelled through... I got to the end of the tunnel and I am seeing beautiful light again!!!  My cardio thanked me for doing my part in my successful recovery.  I thanked him for saving my life and giving me back my quality of life.  Today is a wonderful day for me.  I don't have to see the cardio again for another year.  The neurologist says he does not need to see me anymore unless I sense something is wrong.  The pulmonologist told me the same thing a few months back.  Those 3 doctors saved my life, because they listened and they cared when so many others didn't. 
 
I wish everyone much luck and wisdom in making your decisions.
 
Greenhope

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/2/2010 5:00 PM (GMT -7)   
Greenhope,


Thank you for your positive post. It is always so good to see members share the good outcomes with other members.



Gentle Hugs,



Kitt

joeprov1
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 3/2/2010 7:20 PM (GMT -7)   
Hello- I"m 4 weeks removed from my closure and I'm really starting to feel like myself again. I meet with the cardio this friday for an echo for a follow up. I'm hoping I don't have to wait until 6 months to hear that the hole is closed. After the procedure, I was told my shunting was minimal.
 
I'm looking forward to going to the gym again. The gym used to seem like a chore but since it's been taken away from me for the past 6 months I'm craving to go back. I've always been a free weight guy but this whole experience has proven how important adding cardio is to your workout. Plus it will get me in shape for the next season of Jersey Shore...kidding of course...
 
One recent event came from a trip to my Neuro. My ldl cholesteral is 98 and she wants it under 70. If I can't get it down on my own, I'll be forced to go on a small dose of statin. Don't want to do that. She just wants to be safe eventhough my cholesterall didn't cause my 2 mini strokes.
 
Been eating a lot of granola, berries, fish oil pills, flax seed, yogurt and really cutting down on the junk food..chips, cookies, nachos, pizza, burgers, fries....all things that I've been eating all my life. Always been a thin guy so eating what I want has never been a problem. I"ve been adjusting pretty well and feeling pretty good. Couldn't cut the coffee out of my routine..somethings you just need!!
 
I look forward to sharing some GOOD news with you all this friday.
 
JP
 
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/3/2010 9:01 AM (GMT -7)   
JP,


Very happy to read of your successful recovery. I know you will be able to get your LDL cholesterol down to the level you need to through your reduction of junk food, healthy eating and your exercise plan.



I will be looking forward to hearing your outcome on Friday.



Hugs,

Kitt

joeprov1
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 3/3/2010 7:43 PM (GMT -7)   
Thanks Kitt...a lot to deal with for a 35 year old guy..but I certainly don't take life for grant like I may have done before. Life is truely too short.

Katieboot
New Member


Date Joined Feb 2010
Total Posts : 5
   Posted 3/6/2010 2:27 PM (GMT -7)   
Hi all:
 
I got my results back from the Holter...all is well.  I am feeling much better this week.  Again, I think it is important to take it easy for several months, not just several weeks.  I will not be climbing again for awhile, as that seems to be the culprit.
 
Hope everyone else is doing well!
 
Katieboot

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/6/2010 3:55 PM (GMT -7)   
For one so young you are very wise as you are right on, life goes by to quickly and we need to live each moment to the fullest. I will keep you in my prayers and know I wish you peace always.



Katieboot



Great info and I am glad you are going to make taking care of yourself and taking life a bit easier a priority. I am just so very happy your tests were normal. Do stick with us.



Gentle Hugs to all,



Kitt

vmac
New Member


Date Joined Mar 2010
Total Posts : 1
   Posted 3/9/2010 4:31 PM (GMT -7)   
After surgery yesterday to repair a PFO (found after I suffered a TIA last Dec) it was determined the hole was too elongated and too near the wall of the heart to safely use the CardioSeal to repair it. Not sure what my next step is but my dr. said he was going to a convention in Atlanta on Friday and would present it there.

joeprov1
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 3/9/2010 8:39 PM (GMT -7)   
Well, the results are in after my 5 week echo. I still have some shunting but per my dr. only 3 bubbles got thru when I bare down. For the next 5 months, I need to continue to take it easy...ugh..My restrictions aren't that bad but not the clean bill of health I was looking for. I can go back to the gym but need to be careful. No heavy weights over my head which is totally fine. I can lift light weights and do light cardio which was great to hear. Being inactive since sept has been tough.  I'm not in any danger of displacing the device and they are not worried about any clots forming and passing thru the hole which caused my two strokes. I'm on a full dose of asprin daily to thin my blood and with the hole closing, I'm not in any danger of another clot passing thru. I'm being told this is precautionary. I already feel like 2010 is going to be a good year. I wish you all well with your recovery and search for answers. This PFO stuff is still so new but the treatments have come a long way in little time. I really feel lucky that my 2 strokes didn't leave me with any visable effects, other than ADD...which I think I've had since birth anyway!!! At work I feel as sharp as ever, maybe because this journey has proved that I can overcome some pretty big obtacles after initial doubts about ever being the same. Something to be said for surviving 2 strokes and jumping back into fast paced work enviroment and each day I feel stronger physically and mentally. I thank the Lord every day and so thankful to have a wife that is as tough as they come. She made every appt. for me and got the wheels from my first appt to the PFO closure....by my side on every appt and there to tell me it was all going to be okay...even though she had no idea. She's very persausive. Oh yeah, all this while she stayed home with our two young children. Don't underestimate the support system we all have around us and the toll it takes on them as we fight thru the tough time. 
 
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/10/2010 7:22 AM (GMT -7)   
vmac

Hello and welcome. Sorry to hear about your situation and I do hope that your physician will come up with the right approach to fixing your PFO. Please do come here and post your concerns, and share with us.

joeprov1

Good Morning and thank you for the update. Glad to hear you are moving forward even if you have to move a bit slower then you had hoped.

Kudos to your wife..............she sounds awesome. My hubby just had major surgery and spent 16 days in the hospital with complications after a bowel resection. I brought him home last Friday :) I spent 12-14 hours daily at his bedside and he called me his "Angel". That made me feel so good to know he appreciated having me with him. I would have been no matter what but hearing the words gave me strength to get through the many tough days.

Having a strong support system helps people get through situations that are nearly unbearable.

Gentle Hugs to all,

Kitt

joeprov1
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 3/10/2010 7:59 PM (GMT -7)   
Kitt- your husband will be in my prayers for a fast recovery.
 
JP

The Grinch
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/12/2010 11:34 AM (GMT -7)   
Hello all-

35 yo male here who experienced a tonic-clonic (grand mal) seizure while sitting at my desk at work. A co-worker called the paramedics who promptly took me to the hospital (I had never experienced a seizure before). MRI showed two small infarcts, one recent (the one that caused the seizure) and another even smaller and older. I never felt/knew anything was wrong until I had that seizure at work.

Of course they ran every other test, all came back clean except for the TEE which showed a small (1-2mm) pfo. Had to stay in the hospital for a week for all the tests, and had a couple more partial seizures while I was in the hospital so on meds for that. Thankfully haven't experienced any other seizures since then, and seem to have no physical/neurological deficits from this whole experience.

Cardio doc recommended me for pfo closure, which is scheduled for March 23rd. Neuro doc isn't convinced that pfo closure will help since it hasn't been proven in randomized clinical medical trials. Every other medical professional I talk to says get the thing closed which is my inclination as well.

Follow up MRI 5 weeks later came back normal, meaning no new spots and the old ones are "better". I again asked the neuro about the pfo closure and he said only way he'd recommend it is if was a part of a clinical trial. I know they are having a hard time enrolling people for these trials and I wish there was more data out there. Honestly I just want the pfo closed to eliminate is as a potential source and put it behind me.

Anyway, just thought I'd put my story out there. It has been helpful to read what others have posted and know I'm not alone with this problem and also what to expect during and after the procedure. Hopefully all goes well.

Katieboot
New Member


Date Joined Feb 2010
Total Posts : 5
   Posted 4/6/2010 5:17 PM (GMT -7)   
Hi all:
 
Just a quick update and a quick question for all folks who have undergone PFO closure.  I am continuing to feel better and better.  I went for a slow 6 mile run yesterday and kept my heart rate under 150 (progress:)
 
Last time I went in for a follow up with my neurologist, I mentioned that I thought a support group would be very helpful for folks considering closure and recovering from closure.  My neurologist asked me to consider running it (I'm a clinical social worker).  I am curious if you would have attended 1xmonthly support group if one had been offered in your neck of the woods.
 
Hope everyone continues to be well.
 
Katieboot

KTP0927
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/13/2010 12:58 PM (GMT -7)   
Hi I am a 50 year old female and had my first TIA 10 years ago. At that time they did a TEE and found my PFO. I have since been on coumadin. I have had 3 more TIA's since I have been on coumadin. So I have been talking to the cardo dr about closure. He did another TEE and found that I have 2 holes. I am going in for surgery on May 26th. I hope. The drs office called today and the insurance company is doing a medical review. I find it all very frustration and life consuming. Thank you for listening.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/16/2010 10:42 AM (GMT -7)   
Hello and I am happy to meet you. I am Kitt. I am glad you feel comfortable coming here and writing down your frustrations.



I hope your medical review goes well but the red tape does have a tendency to increase our anxiety. Try to stay in the moment and believe that all will go well.



Gentle Hugs,



Kitt

KTP0927
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/19/2010 11:25 AM (GMT -7)   
Thanks Kitt!!

The Grinch
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 4/20/2010 11:43 AM (GMT -7)   
Just following up to say that my procedure went well. I was in and out of the cardiac cath lab in 40 minutes, including prep time. Doc inserted an 18 mm Amplatzer device to close my hole, which was 6-7 mm. I was told that the holes are almost always bigger than what they can see on an echo.

Anyway, I have follow up echo next month, and another one 5 months after that. On aspirin and plavix to control any clotting issues. Was out cutting grass and doing yardwork with no problems 3 weeks after the procedure.

Doc was nice enough to give me a souvenir, a picture of the device implanted in my heart. Pretty sweet.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/21/2010 7:07 AM (GMT -7)   
Grinch
Glad to hear your procedure went well and what a great souvenir :) Thank you for updating us as it is truly appreciated.

Gentle Hugs,

Kitt

edupler
New Member


Date Joined Apr 2010
Total Posts : 1
   Posted 4/23/2010 2:21 PM (GMT -7)   
After 2 TIAs and 1 confirmed stroke, I am scheduled for my closure on April 24th.  All I was told about recovery is that you were fine the next day.  Now that I have read all these posts, I am confused.  I told my boss I would only miss one day, maybe two if I have to spend the night.  I work a desk job, but obviously have to drive a few miles to get there.  Help!?

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/24/2010 8:18 AM (GMT -7)   
edupler,

Welcome to HealingWell. From reading other member's experience each person's recovery time is different. I have noted that 1 week - 4 weeks is the average recovery time. As today is 4/24 you may already be in surgery and I want you to know I wish you the best.

Do let us know how everything went and know we care.

Kindly,

Kitt
New Topic Post Reply Printable Version
52 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Saturday, February 24, 2018 1:16 PM (GMT -7)
There are a total of 2,932,866 posts in 321,791 threads.
View Active Threads


Who's Online
This forum has 160472 registered members. Please welcome our newest member, sestralove.
360 Guest(s), 10 Registered Member(s) are currently online.  Details
Mak37, VeroJim, lazyminimoo, astroman, getting by, tonyaraven, skitoro, sierraDon, sestralove, Woodduck12