Hi, I'm just writing to introduce myself to this forum and see if anyone has any words of wisdom for me.
I learned recently that I have an ASD measuring about 1 cm. It was detected during a routine visit when my GP heard a heart murmur. It was confirmed by Echo and TEE (I could see bubbles rushing to my brain on the ultrasound!). I'm surprised that it took 34 years of my life to get it diagnosed. I've fortunately never suffered a stroke, but I'm wondering if my mody might have been kinder to me if I'd gotten this taken care of sooner. I know its not helpful to wonder "what if?" but you know, I wonder...
I've lost a bunch of weight over the past 14 months (87 pounds!). I'm still about 25 pounds away from my goal weight, but I suspect that having less of me maybe made it easier to hear the murmer? Anyhow, now that I know that it's here, I want it fixed. I've been working really hard to increase my fitness over the past year, and I hope that this repair may give me a little bonus fitness after my recovery period.
I'm working on getting scheduled for closure by a catheter device later this month. My cardiologist and I are planning on getting the Helex device because I'm allergic to nickel. I'm really nervous that my body may react to the Helex device as well though because the wires still contain small amounts of nickel, and I'd really like to avoid that kind of reaction happening inside my heart. Does anyone here have experience dealing with this?
The other complication that my body has thrown at me is that I'm sensitive to aspirin. I'm not exactly allergic, but I do have an autoimmune disorder that basically causes me to have an allergic reaction to whatever kind of stimulation. My body produced a histamine response to whatever it feels like, whenever it feels like. This creates systemic hives, and it's not very comfortable. It's currently in remission and I would like it to stay there. The reason I bring this up is because it is aggravated by aspirin, and my cardiologist and I are looking into alternatives to be used as blood thinners.
To sum up, I'm quite terrified of this whole ordeal, but hopeful that I'll have new energy, migraine relief, and peace of mind. In the meantime, I'm pretty much driving everyone around me crazy with all of my anxiety. I make it a practice to avoid hospitals unless absolutely necessary, I guess this is necessary.
Any words of advice, wisdom, or thoughts that might soothe my anxiety are welcome.