Just a quick update, Shands will be doing the surgery, Dr. Philip Hess will be the head surgeon. They have decided to go in the way they would a lung transplant in order to have surgeons on both side to lift the mass out. July 15th at 8am is when the surgery will start.
Strangely enough, as I was frantically trying to find someone capable of caring for my brother in this very unusual situation, Moffit called. That surgeon said they wouldn't touch it for another 20 years or so. To which my brother replied, "Did you look at the ct scans?"
He said yes. So brother says, "ok, if you were going to do it, how would you perform the surgery?"
The surgeon said he wasn't really sure but probably just a cut down the center to
open his chest. Brother says, "huh, that's funny because everyone we spoke too said it's pressing on my lungs and has engulfed my heart, no room to grow anymore. Also, Shands is performing the operation, and due to the size of this thing, they are going in as if they were doing a lung transplant."
The Moffit surgeon got defensive, says "well yea you could do it that way"
, wishes my brother luck and hangs up.
Moral of the story? Get several opinions, speak to several doctors.... I have to say, I was really disappointed in Moffit. Then again, I was a Rad Tech in the room when several med students were working on a patient..so, yea.