symptoms getting worse after PFO closure???

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rmil
New Member


Date Joined Jun 2010
Total Posts : 16
   Posted 7/18/2010 2:04 PM (GMT -7)   
Hello,

I have posted on here before, so I am going to skip straight to the point (if you want to ask any questions about me or my medical sittuation, by all means. Please do! I just don't want to sound redundant to those who may have read my older posts.)

My symptoms seem to be getting worse. Now when I laugh, sneeze, or bare down (bm) my chest hurts where my device is, and that hadn't been a problem before. The whole left side of my chest often hurts, and I can no longer sleep on my left side. I have also been having a greater problem with exercise and temperture changes, and severe fatigue.

Has this happened to anyone else??

I should add that I am 26 and in otherwise great condition! I enjoy exercising but this is making it very hard!!

I am so frusterated. I had an appointment with a cardiologist (a new one because my husband and I moved 1800 miles from my old one) set for the 30th and he has now pushed it back to the 6th, due to a scheduling conflict! I have already been waiting a month to see him.

Any way, I guess I just wanted to see if anyone else is going through this....or if it is just me. Thanks!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/18/2010 3:28 PM (GMT -7)   
I am sorry to read you are having so much trouble with your Amplatzer Cribriform Occluder. I wish your new cardiologist did not have to push back your appointment. Dang, I know that is disappointing.


Hopefully one of our members will have some words of wisdom for you.



Kindly,



Kitt

Sashaxx
Regular Member


Date Joined May 2010
Total Posts : 58
   Posted 7/19/2010 7:51 PM (GMT -7)   
rmil
Oh no, thats frustrating that you have to wait longer...hang in there!
As we have chatted before you know I had similar symptoms.  I also had the soreness in my chest, esp when I leaned over or lying on my side in bed, but I can say this has improved greatly over time.  The tiredness still remains though.  When you do finally get to see your cardiologist make sure you tell him everything you are feeling/experiencing.
Hang in there hun..and please let us know how it goes.

rmil
New Member


Date Joined Jun 2010
Total Posts : 16
   Posted 8/6/2010 4:19 PM (GMT -7)   
Well, I had my appointment today. Not entirely impressed by my new cardiologist; however he did have to order the echo bubble study, because along with the issues I have been having, this check up also counted for my 1 year post op.

During the study, the radiologist (who was amazing) decided to pull in a different cardiologist. And when they were done they told me that they thought I should know that there is a good chance the device is leaking. He said that he would read it, and ofcourse my new cardiologist would read it, but they thought I should know.

There was a significant amount of bubles that went through, and during my last one in February that wasn't a concern.....so we shall see.


I just thought I would update.

Thanks, and I hope you all are doing well. :)
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