Awaiting testing for pulmonary hypertension

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

percycat
Veteran Member


Date Joined Jul 2005
Total Posts : 1952
   Posted 10/9/2010 9:18 PM (GMT -6)   
Hello, all!
 
I'm new to this forum and joining at a time of great worry.  My brand-new pulmonologist is planning to test me for pulmonary hypertension (PAH), and I'm very fearful of the outcome.  An echocardiogram from over two years ago indicated "mild PAH" back then, but somehow those results slipped off my regular doctor's radar screen.  I now seem to be experiencing some of the early symptoms of that disease, but would love to tell myself that's just an overactive imagination.  So much of what I find to read even on the reputable health web sites sounds very grim about this disease.
 
Has anyone on this forum been tested or diagnosed with PAH, and how have you handled that?  More to the point, how can I handle the fear and uncertainty (and slowness..) of my own testing process?
 
Blessings to all,
percycat

percycat
Veteran Member


Date Joined Jul 2005
Total Posts : 1952
   Posted 10/11/2010 11:24 AM (GMT -6)   
Meeting with new cardiologist tomorrow, and I hope he can help create a plan for what comes next. How do you deal with the uncertainty, and the unavoidable waiting while scheduling tests?

percycat

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/11/2010 3:34 PM (GMT -6)   
Percycat,
 
I hope that you will have some news from your cardiologist that you will share  with us today.  I know you are afraid but perhaps 2 years ago they did not get the dx right ?
 
The signs and symptoms of pulmonary hypertension in its early stages may not be noticeable for months or even years. It often takes some time to find the best treatment for pulmonary hypertension. When pulmonary hypertension is caused by another condition, your doctor will treat the underlying cause whenever possible.
 
I know I keep flooding you with stay in the moment but try to as much as possible and when the anxiety is to bad shed a few tears to let off some of the pressure.
 
Gentle Hugs,
 
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

percycat
Veteran Member


Date Joined Jul 2005
Total Posts : 1952
   Posted 10/19/2010 5:55 PM (GMT -6)   
Tomorrow I get to pick up the results of my recent echocardiogram, and then on Thursday I have an appointment at the Cleveland Clinic. Please send out your good thoughts and prayers!

percycat

percycat
Veteran Member


Date Joined Jul 2005
Total Posts : 1952
   Posted 10/20/2010 9:03 AM (GMT -6)   
Results back: no pulmonary hypertension. And the report has the actual data attached, not just a "yes" or "no," so I feel a little better about trusting the results.
(Estimated sPAP of only 28 mmHG, down from 38 two years ago, for those of you who know about this condition)

percycat

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/20/2010 10:37 AM (GMT -6)   
PC,  this is great news so you can put this behind you and know you are OK and do not have pulmonary hypertension.  Celebrate the good news  my friend.
 
Very happy for you.
 
Hugs,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 10:14 PM (GMT -6)
There are a total of 3,005,616 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161786 registered members. Please welcome our newest member, Wildcat44444.
304 Guest(s), 6 Registered Member(s) are currently online.  Details
Sarge 83, Hoagie, mordant, InTheShop, oregonhay, Stetsonva