I'm new to this forum and joining at a time of great worry. My brand-new pulmonologist is planning to test me for pulmonary hypertension (PAH), and I'm very fearful of the outcome. An echocardiogram from over two years ago indicated "mild PAH" back then, but somehow those results slipped off my regular doctor's radar screen. I now seem to be experiencing some of the early symptoms of that disease, but would love to tell myself that's just an overactive imagination. So much of what I find to read even on the reputable health web sites sounds very grim about this disease.
Has anyone on this forum been tested or diagnosed with PAH, and how have you handled that? More to the point, how can I handle the fear and uncertainty (and slowness..) of my own testing process?
Blessings to all,