Myocardia - should I ask for more tests?

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amicitia
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 12/10/2010 2:42 PM (GMT -7)   
I'm only 21 and recently went to see a doctor because I wanted to know why my heart had irregular heartbeats (I heard them in my head). They did an EKG and sent me to a cardiologist. They did a Holter test and then a cardiac stress test, after some questions ten minutes later I was diagnosed with "Cardiomyopathy in infectious and parasitic diseases classified elsewhere (I43.0)" accompanied by "other specified heart irregularity" and "supraventricular and ventricular extrasystoles" and "fits of tachycardia" (I49.8) although I said that I wasn't ill when I was a child. The doctor told me that I might have had hidden tonsillitis and prescribed me Metoprolol. I was told not to gain weight, to be careful with exercise and do a stress test once a year; then I was sent back to my family doctor who decided to check my blood for anemia - I'm currently waiting for the results and making a list of questions I should ask my doctor (any help is appreciated).

I'm somewhat worried because as I understand it, cardiomyopathy is a progressive disease, but nobody is telling me the risks and giving me the details I need. I don't want to find out ten years later that I really shouldn't have picked up horseback riding or that beta blockers are bad for your baby (I've been surfing the internet). What I really don't understand is where I43.0 falls on the list of cardiomyopathy types. Is it dilated or something else? Is I43.0 a completely different type? Or is it still unspecified?

Should I go to another cardiologist to get another opinion and maybe ask for some more tests?
Right now I feel like doctors are not interested in dealing with this and are knowingly withholding information from me, thinking that if I know all the risks I might get stressed. Am I overreacting?

*I'm about 5kg overweight and my family has a high risk of hypertension (usually becomes a problem after we gain weight, which is another thing we are prone to). My glucose, cholesterol and magnesium levels are normal.

Thank you in advance!

amicitia
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 12/10/2010 2:47 PM (GMT -7)   
Sorry, I got distracted when posting this. I really meant to say myopathy in the headline. Forgive the newbie? :-)

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/10/2010 5:40 PM (GMT -7)   
A warm welcome to HealingWell and I am glad you found us.  I look forward to getting to know you better.
 
Did your Doctor tell you what type of cardiomyopathy you have ? The overall goals of treatment for cardiomyopathy are to manage your signs and symptoms, prevent your condition from worsening, and reduce your risk of complications. Treatment varies by which of the major types of cardiomyopathy you have.
 
I will take a wild guess here as I suspect you have restrictive cardiomyopathy  but remember I am not a Doctor.
 
Treatment for restrictive cardiomyopathy focuses on improving symptoms. Your doctor will recommend you pay careful attention to your salt and water intake and monitor your weight daily. Your doctor may also recommend you take diuretics if sodium and water retention becomes a problem. You may be prescribed medications to lower your blood pressure and control fast or irregular heart rhythms.
 
I suspect you found an article with ICD 9 codes which have nothing to do with your physician's diagnosis per se'.  ICD means International Statistical Classifications of Diseases. ICD codes are alphanumeric designations given to every diagnosis, description of symptoms etc.  They are often used by medical records when billing insurance companies etc.
 
Yes, get a second opinion.  Take care and stick with us.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

amicitia
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 12/11/2010 2:51 AM (GMT -7)   
Thank you!
I put in the code too, because I thought it might make the classification a bit more specific. Now my first goal is to find out which major category my diagnosis falls in, if it's even determined yet (this medical center has an unfortunate tendency to ignore your problems until you are nearly dead, but it has some very good doctors as exceptions to that rule too - but it is hard to find them. Unfortunately I won't be able to opt for an other medical center).
Is cardiomyopathy life-long or is it possible that it can subside?

Lots of sunshine in your life!
A.
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