Patent Foramen Ovale and Atrial Septal Aneurysm

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Robertmc
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Date Joined Feb 2005
Total Posts : 1
   Posted 2/19/2005 8:12 PM (GMT -7)   
I am a 48 year old male just diagnosed with these two conditions. I am very concerned even though the cardiologist says they are clinically benign until I have other symptoms. I have constant PAC's and am taking a baby aspirin and cardizem 180mg per day. I am wondering if anyone else has this problem and how they are dealing with it. My doctor said there was nothing that could be done but if it got worse or I had a TIA or something like that surgery was a final option. I want to know if this can be reversed or symptoms minimized. Has anyone found anything that helps? I really would like to chat about it and get others' input please. Also, I exercise regularly and have no other risk factors for heart disease, ie... don't smoke, drink, not overweight, etc...

vinny1957
Regular Member


Date Joined Dec 2004
Total Posts : 96
   Posted 3/1/2005 7:43 AM (GMT -7)   
Hi Robert.
First I must say I don't know about those conditions, could you tell me what they mean? Also welcome, I'm sure someone here will be able to help. Stay in touch, we're glad to have you.

Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 3/1/2005 11:32 AM (GMT -7)   
Hi Robert!  Welcome to HealingWell!
 
I have found a site that you might be interested in looking at that describes your diagnosis.  Basically from what I've read up on it...it seems that this may increase your chance of a stroke about 3-8% and some patients may need to take aspirin or another type of blood thinner.  There is a surgery down the road if needed, but it sounds as if that is more rare.  I believe your Dr. when he told you that your case was benign, from what I've read many are,  but perhaps you might ask him or her to give you more details re your case, or talk to your Primary Care Physician (PCP) re this.  Good luck and best wishes, Robert!  Please keep us posted.  Teri
 
For more info see below;
 
 
 
"Because he is he and I am I."......E. V. Lucas


Juliette1
Regular Member


Date Joined Feb 2005
Total Posts : 72
   Posted 3/1/2005 11:58 AM (GMT -7)   

Hello Robert

I'm afraid I don't know much about your condition, but I DO know how unsettling it is to be told that there's no real problem unless something else goes wrong! Not very reassuring, is it? sad   Hope you can get the information you need.


Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 3/9/2005 9:30 PM (GMT -7)   
Robert,
 
I hope you are well?!  Please check in again with us and let us know how you're doing. yeah
 
Teri
"Because he is he and I am I."......E. V. Lucas


whale
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Date Joined Mar 2005
Total Posts : 1
   Posted 3/15/2005 5:24 PM (GMT -7)   

I have a PFO and had a small stroke last June.  I'm not a doctor, but I've done a lot of research and talked to a lot of doctors.

The following article will help get you started.  It is well written.

http://www.emedicine.com/med/topic1766.htm

There is good evidence that the occurence of both a PFO and ASA significantly increases the risk of an embolic (clotted restriction) stroke.

One treatment option is Coumadin, which is a blood platelet anti=-clumping medicine.  Another is a plug for the septal hole, called an occluder device, which is deployed with a catheter, through a leg vein.  Occulders can be used for PFOs.  The safety record for deployment is VERY high.  The long-term data on safety is not available.  Biggest risk is the device wearing a hole (erosion) in the heart wall, which actually grows around the device and covers it up.

There is a new device, awaiting FDA approval which significantly lowers the risk of erosion.  It is the CardiA Intrasept.  Well worth the wait, if you haven't had a stroke yet, I think.  I don't know if your Atrial Septal Aneurism (ASA) preculdes the use of an occluder or not.   If it does, the other option besides preventative medication may actually be open heart surgery.

BUT... your doctors will likely suggest preventative medication unless you've had two strokes already.  Problem is, there are concerns about long-term use of Coumadin.  I know this sounds pretty heavy.  But if you get on Coumadin, you've probably reduced your risk immediately and can then take some time to determine if you want other protection (surgery or occluder).

Good luck.  And OR COURSE, I am not a doctor and don't presume that what I'm sharing is perfectly accurate.  It is my best understanding of the issues.

AND... death is inevitable.  Suffering is not.  Joy is not.  We get to CHOOSE if we want joy and living fully in every moment.  Live fully, with gratitude.


Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 3/15/2005 5:43 PM (GMT -7)   
Well, Hello and Welcome to HealingWell, Whale!! yeah
 
I am so glad that you're here and are able to help Robert, or anyone who suffers with these conditions!
 
Thank you!!
 
I consider the source you've cited a good one. 
 
I'm sorry to hear that you've already had a stroke.  I don't have that particular heart disease, but suffered a minor stroke when I had a bypass about 6 months ago.  I hope you are doing well?!
 
Please feel free to wander about here and add whatever  support that you can offer, Whale, it's much appreciated! tongue
 
Also, if you have any problems that you'd care to vent or share, you're very welcome to do so...I'm hoping Robert returns and is able to see this info.
 
Teri
 
"Because he is he and I am I."......E. V. Lucas


Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 6/2/2005 10:04 AM (GMT -7)   

hi Robert

I also have a PFO.  people who have this are born with it, and basically it causes no immeidate problems (or so I have been told by all my doctors !!!!).  it basically means that there is a small hole between the left anf right side of the heart.  this should have healed at birht, but it some it does not.  (about 25% of the population have one, I was told....)

you have to just "be aware of it" (my Dr said).  youm also have to have a sachet of antibiotics before you have deep dental work (although you may already knnow all this?!  do you?). 

also, you may have to take an asprin each day to keep the blood a bit thinner so that no clots pass through the hole.  I am meant to, but in all honesty, I forget most days to take it!  this is mainly just to thin the blood a little.  a possible problems could be that if a clot passed through the hole, a strolke could take place, as the clot goes into the heart and then gets pumped out again in the direction of your head.

ladies like me also have to be aware of a PFO during pregnancy etc and may have to also have a C- Section to avoid stress on the heart and forceing the hole to open more.  but as you are a guy you dont have to worry about this .....lol  !

Is any of this any help to you?  feel free to email me at iancoughlin@dsl.pipex.com if you want to chat about it (mark it "for Vikki").  I hope that you are a bit happier to hear that you are not alone and lots have a PFO.  I know its tough finding out stuff like this that make you worry.

Indeed, I have had a tough year with finding out all about my problems, and I am now sufferig from Depression and Anxiety and sleepless nights and I dont know why!  just a big-build up I think... (saw gp today and was given some pills - so hoefully i'll pick up now......or in a few weeks!....ho hum....)

Cant help on the other heart prob im afraid, I only know aboiuthe PFO stuff ...


JaniceRenee
New Member


Date Joined Aug 2005
Total Posts : 5
   Posted 8/3/2005 8:55 PM (GMT -7)   
robert...i am 43 and have recently been diagnosed with a PFO and ASA.  i am physically fit and have no other risk factors other than being on birth control pills, and i am considering other options at this time.  i have shortness of breath, lightheadedness, arrhythmias, chest pain, but very few intense episodes and nothing prolonged.   my MRIs show areas in my brain where small strokes may have occured, but there is no way to know for sure.   i have been talking with lots of doctors and doing lots of reading...and most people don't know what to do with someone like me who has no outward signs of a major stroke, other than wait for a stroke to happen and then go in and close the hole.  from everything i have read, PTOs in and of themselves pose little to no risk...but, a PTO combined with  an ASA seems to pose a great risk and quite honestly, i am not sure that is a risk i want to take.  i don't want to wait for a stroke to happen.  i want to go in and fix the hole.   blood thinning meds are an option, but, most docs i have talked with are concerned about the effect they have on the body, especially in the long run.  the percutaneous procedures are still relatively new, but of all the options, they seem the most appealing to someone like me who is young and relatively healthy. 
 
i'm wondering how you are doing and what you have discovered since you posted here.  when i read your note, my heart went out to you, and i wondered whether we might connect and support each other some.
 
my email address is janice619@aol.com.  i welcome contact from you or anyone who would like to talk.
 
grateful for this forum,
 
janice

Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 8/3/2005 10:15 PM (GMT -7)   

Hi and Welcome, Janice! yeah

You seem to have educated yourself a lot on this issue and that's great! - I think it is necessary in today's world to be a part of your health team - it's your body!  Thank you for all your info, I hope someone who shares this problem comes along to chat with you.  In the meantime, please feel free to join in whenever you'd like! 

Hugs, Teri tongue


"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:

Post Edited (Teri16) : 8/4/2005 12:33:32 AM (GMT-6)


JaniceRenee
New Member


Date Joined Aug 2005
Total Posts : 5
   Posted 8/4/2005 5:57 AM (GMT -7)   
thank you so much, teri.
 
warmly,
 
janice

rowanspride
New Member


Date Joined Aug 2005
Total Posts : 4
   Posted 8/10/2005 1:03 PM (GMT -7)   
Hi Robert,
I am a 32 yr old female also recently diagnosed with PFO & ASA conditions
with right to left shunting.  I don't smoke, drink,no caffiene,etc.   I totally understand how you feel, there is so much inforomation on them SEPERATELY but not together. Especially cases where they found them before the person has had a stroke.  My doctor stated it is extremely rare and there is no research on patients with these conditions who have not had a stroke  nor treatments.  I am taking baby aspirin and plavix as a preventative measure. 
 
 If it were just one of the conditions alone it would be easier to treat, but since it is both  the doctors don't know if it would be more risky to try to deal with both unless a stroke occurs and it is necessary.
 
I have found articles relating to both but none on pre-stroke cases. I have read in some articles that depending on the symptoms other medicines to control systemic pressure as well as diureticts. Here are some websites I found to get a little more information:
 
You may also want to use different search engines.  That's how I am finding various articles.
 
Some of the links also list Dr.s who specialize in treating these conditions, you may want to contact specialists to see what research, treatments and options there are BEFORE there is a possible stroke.
 
I hate the thought of having to wait for something to happen before things can be repaired.
I'd be more than happy to chat with you on this.  I'm feeling rather lost and frustrated.  My email is rowanspride@yahoo.com for you or anyone else who wants to chat/discuss this.
 
 Like your Dr. said these can be benign and asymptomatic until we get older. Some articles state that by our 60's things will no longer be asymptomatic...go figure...
 
  I know that know i'm doing my best to limit stress, no stimulants ( boy i'm missing the chocolate) and looking at what I need to do to better my quality of life.
 
hope this helps and glad I could vent.
Michelle
 

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 8/10/2005 3:40 PM (GMT -7)   
Welcome to HealingWell, Michelle!! yeah
 
Those are some great sites and I thank you!  Robert posted back in March and I've never heard back from him on this...so I don't know if he'll see this, or not.  There will be others coming along, I'm sure, so this will help aid them in their search for answers. tongue
 
I understand about the waiting for things to happen before it can be repaired.  A lot of us here have damaged hearts and are waiting for medical science to come up with new ideas!  They're trying! - it just may be a while.
 
In the meantime, continue to learn as much as you can and be a central part of your health team!  The more you know, the more you can help yourself with good health!
 
It is so nice to meet you, Michelle, and I hope we'll see a lot more of you around here! yeah
 
Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


rowanspride
New Member


Date Joined Aug 2005
Total Posts : 4
   Posted 8/11/2005 4:19 PM (GMT -7)   
Thanks for the warm welcom Teri.  It is great to find a place where there are others who understand. 
 
I have already emailed with Janice so it's great to be able to connect with someone else who is goign throught the same thing.
 
Thanks for the support
Michelle

rowanspride
New Member


Date Joined Aug 2005
Total Posts : 4
   Posted 8/11/2005 4:24 PM (GMT -7)   
Hi all.
 
I found some interesting information regarding treatment for those of us who have both Atrial Septal Aneurysm and Patent Foramen Ovale.
 
Here is the web address:
 
It has diagrams of the procedure as well as treatment for several versions of this condition.  I plan to have it with my on my next Dr. Visit.  It was great to finally find some information and treatment options.
 
Hope this helps others. tongue
Michelle

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 8/11/2005 5:33 PM (GMT -7)   
Hi Michelle! tongue
 
That was a great link!!  Thank you!  It is important to have the support of others and especially someone else who's 'been there' already!  I'm happy that you and Janice are helping each other. yeah
 
Hugs, Teri tongue
 
Don't forget Chat night is tonight, Thursday @ 8 PM to PM CST!!
We'd love to have you there. :)
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


wdwfan43
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/16/2010 10:14 PM (GMT -7)   
Good Morning and welcome to HealingWell,
 
This thread is 5 years old.
 
I have made you a thread of your own so you would have the opportunity to meet and talk with members here in the forum.
 
Here is the link to your own thread:
 
 
Kindly,
Kitt

Post Edited By Moderator (stkitt) : 5/17/2010 7:29:31 AM (GMT-6)


Noah Body
New Member


Date Joined Jul 2010
Total Posts : 11
   Posted 7/27/2010 7:02 PM (GMT -7)   
This is the best support group.
I also have a PFO.
Is one device to plug the hole better than another?

Thanks!
Noah
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