calcific pericarditis

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vomer
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/6/2011 9:11 AM (GMT -6)   
Hello all,
 
I have constrictive?calcific pericarditis and was experiencing vague symptomes for a few years. When it was finally determined what the problem was, my cardiologist placed me on aldactazide to ameliorate the symptoms, and it seems to be working pretty well. However, part of the pericadium appears to be adherent to the heart muscle preventing it from contracting proprly. I feel pretty good, but always wonder if I would feel better after pericariectomy. This is obviously a major decision, as the surgery is not exactly a "walk in the park". In addition to the seriousness of the sugery, it seems that this is a relatively uncommon surgery and there are very few surgeons who have done a lot of these procedures (at least from what I've been able to find out). Does anyone know of any cardiothoracic surgeons who've done a fair number of pericariectomies? Also, is there anyone out there who has had the surgery and can tell me what differences they have felt following the procedure? Thank you very much.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 4/15/2011 1:39 PM (GMT -6)   
Hi Vomer,
Welcome to Healing Well! I'm just helping out on this forum, and unfortunately can't answer your question. Have you tried the cardiology departments at the big medical centers like Mayo, Johns Hopkins, Cleveland Clinic, etc. Perhaps there's one not too far from your home. Often these centers have more experience doing difficult cases.
Good luck finding just the right surgeon!
Denise

Moo1
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/9/2011 7:41 AM (GMT -6)   
Hi Vomer,

My husband just had a successful pericardectomy for constrictive calcific pericarditis. He had symptoms of the disease for over 4 years. No one diagnosed it until 3 months ago.
His symptoms of edema in the legs/ankles/feet; tightness in upper abdomen especially upon exertion; acides; low grade fever; digestive issues were getting worse. He was a very
active 63 yr old and had became more sedentary.
We elected to stay in our hometown because of large familial support. The surgeon here only sees cases like this once or twice a year but came highly recommended. We felt confidant in him.
My husbands condition was discovered on a cat scan with dye.
The surgeon said the calcium encased my husband's heart and it was quite extensive. The most severe case he had seen.
We are 2 weeks post op and he gets better each day.....doing more and more on his own.
The only problems he has encountered were: atrial flutter, 1 week post op.....they did a cardioversion and it went into normal rythm and a small blood clot in one lung which they are
treating with coumadin. Cardiologist didn't feel these were very serious after major surgery.
Hope this helps. I think my husband will feel like a new man after his complete recovery

Loisgirl
New Member


Date Joined Sep 2013
Total Posts : 1
   Posted 9/27/2013 5:16 AM (GMT -6)   
moo1 - my brother in law had this done in May but they didn't take enough calcium off.  The heart is still not functioning properly and he's always short of breath.  He's considering another surgery.   Where and who did your surgery?  
Thanks 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/27/2013 10:11 AM (GMT -6)   
Loisgirl,
 
Hello and welcome to the Forum as well as thank you for your information.
 
Moo1 only posted the one time,  7/9/2011 which was over 2 years ago.
 
May I suggest you start a new topic thread for yourself if you feel comfortable in doing so.  That will help our members to recognize you as a new member and welcome you to the Forum. Share with us what your current issues or concerns may be as well as support the other members.
 
I look forward to getting to know you better.
 
Kindly,
Kitt
 
 
 
 
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

Francee1679
New Member


Date Joined Dec 2013
Total Posts : 1
   Posted 12/13/2013 8:58 PM (GMT -6)   
I too have had a pericardiectomy from constrictive pericarditis. I was misdiagnosed with costochondritis for several years and finally was properly diagnosed when I went to the hospital with such sever pain. I was 27. A few months later (after MRIs and unsuccessful treatments with methotrexate and indomethecin), I was told I had some of the worse fusion the surgeon has ever seen. Approximately 3 months after the surgery, I began having pericarditis symptoms identical to the symptoms I had before. Same intensity and everything! I now suspect they didn't remove enough calcium that was fused to my heart too, or perhaps they left too much unscarred tissue behind, which continues to get inflamed. My surgery was done in 2010 at Suburban Hospital in Bethesda, MD which is part of the John's Hopkins family. I typically have a flareup once every 6 months, which I have treated with prednisone until about 6 months ago when my flareups became more frequent. I think the prednisone caused the more frequent flareups. Now I'm trying CellCept as a daily preventative treatment. I hate to share my story as a precaution to those considering surgery, but I just people to know that it's not always a total solution. Although the constriction problem is resolved, the pericarditis is not.
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