Atypical Pain and Still getting strange sensations

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Lucky-2B
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Date Joined Apr 2011
Total Posts : 2
   Posted 4/26/2011 8:13 PM (GMT -7)   
Let me start with the frustration. I visited three different Drs. before the attack and I'm guessing that they suspected something, because each did a 12 lead EKG in the office. Results, nothing showed. None of them mentioned to me that the symptoms may have been small attacks, which I had for over a year before the "big one". If I thought I was having heart attacks, with the symptoms, when I had the long lasting blockage I sure wouldn't have waited overnight to go in to emergency.

Being 63 they all did stacks of blood tests, the same things along with the EKG, so I assumed it was just part of the standard tests.

Now the new Dr. took care of things best he could and I'm very thankful and happy. Talked to a friend afterword and he said "lucky to be alive" which the operating cardiologist also commented more than once. 100% blockage of the LAD "widowmaker" and 75% blockage in another. Wow and nothing showed on those EKGs.

One of the reasons for writing the messages is because only after the attack did someone else say, oh, I had the same thing, and didn't know it was heart attack symptoms. He was A fireman who worked rescue squad. I'm hoping that after all that, maybe one person will read this message and see something that helps them get to the Dr. and be aware that it's atypical heart attack symptoms - possibly?

Started with tightness in my throat and neck. Often was a cramp in my right arm, bicep. Want weird? Wrong arm, not chest pain. I'd have tiny attacks when I got up in the morning, and they would pass after a few minutes. Only once did one last more than five minutes and that was an episode between EKG 3 and the heart attack. Maybe it would have shown, as the tiny ones didn't.

Want more? A week or two before the attack, I went hiking for over four hours. Down a steep bluff, along a river, up and down hills, with the long steep climb out again. Not even a twinge of pain. Sure shortness of breath, but climb a quarter mile up a hill, nothing unusual. :)

Now I have quit smoking (a little late but at least I finally did) I'm on Plavix, Simvastat, lisoprinol, metoprolol, (sp I don't know) baby aspirin, take a vitamin and fish oil every day too. Had high blood pressure, high cholesterol, smoked, marginally overweight, don't regularly exercise, only thing missing from the risk factors was, I don't have diabetes. Wow, unexploded bomb ticking.

Had a stress test and two echos since the procedures, I'm up to 50% heart function if I read the reports right, which is bottom of "normal". Fairly pleased with that.

Question? Stents, in July and December 2010 - I still have tickles and twinges. Some mornings I wake up and have small stabs on the left. Once or twice I've had a burning sensation. Sometimes during the day I get a pressure or pain on the right side of the heart, near the sternum. Every now and then I can feel a slight blip, maybe a skip, I don't know. Twitches and palpitations. When I sleep on my left side, I can feel my pulse/heartbeat. I asked at re-hab also asked the Dr., what they say is "if it's not the same pain you had when you had the attacks, don't worry."

Well considering past experience, yes I'm worried about what I'm not being told. I understand I'm not cured, but these pains, thumps, tickles and twitching bother me. Every day some pain or symptoms, and I can't find anything about what it feels like after getting multiple stents. What should I be watching for. Should I be concerned?

I'm happy for what the cardiologist did and he's wonderful. New primary care physician, who of course did all the same blood tests for about the 6th time. ;) But I wonder how much I'm not being told, again?

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/28/2011 4:39 PM (GMT -7)   
Lucky 2B,
 
A heart attack will usually be seen on an EKG as you are experiencing it, and will also leave behind a "footprint" which is useful for detecting past heart attacks.  Even small heart attacks can be detected on an EKG after the event.

If you have chest pain, especially  seek medical care immediately. Call 911 or your local emergency number. If you don't have access to emergency medical services, have someone drive you to the nearest hospital. Drive yourself only as a last resort, if there are absolutely no other options. Driving yourself puts you and others at risk if your condition suddenly worsens. With your history of heart disease this is vital for you to follow.

I think you have a right to wonder and worry about how you are doing.  I would strongly suggest you make appointments with your cardiologist and PCP to get checked out and make a list of your questions.

You are doing a wonderful job of being your own best advocate.

Stick with us as we are here to support you.

Kindly,

Kitt



~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

Lucky-2B
New Member


Date Joined Apr 2011
Total Posts : 2
   Posted 5/2/2011 7:16 PM (GMT -7)   
I made an appointment for third follow up with the cardiologist. He's wonderful and the hospital has been fantastic. Rehab was very educational.

What still bothers me is the three doctors before that and not one bothered to say, "If you have a continuing pain like this, go to emergency. You have a possible heart condition." What did they say? High Cholesterol, high blood pressure, lose weight, stop smoking... nono Well that's no mystery, I was on Lipitor, taking aspirin when I got the pain, a guess on my own for the second one. But why didn't they warn me? Instead I sat 20 hours in pain and almost died, now I can't jog across the street without shortness of breath.

It's difficult to pay attention and be wary if one doesn't know what the possible condition is. If Drs. don't tell us, what are they doing besides taking blood test, after blood test?

Three EKGs and nothing showed? Why did they keep doing EKGs if they aren't useful? I'm stumped, but too late now, there's no going back. I got that news after the attack too. Dead heart muscle doesn't come back, it's gone forever. Why am I the last one to know, when it's my life and body?

Thanks Kitt, maybe I should get copies of the EKGs and see if there was anything on them, and they just haven't mentioned that either?
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