Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Heart Failure

Support Forums
>
Heart & Cardiovascular Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 3/13/2005 9:43 AM (GMT -6)
I've been diagnosed with CHF or Congestive Heart Failure and wondered if anyone else here has?  Currently I've been 'well compensated' with the medications that I'm on.  I take an Ace Inhibitor along with Digoxin~a lot of people are put on Beta blockers to help.  I found this article on the HealingWell.com site and thought it might be of some interest to you.

 

Let me know what you think??  Teri

http://healingwell.healthology.com/focus_article.asp?b=healingwell&f=cardio&c=diastolic_dysfunction&spg=SCH

profile picture
beachjay
Regular Member
Joined : Jan 2004
Posts : 108
Posted 3/13/2005 12:00 PM (GMT -6)

Godd morning Teri I have cardiomyopathy and CHF. I am surprised you don't take Coreg it seems to be the 'gold standard' for CHF. Maybe because you are well compensated with the meds you are on. Re the article read some of the article but stopped when it mentioned the five year mark! That info is very very out of date.

Jay

profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 3/13/2005 7:14 PM (GMT -6)
Hi Jay and Thanks!  I skipped around the info so quickly, I didn't notice that and you are right. yeah

 

I want to Welcome you back to Healing Well and hope that you become a more frequent visitor!  I miss talking to you. tongue

 

Coreg is a beta blocker that is used very often in Heart Failure, but in my case, Jay, I'm unable to take any beta blockers as my Blood Pressure remains very low, due to diastole and systole dysfunction of the left heart where all my damage is.  I was told that the bottom left side of my heart is dead and not beating-though if that were all-I'd be doing probably pretty great!  The anterior portion of the rest of the left side is dead and what is left is beating erratically.  Which makes the right side have to work that much harder.  Ergo...no beta blockers.  My Dr.'s have all told me that my med.'s that I'm on now, will never change.  I remain on 2.5 mg. of Lisinipril (Ace Inhibitor) and Digoxin .125 mg.

 

Hope this helps to explain?

 

Please come back anytime and visit~I enjoy having you here!! yeah

 

Teri

profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 3/13/2005 7:23 PM (GMT -6)
I have a site bookmarked as a favorite of mine~I hope you will find this informative as well!!  It has lots of info on Heart Disease and CHF as well.

 

Teri   tongue

http://www.texasheartinstitute.org/index.html

profile picture
beachjay
Regular Member
Joined : Jan 2004
Posts : 108
Posted 3/13/2005 8:34 PM (GMT -6)
Teri, that is a good site isn't it? Keep well!
profile picture
bc2
Regular Member
Joined : Feb 2004
Posts : 71
Posted 3/18/2005 9:48 PM (GMT -6)
i have chf as well you know but i don't take the meds you do ef was 35 last weeklowest ever been wander what that means teri oh teri i have missed you tex so sorry for your lost praying for you

                        hugs from ga devil

profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 3/18/2005 10:06 PM (GMT -6)

Thanks BC!!

My EF has ranged from 40-45 in the past few months, BC...I am so sorry to hear your's has gone down to 35%.  Though you know, that many survive at even lower, much lower ranges.  With the EF it's just a number...go by how you are feeling!! 

They've now added a nitro patch again along with Norvasc (only 2.5 mg.) to help open my arteries up with more blood flow.  So wll just hope my B/P doesn't drop too low.

Please be well and I hope everything goes well on Monday!!  What are they going to do??

Love, Teri   Big Hugs From Texas!

profile picture
gain
Regular Member
Joined : Dec 2003
Posts : 101
Posted 3/19/2005 5:43 AM (GMT -6)
Hi Teri,

You have many of the same problems that I do. I also don't take a beta blocker because of low bp and heart rate. I have Cardiomyopathy and CHF because of only having 40% of my heart still working. Most of what is working is in that back right side. The entire front of my heart is dead and my ef hovers around 20, but I feel pretty good most of the time. I have an ICD because of some developing arrythmia problems and a high risk of SCD. I also have an abdominal aortic aneurysm that is growing pretty quick and will have to be taken care of soon. Having been thru MI's 5 bypasses kind of prepares you for what comes after I think.

Most of the problems I have are progressive, but up to now, I continue to feel good. Sure I get dizzy all the time and am always tired, but I have been able to continue to work full time and do some of the things that I have always enjoyed. In the end you can only play the cards your dealt.

Like me, you have been dealt some pretty lousy cards but your still in the game. Hope you are well today and don't worry about tomorrow.

Steve
profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 3/19/2005 10:27 AM (GMT -6)
Yes, Steve, we've been floating in that same boat for a long while now, along with a few other friends of ours.  But to give others some positive thoughts here, there are many, many new medical treatments that come along everyday to help us stay productive and living our lives as normal as can be!

 

Steve is one of the few that I know personally that continues to seek new ways to remain as productive as he can!!  God Bless, Steve!!!

 

Love, Teri

profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 4/12/2005 7:34 PM (GMT -6)
I'm always keeping my eyes open for any new things on the Horizon that will help those of us with any type of Heart Disease!

 

Today I found an article on a new test for Heart Failure that may make it easier to diagnose!

 

See the following article!  Hugs, Teri tongue

 

http://www.nlm.nih.gov/medlineplus/news/fullstory_24039.html

profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 4/13/2005 6:09 PM (GMT -6)
"After Kidney Graft, Heart Failure May Improve"

 

 "Patients with end-stage kidney disease and advanced heart failure who undergo a kidney transplant tend to see an improvement in their heart function, researchers report.

Congestive heart failure is common in people with kidney failure being treated by dialysis, lead investigator Dr. Ravinder K. Wali told Reuters Health."

This is another article that I thought perhaps may be of interest to some others here on this forum that may have heart failure, or someone else close to them that does!

Hugs, Teri tongue

See the following site for the follow up on this story...

http://www.nlm.nih.gov/medlineplus/news/fullstory_24059.html

profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted Yesterday 1:20 PM (GMT -6)
I was reading through some older posts this morning and wondered if there's anyone here that does have Heart Failure, or active (non-compensated) Congestive Heart Failure?

 

Perhaps you'd like to share with some of us on how you are now doing?!

 

Best Wishes, Teri tongue

profile picture
toot-toot
New Member
Joined : May 2005
Posts : 4
Posted 5/19/2005 5:31 PM (GMT -6)
Hi terry, you, too, Steve and the others. I am new here. My 15yr heart history was briefed in my info thread under "toot-toot" which was posted today

Obviously, I feel for your situation, and since mine has recently become similar the feeling is even more intimate. But I am jealous, you two seem to 'feel great' and other nice to be living anecdotes. I am losing that rapidly and would love any feedback.

I have felt miserable since beginning of year, perhaps due in part to other maladies and meds that have been visiting me, perhaps that I also have what I suspect to be hypoglycemia (nearly collapse on sidewalk a week ago, recovered ater a quick bite at a nearby vietnamese hole in the wall) and have since drastically changed my eating habits to eating something no more than every two hours. I see an endocrinologist next week.

But my immediate concern is last months 3x discharge of the AICD (pacemaker, plus I guess it can be called) and immediate hospitalization to begin Amiodarone treatments. I recently had to stop Amiodarone therapy due to unbelievable side effects that effected every hour of my conscious day. I lasted about 4 weeks, 1st at 800mg/day, 2nd week at 600mg, then down to 200mg maintenance.

It was so bad I preferred the risk of none to a lousy future of feeling so bad I had become a zombie. I hate tv during any daylight hour and never watch it. So, there it is in a nutshell.

toots
profile picture
toot-toot
New Member
Joined : May 2005
Posts : 4
Posted 5/19/2005 5:35 PM (GMT -6)
Forgot to add. I had two CHF events in 2003 which led to the ICD but none since the that miracle device was installed, so I am not sure how well compensated I am. No eschemia, no problem breathing (even flat on back) and can still take a slow stroll for a few blocks.

toots again
profile picture
Teri16
Veteran Member
Joined : Dec 2003
Posts : 5230
Posted 5/19/2005 8:17 PM (GMT -6)
Hi Toots!

I'm really glad that you are feeling so good now-breathing while laying flat is a good thing! :) So you can now say you are having a "nice to be living antedote"... Sometimes it's the level you are at and yes, the med.'s play a big part. I always have this feeling if I stop what I'm doing, then what?? So I sometimes have to push...but I do understand those down days-most definitely.

Keep venting, posting, asking questions and we'll all try and pitch in whenever, wherever we can!

Hugs, Teri :)
✚ New Topic ✚ Reply


More On Chronic Illness

Getting Self-Help Online

Getting Self-Help Online

Coping With The Stress Of Chronic Illness

Coping With The Stress Of Chronic Illness


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.