Question about Chronic Liver & Heart Disease!

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Sick Dad
New Member

Date Joined Jul 2011
Total Posts : 4
   Posted 7/12/2011 4:49 AM (GMT -6)   
Hello Everyone,
My Dad's just been diagnosed with Chronic Liver Disease. He's been itching like crazy since september along with all the classic symptoms of CLD but this has not been diagnosed before as these are the also the symptoms of heart disease.
He is 67 and on a combination of meds for his heart disease. He had a valve replacement 2 years ago, which helped, but the symptoms (difficulty walking, dizzy spells, low body temperature, lack of appetite, fluid retention) returned within 6 months. He has also spent most of his life in the pub but gave up drinking 6 weeks ago when the liver problems were first noticed.
My Dad is also incredibly afraid of bad news. To the point where he's hiding information from myself and the doctors, which is why it's also taken so long to be diagnosed and why it's also hard to make sure he's being properly cared for.

I've read a lot about the prognosis for liver & heart disease and how people that have had surgery and given up drinking have out-lived theirs but another surgery is out of the question and he is still receiving toxins via the heart medication.
Does this sound familiar to anyone and what should i expect in the coming months?
I am his only carer and I live a 2 hour drive away so my question here is practical rather than emotional. I really want him to be comfortable at the end and would like to prepare for this but at the moment I feel that the doctors are only offering hope because there's nothing else they can do. I understand that this is important for him but I need to be informed in order to care for him.
Please help and thanks for your time.

Post Edited (Sick Dad) : 7/12/2011 11:00:01 AM (GMT-6)

Elite Member

Date Joined Apr 2007
Total Posts : 32602
   Posted 7/12/2011 12:23 PM (GMT -6)   
Hello and welcome to HealingWell.  I would ask your Father to list you as the person who may have access to his medical information.  All he has to do is sign a form usually available at the hospital or clinic.  That way you may call and talk with his Dr. about his condition, treatments and to receive information re any tests or prognosis re your Father's condition.
Approach him with a caring attitude and let him know you understand his fears but you want to be able to help him through this difficult time and in order to do that you need accurate information.
My MIL is in Hospice program at this time and getting information from her to set everything up was like pulling teeth so I know how you are feeling.
Often our parents want to hold close to their privacy even when they are facing a terminal illness.
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Sick Dad
New Member

Date Joined Jul 2011
Total Posts : 4
   Posted 7/13/2011 7:30 AM (GMT -6)   
Thank you stkitt,
I am lucky that his doctor has realised that someone needs to be informed and will discuss his condition with me. The problem lies more in that my Dad will not admit to anything being wrong, so it's only when it gets really bad that things show up in blood tests or worse. I explained when he had his last heart attack that hiding from things just makes things worse but this seemed to have no effect.
Unfortunately, I have tried being caring and supportive and he just gets very angry and makes it very clear that he doesn't want to talk about it. I guess all I can do is be there and I also realise that these are possibly his last months or maybe year and so have to let him make his decisions and go with him on this.
Thanks for your kind words
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