Any other people coping with SVT?

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Fiz
New Member


Date Joined Jul 2011
Total Posts : 3
   Posted 7/22/2011 2:07 PM (GMT -7)   
Hey everyone... I'm new here :-)

Just wondering if there are any of you who have SVT? I am a middle-aged woman and have had bouts of svt since I was 22 years old (was pregnant for the first one). Saw a cardiologist way back then and was told that it was "benign" and to perform vagal maneuvers to get rid of it... and to just go on with my life. As the years have passed though, the SVT has gotten worse and more stubborn and frequent (stubborn, meaning... hard to stop it). So I saw a specialist cardiologist to discuss having a cardiac ablation and I'm now struggling with whether or not I should have this VERY scary sounding procedure done. Its like... I've had this condition for 30+ years... maybe I can just accept myself for the way God made me (and that he did it for a reason?).. or take a chance that the docs can fix me and I won't have to live with this cloud above my head (anyone that also has svt knows what I mean about the "cloud".....kinda the feeling that it can strike at anytime and anywhere).

There is the above issue... along with the risks involved, with any invasive procedure.

GAAAK... the thought of 5 catheters getting strung into the veins in my groin, then getting threaded up to my heart, is enough to sending me running away, screaming smhair ...let alone burning extra nerve pathways in my heart... WHILE I'm semi-awake!

Thoughts? Anyone have a cardiac ablation done that is also somewhat panic-prone? Thanks in advance..

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4949
   Posted 7/23/2011 5:43 AM (GMT -7)   
I have SVT in response to my food sensitivities/intolerances. Keeping a really good food journal helped me find my triggers. I have posted before and you can search in the box at the top of the page.

By avoiding my food triggers I am able to mostly not have these events.

My condition is pretty well described by "cardio-esophageal relfex" or "linked angina."

Once my SVT caused a cardiac artery to constrict, causing a heart attack. There could have been a small plaque ruptute then too. I've had to have my heart "restarted" with adenosine in the ER, after a 5 hour bout. Usually I can get it to stop by doing Valsalva maneuvers (pushing with abdomen like having BM) or coughing. I carry atenolol which helps gets it converted most times and aspirin in case I think I might be getting a heart attack again.
Alcie
 
 

pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1680
   Posted 7/25/2011 8:54 AM (GMT -7)   
I have SVT that is triggered by certain IV medications and low H&H.
I also have Crohn's disease and they discovered the SVT while being treated in the ER for my Crohn's. The hospital Cardiologist recommended ablation but my cardiologist thinks that since I was so anemic and needed blood transfusions, we would wait and see what happens. I am now very cautious what I put in my body and what they put in my IV and haven't had a bout with SVT in 2 years!

I also notice when I eat certain foods, it triggers palpitations so I have to agree with Alce. But, if your SVT is becoming worse and it affects your quality of life, ablations may be reasonable. If you have any doubts, get a second opinion.

Good luck!!
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008

No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions.
Been through MANY medications with mixed results
Currently on Lialda, Ambien (prn), xanax(prn) Bee Propolis 500mg twice per day. Rowasa

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4949
   Posted 7/25/2011 12:42 PM (GMT -7)   
My food triggers were seemingly unrelated ( gelatin and maple syrup, for example) until I was able to get a good list and google them together with phrases like food sensitivity. I found my whole list on the sulfite intolerance/sensitivity pages.

Other people react to other chemicals, like MSG, etc.

Keeping the food log was the best testing I have ever had done. My allergist explained it all. Still, a lot of my doctors don't believe this sensitivity because they didn't learn of it before I came along. Avoiding my triggers does work though!
Alcie
 
 

coco6280
New Member


Date Joined Jun 2014
Total Posts : 1
   Posted 6/4/2014 6:51 PM (GMT -7)   
Hi,I had svt it was horrible my heart rate would go up to 250 beats paper minute and the second one I got was 260 per minute so they performed the" ablation" this procedure was supposed to" cure me" but it didn't, it took me about 6 moths to recover I was on a bunch of medications and my heart rate would go from 80 and jump to 160 while sitting....... now I have to live with an irregular heart beat for the rest of my life although my heart won't go higher than 160 I still get palpitations on an every day basis,about 7 to 9 times a day,am always tired,fatigued, winded,I can't run,I can't have coffee, tea,chocolate, white bread,potato, nor soft drinks,I have to make sure am constantly drinking water,I can't get mad because that triggers my" arrhythmia" I can't get too happy because that also triggers t,I can't sit up properly because that also triggers it,I can't sing neither because that also triggers the attack. .......sooo to be honest the procedure didn't cure me nor fixed me,I feel like it got me worse....... once you have svt there is no cure!!!!!! Just treatments that causes side effects..... just learned to accept it for what it is a disease an illness and just be very careful and learn how to live with..... oh just to throw this out there too,holistic medicine don't help neither,sorry to burst anyone's bubble,.do yoga,meditate, exercise carefully, don't stress, take life easy. That's all I could say,that's my experience I hope this helps someone.

Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 493
   Posted 7/17/2014 8:18 AM (GMT -7)   
I just posted yesterday about this...& now considring "Cryoablation"-!

I've had SVT over 30 years..& it's only getting worse-as I'm now in my 60s-!

(See recent thread)- I;m just hoping I get some responses--to my questions.

Like...are you "completely out"...during the procedure..?

And--how long does it take AFTER the procedure to see an improvment--!-

This is driving me ...nuts !!!
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